another procedure....and i DONT feel any better, im sad and scared and hopeless

Bunny, you are never an idiot, please don't say or even feel that way.

I feel especialy bad for you because of your young age. My original cancer battles didn't begin till I was in my mid-40's, prior to that, had pretty good healthy. My 50's were entirely shot with cancer stuff, and now I am almost 61, and a total mess, lol.

I wish some of your treatments and procedures would work, or start to work, then you would at least have the hope of some improvement. That would be something in itself.

Please don't give up hope, a lot of people really care about you, both in your real life, and here of course with your family at HW CP.

Keep on venting, as often as you feel, its a healthy thing to do, to get those feelings off your chest, and to help clear your mind.

My very best to you, hoping for much better news from you at some point,

david

How does everyone on here know what kind of medicine is in their injections, I have had quite a few injections and have no idea what was in the syringe. The doctors here (Indiana) don't like to tell you much, I learned today about different classes of drugs from the pharmacist and I have tried oxycodone, gabapentin, lyrica and have been given butrans patch today.

I like this forum being informed makes me feel a little less nervous about my pain condition.

BunnyGirl86 one of the things that helps my hip when it burns is to ICE under your left hip and put your legs on top of 2 huge pillows to relieve stress on your spine. Sometimes I put ICE in gallon bags and put them on my shins when I have my legs up on pillows, the weight from the ice makes my hips feel good while the burning in my shins is numbed by the ice. When the pain gets bad I also get really cold so before I apply the ice I put extra blankets on.

Lyrica was the best pain reliever for me but it made my leg, foot and tongue numb, gabapentin made me nuts I couldn't think straight, cried all the time and felt like I wanted to kill myself and it didn't help with any of my pain.

Right now I am on 5mg of oxycodone, baclofen just started butrans patch tonight I go to another specialist in Indianapolis on the 24th hopefully he can make all this pain go away preferably without meds.
Don't give up BunnyGirl86 I am scared too I owe a business and since my surgery it is 30% down from where it was last year I have to get well and will, so will you:):):)

1st welcome to the forum Tibula. If you would please start a introduction thread of your own by going to "post new topic " at the top of the page and tell us about yourself. We love to welcome new members and your post will get overlooked by some in the middle of BGs thread.

Bunny I'm sorry to see nothing seems to be working for you yet. As for injections its always a hit or miss situation and the time for getting any relief and how much varies. They use a combination of usually 2 meds,some form of steroids and some numbing and I do better with solu-medrol and the numbing Med isn't an issue. Talk to the Dr doing them and see if he can change the combo next time as your not getting much relief from the current one.
If you aren't on any of the meds for neuropathy I would suggest doing that. Try them all if you have too and getting past the initial side effects and titrating to a dose that works is a hassle but worthwhile.

Hydrotherapy has been my saviour and if there is no where you can go get a 1.5 ft kiddie pool and fill it with warm water. Its not perfect but you can lay down stretch out do some simple leg and hip exercises in it.

I've found heat/ice alternating works best.

You've heard all of us "old" CPers time and again preaching find the right team of Drs and therapists,get the medicine dosing down right and once all that happens and your pain levels drop to manageable you things will look different for you.

If coming here griping and complaing and hurting makes for an idiot? Then Peter will have to change this to the chronic idiot forum because we all do it,have done it and will likely do it again.

Keep us informed when you can.

Bunny, please don't give up. It's normal to feel that way when you are frightened and unsure of where to turn. You have to keep telling your doctors what you've said here. Make them listen!

Now I am someone who knows a bit about SI pain, from my own experience. Has your do tor done a diagnostic SI injection to be certain that's where the pain is coming from? Have you worked with a physiotherapist? There are lots of exercises that can help the SI pain, but must be done regularly. If the pain is definitely from the SI joint, then the last resort, and I mean the last resort, is surgery. I have had both my SI joints fused with success. The left one gives me no problems at all now, the right I am still working with the physiotherapist. The piriformis muscle can cause some intense back and leg pain as the sciatic pain runs past, or sometimes through the piriformis muscle.

Feel free to e mail me if I can help at all with you SI problems. I am sure you will be able to get some relief from this. Oh just one more thought, have you tried a chiropractor. Some people swear by them, some hate them. But when you are in pain anything is worth trying, even if it's only once.

Take care

Jane

Post Edited (Fusiongirl) : 6/15/2013 4:40:57 PM (GMT-6)

Hey Bunnygirl - I too have the terrible burning bursa pain.  It happens everytime I walk my dog or do too much.

I have had the injections, medication etc.  One thing that will help is either buying a foam roller and rolling your hip on it or rolling a rolling pin up and down the thigh as well as the whole leg.  I know it sound crazy buy it was recommended to me by a physical therapist and it does help break up the tightness and burning.  It is painful to

do but you are already in pain.  The injections don't last long and this is a solution which actually helps.

Good Luck

Bunnygirl86:

Welcome to the forum, I'm sorry that you are having so much pain and need to be here. First off you are not an idiot because you are in pain. Like Vicke said, if that's a reason to be an idiot then we ALL are one.

Sometimes injections don't work the first time. You may need another one, or maybe a different form of treatment. Don't give up hope yet, you will find the right Dr and they WILL, get your pain decreased.

Many of the folks here have given you great ideas, you should try some of their suggestions.

I hope that you begin to feel better real soon. Please keep us updated on how you are doing. Know this is the place to come and vent anytime.

Hugs,
Barbara