post what activities you do while in chronic pain*

Hopefully we can all find new things to do by hearing from others :) post what activities you do while in chronic pain*

I suffer from head to toe chronic pain and can't do any of the old activities I did or enjoyed before the pain took over (sewing, beading, painting, drawing, card making, cooking for fun, cleaning, texting, chat, blogging, video gaming, pedi's and mani's, soaking my feet, etc) my neck seems to pull me under the wagon whenever i do activities where my fingers, hands, arms or neck are strained.

So most my activities are done laying on my back with my arms slightly propped with pillows with the i-pod on my tummy or the laptop on a case slanted toward me. I try to get out but I don't go on walks very often (1x every 2 to 3 weeks) due to the pain and pain episodes it causes when my pain goes over my thresh hold, it feels like a herx each time.

0. love and cuddle my 13 yr old dachshund

1. I personally don't enjoy watching movies, it makes me wayyy to antsy no matter what i watch. I found though that i enjoy watching episodes of comedy or funny talk shows on hulu, that brightens my day :)

2. I enjoy laying down and singing, recording it on my computer, then putting an effect over it to make a little song.

3. I take my lil camera and lay it down in random places and record it (record my feet moving, the dog sleeping, me laying down, etc), download it to the computer and make short music videos with songs i like to listen too.

4. p.t stretching/massaging myself

5. play board games on my i-pod

6. scroll through sites i don't have to click like tumblr, pinterest, etsy, fb, etc.

Thats all i can think of. I need more things to do, would love to hear from all of you :)

Good thread. I do most things I always did but changed the way I do them to accommodate my pain and mobility restrictions. If your not participating in life then your pains not controlled to the point of allowing you quality and that's the entire purpose behind pain management. You also have to learn to lower your expectations of the meds, pick up and add every little thing you can that will knock it down a few more notches and push on.

Camping was my favorite past time and still is although no more tent and sleeping bag days its RV and a bed for me. Reading and listening to music when time allows.

Hi,

I'm not as active as I was, but it's not because of pain. (6 vertebrae broken, central core syndrome) Years ago after flipping a jeep, I got up off the ground to tend to my children even though I thought I had broken something in my back. (I never was examined, so don't know, spent a couple of months sleeping on the floor, couldn't go upstairs.)

My hindrances are weakness (can't lift a gallon of milk), spasticity, tonic spasms, sleepiness from meds .... I don't sweat, so I have to watch getting hot. I don't tolerate cold - get horrible spasms.

If I want to eat I have to get myself to the grocery store and cook. I shop in small store so I don't have to walk far. The garden may not get weeded, but the animals get fed. I have housekeepers once a month, but I do the laundry and make the beds, clear the counters. I don't run the water treatment plant (backwashing filters and lifting chemicals), but I do oversee that and the wastewater treatment lagoons. I can still drive the tractor a short while, but I hire out mowing the big fields and most of the road snowplowing. I can't pick up the grandkids, but I can still teach them how to work the computer.

My pain level rarely drops below 8 from neck down because of spinal cord compression. There is no cure, no treatment that has worked. I take pain meds for fibro, other things, get injections and nerve ablations. But basically I just have to live with the pain. But don't think I have given up! I'd like to, but when others depend on you it's not an option.

Abilene said...
I'm glad you are still searching and hope you find that cure.

My recliner that also swivels plus an ice pack are some of my favorite things. I do enjoy TV, old movies, game shows.

I haven't watched any game show's :) i'll check that out*
Thanks so much for sharing with us all and i sincerely hope you find your cure too <3

Trudy2 said...
hello,

I generally am not very active either. I do have 2 dogs and make sure they get fed and taken care of daily. I do have a husband to help, but he has some pain and depression issues of his own at the moment. I have severe chronic pain as well as problems with anxiety and depression as well as several other chronic problems.

These were mostly all caused by my chemo treatments for leukemia and my bone marrow transplant. It has just damaged my body beyond repair.

Anyway, other than being able to take each dog separately on very short walks on my very good days. I have to stay within view of my house when doing that as the heat makes me so ill and I also have problems breathing in the cold. I do enjoy watching old and newer series crime shows and comedies on both regular cable as well as netflix. I also enjoy reading greatly. I sometimes have problems holding the books and I will prop them up, and they are all large print.

I did used to enjoy counted cross stitch very much, but now I cannot concentrate on It or manage to hold it and do it because of the pain.

I do PT at home when I can. I do go shopping on very short trips. I have a driver and they have to help me with all lifting, loading and unloading. There are times I have to walk out of the place or just find a way to sit down. Being without a/c is impossible for me. When I am having A bad day and we need supplies I will send my 20 year old son alone with a detailed list. He lives with my husband and I as well as my 21 yr old son. The youngest is more responsible.

I hope some of this helps. I do read many forums, but I don't post all that often.

Trudy

Hi Trudy,

Thank you for sharing with the group :) its very appreciated. I do hope that you've been feeling a bit better than usual <3

So :) propping books for a read, Netflix, time with your doggies, p.t, and getting a driver is a great idea so that you can go out for errands. All great ideas :) thank you for posting*

I do enjoy reading, journaling and playing Candy Crush. I haven't been doing much of any of those things lately. And I need to. I enjoy listening to my daughter. She is such a ray a sunshine, so full of life and happiness.

I cook, read, and play games on the computer. I LOVE watching old movies and am a rabid Garbo fan. I especially love silent movies and can watch them late without disturbing the hubby. One goods days we take our kayaks out to the lake or my new Mini Cooper(love that car) for a drive. On bad days a purring maine coon kitten in the lap and some Andre Bocelli is the best.