Update

Many new members don't know my story so i will give a very brief insite. I have been suffering with intractable headaches for more than twelve years now. I have tried every class of medications, every narcotic and more, done so many different forms of treatment and seen several several specialists and nothing to this day has helped me. My only vice is keeping ice packs on my head.

This past week I went to Quebec City to see a doctor regarding occipital nerve stimulator surgery and the dr. says i am a candidate. So we have started the process for evaluation. I am beyond excited and still can't believe i have a chance at having lower pain levels. My headaches are continuous, never gone, and a pain level of 7-8 with spikes of 9 and 10. So any reduction would be welcomed.

Just had to share some joy, something i haven't had in a very long time.

Suzane

Oh, Suzane, I am so happy for you. That is such exciting news.

Hugs,

Flower

That is awesome news, i can't imagine how bad it must feel to have a never-ending headache. Prayers and well wishes to you that this helps.

Suzane...I'm so happy to hear from you and this update!!

I will be praying hard that this can offer you some relief...You really are a trooper and have gone through so much.

Sending you some hugs (( ))

Such awesome news. I truely know how you feel. The bilateral TMJ replacements were for function, not pain. Dr. made it clear that the pain could be worse, and he was correct. I've had drs ask me what it feels like and I tell them it's like a sinus infection, migraine, ear infection, and a concussion all at once. I've had drs mention the stimulator to me. Please let me know how it goes.

Suzane we had a young woman in college that had one of these implants, I think it might have been the same or similar, look up Skeye, back in 2010 She was having really bad pain I think behind her eye, and nothing worked and she ended up getting this implant as I remember it didn't take a hundred per cent of the pain away but reduced it quite allot. You might remember her, she was accepted and went on to Vet school. Anyway I think it is great news, and I hope this works out well for you!

White Beard

Suzane,

I think you already know how I feel... but just wanted to say it here too... praying this is the miracle that we've all wanted for so long for you. Any relief for you would be such a HUGE blessing. I'm so glad that you got positive news.

Hugs, my friend. --Tina

Suzane I know I've already told you, but just had to say it again. This is terrific news. I hope and pray and everything else that this gives you the relief that you deserve. You've gone through so much. You deserve it.

love and hugs
Loretta

that is quite a story, i am one who never even experiences regular headaches. i can't hardly imagine the suffering that you have endured. i hope and pray this surgery will give you the relief you so richly deserve.

my best to you

david in s.c.

thanks suzane,

i spend most of my time at HW in the Prostate Cancer community of course, and I am nearing the 15,00th post mark, hard to believe, lol. But we get newly diagnosed men every single week, and I can't find it in me to turn my back on all the new men, or their wives, that come to us shocked and awed with a new cancer diagnosis. Most come very afraid, until they have a chance to learn more about that type of cancer.

i need to spend more time here to be honest. my cancer is no longer remotely curable. i have a great oncologist, who's main goal right now, is to keep me out of as much pain as possible. my CP is officialy diagnosed as cancer pain, which can include pain caused by cancer treatments, as is the case with me.

i have great communications with the doctor and his nurse, and when i am not seeing him for regular visits, we have a constant trail of e-mails, regular letters, and phone calls. he's always ready to adjust my pain meds on an instant, i know i have one of those rare, caring, and very communcative type of doctors.. wouldn't consider switching away from him.

there's little that can be done for the rate of progresion for the cancer at this point, but so glad he understands fully, what it is for a patient to live with serious CP. He is a pain specialist as well.

i just keep on keeping on, attempting to enjoy what time i have left with my wife and family.

david