DENTAL NERVE DAMAGE

Thanks for updating....I was reading back through the thread to refresh myself...

I guess I'm just wondering if she is going to get any relief with the Fentanyl as the last update you said that they have definitely found the pain to be neuropathic in nature...

Have they upped the Lyrica amount yet? She was only on 50mg last time...

That med can go up to 300mg a day..Again...these meds..along with other ones are meant to be taken as directed...throughout the day...like they would do 100mg, 3 times a day...I know we spoke before about how your wife takes everything at bedtime which just seems pretty dangerous...

Have they taken her off the other opiates (besides the patch) as you said they were not doing anything for her....So if that hasn't been done...then it could be she is just loaded up with too much medication and is why she is having such adverse reactions..

You can certainly try the 25mcgh plus the 12mcgh patch....but from the sounds of it, if the 25 didn't touch her pain...I can't see how it will change much...

It's so difficult with chronic pain and trying to find the way to lower it enough to live our lives....

Hi Mackster,
I'm in a similar situation as your wife. Please let me know if anything has helped, it's been a long time since I've been pain free in my teeth. Dentists and other professionals in the field offer no advise. I've tried all of the medications, many just make it impossible to have any quality of life, they make you tired, and lethargic.

I hope you see this, I'm sure its nerve damage, but I can't find an answer. I've been to the ent, and neurologist, endontist, and oral surgeon. pulled teeth but the pain is still there.

Any information would be great.

Thanks

rey,
I read your post also..have you had any luck finding relief from your tooth pain? I know what you mean when you say it affects your quality of life? All I can think about is my teeth pain...My neurologist and I just wrote down I have atypical odontalgia...I am on amitriptyline..It helps somewhat...but the pain comes back..did you have dental work done? What caused your teeth pain?

Thanks for your input guys.   I've not posted for a while mainly because there has been no good news on my poor wife's condition.   In fact if anything it has gotten worse.   She's just wasting away in front of me and it's breaking the hearts of the whole family.         Sephie, the tooth was extracted a year ago.

She is currently attending a Pain Management Clinic every month or so.  The doctor there has been prescribing various combos of pain killers and/or nerve pills to no avail.    She started an antidepressant about 10 days ago called venlafaxine  initially 37.5mg a day for a week, to increase to 75mg the second week, then 150mg the third week.   Anyways she didn't get past the first day at 75mg. before stopping it.  It was causing her a horrendous anount of distress caused mainly from continual trips to the bathroom and not being able to pee, when the urge is so much it was excacerbating her dental pain to unbearable levels.

Also making her very restless, pacing about the house and not able to lie down and relax.

She phoned the pain clinic and they advised her to stay on it!   Of course she has ignored this and won't take any more.  She also stopped Gabapentin a few weeks ago because of bad side effects (choking feeling)

On a positive note, if it's possible to draw one, she has finally got an appointment with a pain clinic at the Mount Sinai Hospital in Toronto on May 22 at the WASSER PAIN MANAGEMENT CENTRE.    They specialise in dental/facial nerve pain.   We can only hope that they can pin down this illusive neuropathic pain.

Yesterday I filed an official complaint to the College of Dental Surgeons and have been notified that they will investigate.

My next stop may be a lawyer and possible litigation, though I have been told that is extremely difficult to prove professional negligence.   I know some work on contingency but they all still require a large retainer up front, usually around $7,500.    We would prefer not to go this route, and just want her to get better but there should be sme redemption for all this suffering. 

All I know is that in November 2011 my wife went to her dentist for a routine procedure.         And has yet to return home to her family.

Thanks lillyh13.

Mackster, If there was no drill used the day of crown replacement then the only other way this happened was from the anesthetic injection. Notice you are in Canada where septocaine is more frequently used.

Dear Mackster
I am just unfortunate enough to be nerve damaged by lower wisdom tooth extraction and came across your poor wifes condition here. Has there been any change since it happened?

More times than not.. this does get better with time... but It can take along time.

There used to be a forum of other nerve damaged people and there were many fling complaints in Canada and the USA about side effects of 4% septocaine/articaine causing paresthesia and dysesthesia.

I know nothing about Canadian law but in the USA this would not even stand a chance in the court and I wouldn't waste the money!

Please Screaming Eagle, explain the reason for the edit?

I'm just a PM away...

Teddtlove,  I'd love to answer your post but until the mods can explain to me why they see fit to edit my posts I think I'll keep schtum.

Yes, they put capsaicin (pepper juice, the main ingredient in Tobasco) on Q-Tips to block the nerves. I believe it reaches the sphenopalatine ganglion, although I may be wrong. It sounds a lot worse than it is.

I did read the majority of it Mackster and the thing that stands out the most was her Nov. 2011 date of arrival into this mess. Mine began in Nov. 2001. I have had some recovery but it took along time.

"Mackster,

All of the moderators here at HW have their e-mails available, just FYI.... In fact, we encourage members to e-mail us w/ questions/concerns - thus, leaving the forum free of these types of issues.

Take care --Tina"

Tina, I understand that being a moderator can be a thankless job and I'm sure you're all doing a great job.  I fully support and appreciate you all.

All I am asking is for you to explain just what infraction I committed in my edited post to nervedamaged.   Not only for me, but for the benefit of all forumers.   Asking me to PM the admin is the internet equivalent of 'sending me to the principals office', don't you think?

Even the intended recipient, nervedamaged never saw the apparently offensive part that was edited so I guess we'll never know what may (or may not) have offended him/her.

"These types of issues" is vague in the extreme.   If the infraction referred to my remarks on litigation then why not come out with a blanket statement to all that it a subject that can't be discussed?   Myself and I'm sure most others will abide by that ruling.  If we don't know what we can or cannot say then it's not our fault, and editing posts only evokes suspicion that you are trying to keep us in the dark.

I am currently 'on leave' from the UC forum for a similar reason that has at least in part been explained (basically at the whim of the admin.).  The subject ( a mysterious herb) keeps getting brought up and discussed for several posts but is summarily locked as soon as it's discovered.

Censorship to a degree, can sometimes be a good thing if it prevents young people from being harmfully influenced by 'adult' matters.   But when it denies people to share valid experiences that could help others then censorship becomes well...communistic, and I have a problem with that.

I know it won't matter to some people, (and for certain the admin) but I'll stay away from this thread, which I originated for a valid reason until further notice.

I wish to thank the many kind folks here who have empathized with my wife's unfortunate affliction and gave us a goldmine of information on which to ponder.   Personally, me and her family just want the loving wife, mother, grandma, sister and friend, back to her old pain-free self.