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Attitude of doctors and friends and family

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Chronic Pain
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Posted 3/7/2014 11:35 PM (GMT 0)
POST REMOVED FOR PRIVACY REASONS! Thanks for Listening!! nono nono nono

Post Edited (Mikka) : 3/10/2014 11:33:30 PM (GMT-6)

Posted 3/8/2014 8:00 AM (GMT 0)
Magic,

Just wanted to chime in since I'm from the area, sort of. Lahey seems to have a great reputation,...to everyone outside the Boston region. To we natives, most of us tend to avoid it. I realize I cannot generalize, or I'm not supposed to anyway, but, well shucks, I'm going to.

Finding a proper PMD is a trial and error, and you have to build rapport.

Can you ask people you trust who they've heard of, go by word of mouth as opposed to who put the best ads up on google?




M.
Posted 3/8/2014 7:36 PM (GMT 0)
Hi rabidweasel -

Thanks for the offer! I am having (fluoroscope guided) injections on Tuesday and then possibly again on the 31st when I see medication management of this new place (it's called Boston PainCare and it's in Waltham). I am sure I will have the whole Pain Med contract and have already had to do a urine test - I have no problem with that. I am also getting some sort of topical medication to massage into my neck 4 times a day. Hopefully it will help. This seems like they have a lot more suggestions of things to try as opposed to all the typical "fibromyalgia" drugs Lahey gives that do absolutely nothing. I've tried them all. I will let you know if I have any luck! :-)
Posted 3/8/2014 7:41 PM (GMT 0)
Hi Merrida -

Thanks for the suggestions. Unfortunately, I don't really know anyone else suffering from chronic pain (except here), so I wouldn't know who to ask. I'll give this new place (well, new to me) and let you know if they are worth a look.

As far as Lahey goes, my surgeons have been great. Seems to be a few areas like Internal Medicine and "Pain Management" that have been a complete waste of time. I am trying to find a new PCP too. So far no luck though. One step at a time I guess!

Take care!
Posted 3/9/2014 7:06 AM (GMT 0)
I must admit that although I have problems with people outside my immediate circle, I am amazingly fortunate with family, close friends and my treatment team.

My PM and GP are both men with very obvious and very genuine empathy...and really care about their patients. My GP gave me his private mobile number for emergencies. My PM especially has cried with me on several occasions and always tries to do something to make me smile...for example, because he sees a lot of paediatric patients he has a sweetie jar on his desk and always tries to give me a jelly sweet. I don't eat them, but said jokingly to him one day that if he got in some nice liquorice instead I'd be more than happy to have some. Next visit, sitting beside the sweetie jar, is a huge jar of liquorice twists :-)

My physio - who is the third member of my core team - makes home visits. She used to work 15 minutes away, then moved to a clinic well over an hours drive away. She lives in the next town, so comes to me to save us the long trip just comes to me. Her daughter also has RA - so she understands CP very well.

Laura








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Posted 3/9/2014 8:09 AM (GMT 0)
Laura
You are indeed very fortunate !!
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