HealingWell
Search Close Search
☰

new member intro

Support Forums
>
Chronic Pain
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 3/6/2013 2:31 AM (GMT 0)
Hi, I am Liz and have had chronic pelvic pain for 7 years. I am presently on disability thru my insurance company and waiting to hear from SS if my disability will be approved after my hearing last week. I haven't been able to work for the last three years. I did work for a few years when I first had my pain and that was not bearable. I have had success with two botox injections into pelvic floor muscles with a doc in Phoenix. I also am taking two pain medications - nucynta and oxycodone. Over the last two years I have really decreased my pain meds, but feel I am an a plateau and can't seem to decrease any more - due to pain. I am glad to of found this forum and am interested in learning about how others get through their day in pain and any other ideas you may have. Thanks, Liz
Posted 3/6/2013 3:25 AM (GMT 0)
Welcome to HW :)

Sorry you had to come looking for a place like this but glad you found us.

We all have our own ways of coping and getting through the day.

Its good that the botox helps. I dont have pelvic pain, but I do have pain of my own and it sucks.

I'm sure people will be by who have more experience in dealing with pelvic pain.
Posted 3/6/2013 12:45 PM (GMT 0)
hi liz, my name is janet. i have different issues than you do but i certainly know how extreme pain is. its brutal!!!!

i have a very good support system at home and yet its still nice to talk to people who know what chronic pain feels like. there is always someone on here to talk to.

well, i just wanted to welcome you to HW and let you know that everyone here understands how you feel.
janet
Posted 3/6/2013 2:22 PM (GMT 0)
Well, first of all, welcome to the boards - this is a great group of people who can all relate to having chronic pain. Welcome!

I don't have pelvic pain, but I do understand daily pain that interupts your life. In dealing with cp, there are different parts - the physical pain and the emotional side-effects.

For emotional side-effects, depression often goes hand in hand with cp, because it sucks to be dealing with not only the pain but the impact it has on life in general. This board is a great place to find support and to also offer it to others. I will also try to focus on the positives in life - my kids, my family, my crazy cat, etc. just something to make me smile can help lighten the load.

Again, welcome to the group.
Posted 3/6/2013 11:47 PM (GMT 0)
Welcome Liz to the forum. You will find several members who also suffer pelvic pain and many other who just suffer various other pain related disorders.

We all understand what it's like to live with chronic pain. Some much longer than others.

It helps to have a place to come to filled with folks who just know.

We are glad to have you join us and look forward to hearing from you.

Vickie
Posted 3/7/2013 1:38 AM (GMT 0)
Hello and welcome, Liz. You found the right place to join, with your pain troubles. Hope we can be a big help to you. Hope your SSD rules in your favor. Are you working your case with an SSD attorney? That is what it took for my case to finally get approved, and when it was, they had to back pay me for nearly 4 years. The lawyer got it resolved in just a few short months, after several denials on my own attempts.

david in sc
Posted 3/8/2013 1:39 PM (GMT 0)
Hi Liz,

I also have chronic pelvic pain for almost 3 years now.

I am on Gabapentin, Elavil, and Percocet.

I am currently unemployed, not on disability, thankfully I have a partner with a decent job.

Liz, have you heard of pudendal neuralgia? I think this is what I have, I fit all the symptoms...I have heard of people getting nerve blocks for it, with mixed results.
✚ New Topic ✚ Reply