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I have chronic pain & multiple chronic illnesses. i need your support!

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Chronic Pain
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Posted 8/4/2014 12:31 AM (GMT 0)
shakehead This is my story. I have cervical dystonia,spinal stenosis,complete hysterectomy, thyroid & pituitary insufficiency, pernicious anemia, degenerative disc disease, migraines, had hysterectomy, spleenectomy, hypoglycemia, TMJ surgery, osteoarthritis, cysts removed from breasts & ovaries, pancreatitis, anxiety d/o, panic attack d/o, major depression, PTSD, had over 30 surgeries, brain hemorrhage, fibromyalgia, afib, chronic fatigue. In last 5 months had 6 surgeries. I lost to 84 lbs & had feeding tube put in, intestinal blockage rupture, went into respiratory failure, del pneumonia, became septic, on ventilator in ICU, blood clot in jugular, broken both wrists a week apart, a lot of falls, broken hip, esophageal rupture, paralyzed L vocal cord & tongue, surgery for that, dislocated jaw, still have 4th feeding tube in. Home now from physical rehab. So afraid I'll get sick again or fall. Took all my money for these. Will have to file bankruptcy. Daily basis awful terrible pain & nausea, fatigue. Please talk to me.
Posted 8/4/2014 12:34 AM (GMT 0)
ADMIN: Please notify me by email of responses. I forgot t check that on my post above. Thank you!
Posted 8/4/2014 12:42 AM (GMT 0)
Wow you really have been through a lot. I really hope you can find some sort of break from everything. Good luck.
Posted 8/4/2014 2:17 AM (GMT 0)
Hi BluAngel & welcome to the chronic pain forum. Wow, after reading your post I have to say that you simply have way too much on your plate that is for sure.

Hopefully your recovery will go well without any further incidence. From reading about your different surgeries & medical issues, you are a fighter & survivor no doubt. We will pray that you do well with your recovery. From what you listed in your post you will be visiting several different forums here at Healing Well. Many of us have more than one health issue so we visit several forums here at Healing Well.

I am not sure what you are wanting the administrator here at HW to notify you about, can you be a little more specific. He does not notify members when they have a response to their post, you need to keep checking back here at the forum to see if you have responses. You can go in to your profile & check there to receive emails if there is a new post. It is always slow here at the forums on weekends.

Anyway, I wanted to pop on & say hello & welcome aboard. Also, the administrator has a few simple rules listed up at the top towards the right side. He asks that all members read the rules & honor them. By having rules it helps keep Healing Well a safe environment for all.

Take care...
Posted 8/4/2014 2:20 AM (GMT 0)
idea thank you! I hope so too. And you as well!
Posted 8/4/2014 4:32 AM (GMT 0)
Blue,
Gosh, you know a lot of folks would have succumbed to just part of what you have endured. You don't have a lot on your plate you have a buffet! Normally I would say that my heart goes out to you (and it does)...but, I want to learn from you. What a strong person you must be. I don't have near the level of resilience you possess. I find myself knocked down by a few aches and pains (in comparison). Your ability to stand back up (maybe not literally) and keep going is amazing. Strange to say but you give me hope.
Thank you.

Oh, if you want an email alert when you get a reply you hit the button under the box you type in. I think that's what you were wanting?
Posted 8/4/2014 5:04 AM (GMT 0)
Like the others said, you've been through so much and you've fought so hard that you are a true survivor and you have my many many prayers for a good recovery.
I wish I could offer up some advise for you, maybe try adding iin small amounts of vitamin c to boost your immune system. Do this slowly, not to much and maybe ask your doctors what vitamins might help...
I sure hope you get a great recovery...

Many many prayers for you....( hope you don't mind getting prayers)
Posted 8/4/2014 5:11 AM (GMT 0)
At the top of the thread where it says

