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Multiple Sclerosis?!? Can it be possible?!?

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Posted 6/6/2011 11:06 PM (GMT 0)
Well... for those of you who remember me, I have been very sick for some time. Today I have not been able to even turn my head or get up (my husband had to carry me into the MRI, then into the ER, and then home when they glibly sent me off after doing their apparent duty by giving me a shot there). On Friday, my family doctor went over all my information with me and said she strongly feels that I have Multiple Sclerosis (MS) and this MRI she feels will show some sort of lesion(s) in the cervical spine!

And what if it doesn't? I have been in so much pain this weekend I have been totally stuck in bed. I can't move. She said she has done all she can for me until she gets a diagnosis--but I feel that is a lie--she is not controlling my pain at all!!! The prednisone and neurontin have been extremely helpful, but not enough. I am in excrutiating pain right now and ready to just give up. I just really can't take this anymore.

I need help!!!
Nicki
Posted 6/6/2011 11:21 PM (GMT 0)
Oh Nicki I'm so sorry that you're in so much pain. (((((((((hugs))))))))) I do believe that your doctor could give you better pain control. I understand him/her not giving you any other treatment like the ones that treat Multiple Sclerosis, but it does look like she/he could treat your pain better. I would advise you to call your doctor and tell him/her that you're hurting so bad that you can't get out of bed. Maybe she/he would give you something else that would treat your pain better. I will be praying that you can get better pain control.

Please let us know when you find out the results of your MRI, and what the doctor says, ok? Take care.

lots of soft hugs

Loretta
Posted 6/6/2011 11:27 PM (GMT 0)
Thank you Loretta! I did tell them about the pain, and the ER saw that I could not turn sideways, and my husband had to carry me everywhere. They would not even give me a bedpan! I had to wait almost 4 hours to go because I was in too much pain to get up and even with my husband's help to carry me there. I am beyond frustrated with these doctors. My friend called the ER and asked them why they had not admitted me and they told her to tell me to come back... are they going to do anything at all?! Or just give me another shot and go home again? That is not even worth it! Thank you for the hugs!!! Nicki
Posted 6/7/2011 2:10 AM (GMT 0)
IMHO there are two basic types of doctors in the ER.

You have the "treat 'em and street 'em" types who simply want you in and out as fast as possible and then you have the "let's really find out what is going on" types who are at the very least extremely curious and want to make sure that you get the appropriate treatment(s) for what they believe is going on with you.

Unfortunately going to the ER is a lot like playing "Lets Make a Deal" and the doctor you get is the "prize" behind door number 2.
Posted 6/7/2011 3:04 AM (GMT 0)
Thank you! I just went back to the ER again with a close friend of mine who is very motherly. She had called in advance and told them that she was disgusted with the treatment I had received and she was bringing me back for better care. I was in too much pain. The doctor did help me this time. He gave me a shot of Delodid and a dissolvable tablet of zofran and then gave me a prescription of both didioldid and flexaral for the muscle spasms.

He finally had the results of the MRI and it showed NO leasions, but a cyst on my thyroid gland only. So does that mean that I don't have MS because he didn't seem to think that was enough of an answer!

does anyone know if no lesions on a cervical spine MRI is enough to say I don't have MS for sure? I would like to know for sure if possile! Thank you. NIcki
Posted 6/7/2011 5:54 AM (GMT 0)
Nicki,
MS lesions mostly show up on an MRI of the brain. It takes some time to get it done- the scans that is, but they look for MS 'plaques' on certain areas of the brain- specifically what is called the white matter areas. They usually show up during an episode of increased MS activity and leave 'scars' for lack of a better description when MS symptoms subside.
Sometimes, though, there can be no lesions at all, so the diagnostic criteria says that there must be at least two documented episodes of MS separated by time and space, lesions on MRI, and some other forms of documentation to give a definate diagnosis of MS. I may be a bit off on some of the criteria since it has been a while since I looked it up, but it is very similar to what I posted.
MS lesions can also show up sometimes in cervical , thoracic or lumbar MRI imaging as well .
Do you have any family with a confirmed diagnosis of MS?
I hope that you feel better soon.
Sandi
Posted 6/8/2011 12:38 AM (GMT 0)
I would be asking my PCP to ref me to a dr that specializes in MS, there drs out there that do this and many times a neurologist is quite capable of caring for MS patients. I have a friend with MS and with medication she is able to lead a productive life, but we are talking about medications that are for MS. A fellow built our shed a couple of years ago his wife was also dx'd with MS and she was put on medication after getting the dx and he said she was able to return back to her job working once she got put on the proper medication.

I am telling you about these people so that you don't feel like you have been handed a death sentence and many times we do feel this way when dx'd with a disease. Last year I met two teenagers that were getting IV medication for MS at the infusion center I went to for IV antibiotic therapy. These kids were amazing.

Please keep us posted on what you find out and take care.
Posted 6/8/2011 1:30 AM (GMT 0)
make sure to get into an endocrinologist about that cyst, thyroid disorders can make you very
weak and possibly unable to move so get that taken care of first...Then ask your pcp about
getting into seeing a neurologist that specializes in MS like Straydog said....
well wishes to you and I hope your feeling better soon...
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