Neuropathy

I have dealt with what I have been told is mild neuropathy for years. I have seen a neurologist and had multiple tests run but nothing looks wrong. It mainly affects my legs but can go to my hands and back as well, just feels like crawling pins and needles. It will start and last a few days/weeks and then go away for months. I was checked for viruses, etc and the dr can find no reason for it. Anyone with unexplained neuropathy?

It's uncomfortable and creepy...I will get a numb/tingly feeling for awhile, then it will go away.

I did have the tests done and everything came out fine, just indicating that there was no nerve damage. My doctor thinks the problem is that my nerves are overactive, causing the tingling/crawling feeling. The test isn't too bad, but they do stick a small needle in your leg multiple times :( Hopefully they can find some answers for you!!

I just had the nerve conduction studies done a week or so ago, in both legs and feet, and in my hands and arms, I was told I had pretty severe neuropathy in my legs and feet. I have problems with weakness in my legs, feet and arms and hand, and lots of numbness and tingling in my feet. Anyway they told me that it wasn't caused by my back. As I have numerous problems all along my spine. But I was told that the problems are in my brain, also had an MRI of my brain, two weeks ago, and am suppose to see the neurologist the first week in March. Previous brain MRI's have shown spots, they claim are related to demyelinating disease. For me they are checking for possible MS.

LCV2014 Do you have any other symptoms? Balance problems or muscle spasms? What kind of test have you had?

White Beard

I have neuropathy, but the nerves in arms and legs are just fine. The pinch point is my neck.

My particular nerve damage was done when I fell on my head and crushed a bunch of vertebrae at 3 levels. Mine is particularly bad, central cord syndrome, and is not curable or even treatable. It's pins and needles and burning and freezing from shoulders to toes.

Hopefully no one else has this, but the point is if nerves test fine, the problem may be in the spine.

Hello all, I have not posted for a while, but I also have neuropathy. I can tell you one thing, the test given, it was down my leg, was mindblowing painfull. I was already taken pain meds which had no effect of the pain of the neuropathy I was given neurotin for my fibro., and that helped some I also got a shot in my back that radiated down my leg and have felt better since, and that was years ago.

Kathy

I have had the testing done for both large and small nerve and no damage was found, I've also had vitamin levels checked for deficiency and nothing was found there either. He is thinking the tingling could be a result of Epstein-Barr virus? It could just be causing the nerves to be overactive. I have no balance issues or loss of muscle strength at all.

I was diagnosed with neuropathy, cause unknown. I had "attacks" that would leave me in elevated pain for weeks (usually about 2 months) with muscle weakness. Then go back down to lower level constant pain. I had about 4-6 attacks a year, and did notice the lower level constant pain fluctuated with my hormones and when I caught colds or flus. This went on for 15 years, since I had young children, I did not want to be addicted to opiates. I was infected with HSV2 in 2004, and my neurological disorder went nuts! I was determined to find out "what" on a genetic level, my neurological disorder was. Three years, multiple specialists & states, the best our system has to offer, all the while deteriorating. I wrote down every aspect of my life looking for a correlation. Every doctor heard my symptoms, the progression, and relying on their expertise, shrugged their shoulders. Then a gastroenterologist put me on Nexium, I had a horrible pain attack, heart racing, nauseous, excruciating, and then I urinated purple! He said "what are all your symptoms?" I described the constant pain, the now monthly (or more) attacks, muscle weakness, bowel problems, sun intolerance, sensitivity to medications, and now..urine that looks like you poured red wine in it. He put it all in a med palm device (the worlds medical knowledge) out popped HCP, a type of porphyria. It explained everything! Not just for me, who was expressing "acute porphyria", but my relatives, who all had milder, similar symptoms, minus the neuropathy. So, finding the "why" is crucial, especially if you are taking any of the medications. For my disorder, most are on the NO list, as they make my disorder permanently worse! Best of luck in your search!