Nothing new to really complain about
-just frustrated.
I just hurt. I know you all get it.... I just hate that there seems to be no end in sight. Try this med, try this treatment...and yet it still all stays the same.
Had my Cytoxan infusion Friday. Dr increased the dose after my last round of bloodwork. Hoping it will make a difference. Right now I'm just losing hair-oh joy.
I just wish I didn't hurt all day, every day. All the joints hurt-no surprise there. The head is AWFUL. Feels like a migraine, sinus infection, ear infection, and a tooth ache all in one. AAARRRGGGHHHH!!! Plus crazy swelling. Hurts to blink. Since the surgery I've been doing lymphodema therapy. The incisions disrupt the drainage of fluid. The lymphodema therapy helps. Since I've decreased the pred a bit, the swelling has increased a TON. The pred is for the heart/lung issues, but I've enjoyed the added benefit of decreased inflammation in the face. So many nerves were cut in the surgery. I've said before that the dr made sure I understood that I would only gain function. Pain and I are going to be lifelong friends. I know this. I accept this. It's just that somedays it's harder than others.
How do you guys get through the days when you know there is no relief in sight?