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Chronic Pain
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Posted 7/9/2012 12:36 PM (GMT 0)
I went to the pain management clinic and saw the PA. I had a better experience than I did with the nurse practitioner. So I am going to stick with the PA. She was very good to me and explained to me that I was doing all the right things, I just have the conditions that are causing chronic pain. She gave me a sample of a cream that consists of anti-imflammatory, pain medication and 2 muscle relaxants, which is  working. So I asked the clinic to  order some more than just the sample.  They did this. I am frustrated and angry that these conditons are robbing me of my sleep and life. I am going to bed in pain, wake up in the middle of the night in pain and start my day in pain. I can't do certain things because they can cause a fibro flare up. It is said that excercise is good for my conditions but the doctor noted I was "activity intolerant" due to the fact the more I do the more likely I am to have a flare up and if I do some activities it only causes pain. My life revolves around pain. I try to do things to distract myself  around pain but it always comes back to the pain. To be careful around things that cause pain. I have to watch when I take my pain pills to make sure it is every 6 hours which is does always hold me over. I am wondering if this is a the same for everyone with chonic pain?

___________________________________________

Oseoarthritis, Fibromyaglia, Degenerative Disc Disease with MRI confirmed L1-L4 bulging disc and L5-S1very large herrniated disc with displaced nerve root.  

Posted 7/9/2012 1:37 PM (GMT 0)

       Good morning Milly!

          Although I do not suffer from Fibro...what you describe fit's many of us to a "T" ...It is a long tiresome journey, and even harder if one is not medicated correctly. Keep plugging away at it, and avoid those activities that start a flare. If you feel that you are still under medicated, then let your Dr know this. Even then it may take a long time to get it right, or at least to a point that you have some sort of quility of life.

 At the moment, I'm under medicated, but my Dr is conservative, and creeping up on the dosage slowly, and it is of course, it's 30 days in-between appointments, and certianlly no fun. Are you on any extended release medications? If not, then you might take a look at one of those.

   Hang in there...I know it's not easy...and I'm sorry you are suffering.

       SE wink

Posted 7/9/2012 5:58 PM (GMT 0)
I also hate it when they say to exercise, I have most of what you have except I only have a mild disc buldge, howver, I also have asthma and RA and if I'm too active my asthma flairs, I have found limited physical therapy can help, especially when ultra sound is used after my sessions, maybe ask about mild physical therapy with ultra sound, and just make certain the therapist does'nt push you to hard on stuff you cannot do, They also give you homework and only do the homework that won't bring on a flair. Also a good moist heating pad can help with fibro flairs.
Many well wishes and keep us posted as we do care.
Posted 7/9/2012 8:32 PM (GMT 0)
Hi milley I feel your pain, it seems like the more you do the worse you get but you can 't just do nothing you gotta try but then it's why did I ever try that.
Most people have no idea what to do because we are all so different. I was trying to write something insightful and a fog came in and wiped my thoughts cleanish. Sorry you are having so many pain issues.
Posted 7/10/2012 1:22 PM (GMT 0)
I think I am feeling the steps to the grieving process again and frustrated over the pain I have. I found out I have arthritis in the hips and the pain jsut doesn't stop at all. It is frustrating. It is nice to know that I am not alone. That is what I lke about these boards- support when we need them the most.
Posted 7/10/2012 1:39 PM (GMT 0)
Milly that's the wonderful part of having friends all over the world There is usually someone reading or responding to a post in short order. I find on my bad days I spend more time reading others posts, knowing there are others that have similar ailments we can share what gives us relief, what kind of tests and treatments. I am finding that all this is so different depending where you live as well, and the costs, wow. I hope your arthritis can be controlled.
Posted 7/10/2012 1:45 PM (GMT 0)

         Good morning Milly!

      That process takes a long time, and as long as we seek better results with different pain med's...the old man of the past can be a little hard to keep buried. Even after 8 to 10 years of this, I find that I have to keep shoveling a little dirt on the grave of how I used to be.

    You are headed in the right direction, but do not get disppointed if you happen to looking back every once in a while. I always keep a little flame of hope burning just in case they come up with something new that will allow us to visit a better day of pain free health.

      Hope that made some sense to you. rolleyes

    Take care,

       SE wink

Posted 7/10/2012 2:11 PM (GMT 0)
Though not as severe, I am the same. My daily activity level depends on how my neck feels when I get up and as i go through my day. The slightest wrong move can cause it to flare up and leave me with a a stiff neck (if I'm lucky) or a splitting headache that the only cure for is to go to bed. And sometimes going to bed doesn't help. I find myself buying new pillows every couple months in search of the perfect pillow. Everything is a struggle to keep my neck feeling good.

In the short time I have been here, I have found the support offered to be very helpful. I hope you are able to find a treatment that gives you better relief from your pain and maximizes your quality of life. Best wishes.
Posted 7/22/2012 4:59 AM (GMT 0)
I feel your pain - literally. I used to be much more positive about things, but I have been robbed of so many things lately because of this constant pain that all I can do is manage day to day.

Just tonight, I was on the couch and started to cry - I just couldn't do anything to get away from the pain.

Exercise? HA - I know that moving is good for everyone, but sometimes I can barely make it to the kitchen. A walk to the mailbox can wipe me out.

I'm sorry for everyone that has to go through this.
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