[ << Previous Thread | Subscribe to this thread | Show Newest Post First ]

click on Subscribe to this thread and you should receive email alerts for replies.
Posted 8/4/2014 11:50 AM (GMT 0)
i dont have some solution or advise to offer but i want to say you have been through a lot and you are a fighter. hope you get well soon
Posted 8/4/2014 5:37 PM (GMT 0)
smilewinkgrin thank you everyone for your responses! I can only tell you that you are always stronger than you think you are when you have no choice. I have two sons that I just cannot leave. I can't begin to tell you how many times I just wanted to give up and sign a DNR or give up on care and terribly painful procedures but we don't just belong to ourselves but also to those who love us. It just doesn't seem to ever stop. There's always something else that comes up or happens. I live in so much pain and nausea every day. I can't give up. But I can't burden my sons or sister with how hard it is and vent when I need to. Thats why I'm here. I need you to help me get thru days when it's so hard. Today is one of those days. A lot of pain and heaves. I've felt so guilty and ashamed to put my family thru this. I pretend I'm fine for them when I can. Don't want to worry them more. I need ppl who are going thru the same issues to talk to and know I'm not alone. Bless you all!
Posted 8/5/2014 3:12 AM (GMT 0)
This is a great place for support and to vent.
I have a 10yr old son and I don't know what I would do without him. Last year I was in the hospital more than out. Unfortunately, my body doesn't want to listen. I've had a couple of conversations about palliative care with my drs. Not ready to do down that road yet. Again-it's because of my little guy.

I'm currently home on TPN. I've also had multiple tubes. I'm hoping to only need the TPN for a few weeks since I'm prone to fungal sepsis.

Have you found anything that helps pain wise?
Posted 8/5/2014 4:09 PM (GMT 0)
i have sooo many DXs as you've read my posts hat while I fought and suffered for years against using pain meds I finally had to give in. I use fentanyl pain patches, hydrocodone, muscle relaxers, anxiety and antidepressants. I also have found massage to be wonderful and physical therapy when my ins would pay for it and acupuncture (too expensive). Chiropractic made it worse. I use a vibrating body mat that works absolute WONDERS by scrambling the pain signals. TENS unit helped but I can't find it!!! Biofreeze and Blue Ice rubs help a little. Aromatherapy - scented candles. Inhaling Vicks Vapor Creme. No herbal remedies have helped. Heating pad sometimes (cold doesn't help me). Imitrex for migraines are an absolute. Phenergan for nausea (zofran and others weren't helpful). Traction was very helpful (expensive). Nexium for gastro discomfort). Peanut butter, cheese, sour gum or pickles or mustard help nausea. I just try anything I think can help at all. I've heard many ppl use Rx THC for Gastro but have not tried. Keeping tube site uninflamed and painful is a challenge but i just keep it clean and bandaged with frequent changes and Risamine cream on it. eating yogurt for that helps a little. Hope any of these help. What works for you?
Posted 8/8/2014 3:08 AM (GMT 0)
God bless you. Your story helps us keep us strong! Thru support groups i have found the strength i need to carry on- knowing that i'm not alone. I know what its like fight taking meds! I guess the stories of addictions and drug abuse made me feel like I was falling into that darkness. But- it is what it is. People abuse the drugs that are meant and created to help people like us. That is why Rx for THC gave me such a hard time to accept. Just the perfect timing with social issues in CA and Colorado, and having teen family members abusing marijuana. Later i found that they started by raiding gramma's meds.. The legality in my state of TX makes the THC expensive. Under the care of my team of doctors we found it beneficial for gastro problems from the neuropathy and abuse the pills have done to my insides. Personally, the physical therapy was a lot easier and basic quality of life better. I actually started to enjoy it rather than dread it. Now i excercise regularly on my own. It is different from what opiates and muscle relaxers did to my mental state of mind. And I needed a lot less of them. Of course prayer and meditation are very important for me.
Anyway, as I wait to pass drug tests for a job I was able to secure- you reminded me that I have non narcotic pain relief, muscle relaxers and message therapy to help me through. to make pain more tolerable. I am being selfish in trying to put up with the pain- because then i make my wife and kids have to put up with me!! haha!
Posted 8/8/2014 8:44 AM (GMT 0)
are there any specific questions, concerns, or things you would like to talk about? In reading your post, I felt grateful for the health I do have.
would it be really rude to ask how old you are?
I'm so very sorry you suffer the way the way you do.
I am on meds, but also found essential oils to help a lot. Especially with inflammation and anxiety

I wish for you peace,rest and some FUN of any kind this week. (having fun is what I miss most)
Posted 8/9/2014 8:26 PM (GMT 0)
in one of my posts, first or second maybe, I listed some things that have helped me with pain, nausea, etc. always open to new ones! Thank you all!
Posted 8/9/2014 8:33 PM (GMT 0)
Nausea bad today.... Really bad. And Ang, I just turned 54. I certainly hope what I share can help someone. It's a pro instead of a con. Straydog, I was having a seriously down day and didn't feel the content was group appropriate but needed to talk to someone.
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