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Monday check in (Labor Day)

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Chronic Pain
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Posted 9/1/2014 1:26 PM (GMT 0)
It's Monday ,Labor Day and the end of a long weekend for most. Hoping everyone has had a nice holiday.

This is check in where we all meet once a week to share your news, weekend and what's up for your week ahead. Appointments,procedures ,new Drs ,and what have you.

If you know anyone needing prayers and thoughts or maybe you could use some this is the place to ask.

Welcome to all joining check in for the first time.

I have an online friend who was found murdered Sat night in her home. If you could keep her family in your thoughts this week as they struggle to collect funds to cover funeral expenses and with the violence someone touched their lives with.

Hoping everyone has a great day and better week ahead.
Posted 9/1/2014 3:44 PM (GMT 0)
Hi Vickie,

I'm so sorry to hear about your loss. That is just terrible. I hope the responsible person/s are captured and stopped from hurting anyone else.

I did have a long Labor Day weekend as my chronic diarrhea got worse. I had to have the on-call doctor on Saturday call in a dosage increase on my Lomotil (Diphenoxylate/Atropine) from 2 tabs 3x daily to 2 tabs 4x daily. Today it is a little more under control after about a day and a half on the increased dosage.

My next appointment with my pain management doctor is tomorrow. At my last appointment 2 weeks ago, my fentanyl patch was increased from 25mcg/hr to 50mcg/hr. I only started the patch a month ago so I am still in the titration period. I believe the 50mcg/hr is a good strength for now and my only issue is it seems to start wearing off after about 48 hours. I guess the appointment tomorrow will either be adding a breakthrough pain med as I do not have one now, or changing to replacing the patch every 48 hours instead of 72 hours.
Posted 9/1/2014 4:32 PM (GMT 0)
Wishing everyone a nice day this holiday!

I see the pain doc for ablations tomorrow. I get to see my surgeon next week.

Neck, shoulder and arm hurting worse after PT Thursday. I asked him not to pull on my head, but he did it anyway, not paying complete attention because he was talking to others. We're all in a big room together and there are too many distractions. I'm thinking of stopping because of this, even if insurance reverses the denial.
Posted 9/1/2014 5:29 PM (GMT 0)
Vickie,
So sorry that the random violence of our country has touched your friend and yourself through her, my blessed wishes her way.
This is Mrs. Qs and my 24th anniversary! We don't go out because we have had spectacularly bad nights . . . Ever seen "Blind Date"?. . . . Q sad

Post Edited (quincy17) : 9/1/2014 1:22:07 PM (GMT-6)

Posted 9/1/2014 6:04 PM (GMT 0)
This is a day of celebration in our family too-our son's birthday.
HappyAnniversary to Mr & Mrs Q.
I'm sorry for your loss Vickie. How senseless.

I'm adjusting to my CPAP nasal mask for Sleep Apnea fairly well. It's much quieter in our house now.

I had 5 medical appointments last week and only 1 this week, so that's good.
Posted 9/1/2014 7:06 PM (GMT 0)
Feeling down, I would never have gotten this posterior surgery if I had known the pain on the other side was going to be so brutal.

I keep waking up, after a short sleep, in agony. With prior surgeries, I have had my pain controlled enough so that I could sleep. It was never controlled well while in the hospital, and it's not being controlled now. I suppose it would be much much worse if I wasn't taking these meds, but dang, it hurts.

Had a good cry this morning, and my pain was still the same, but I felt better emotionally. This just sucks...

If it weren't for my strong faith, I don't know how I could still be here. I am praying. And praying. And praying.

I am so very thankful that my surgeon calls this a success, and not a failure....there has to be a fork in the road I'm on currently, and the fork I want to pursue is the one where relief is hiding. If I could just find it.. (This is how I see this situation in my imagination. I'm actually searching for pain to go away). Thank you all, for your support

Post Edited (poplargrove) : 9/1/2014 1:13:03 PM (GMT-6)

Posted 9/1/2014 9:26 PM (GMT 0)
Big appointment tomorrow with RA Doc, I haven't been feeling good since he took me off the methotrexate...and need to ask about the new auto Inject methotrexate called "OTrexUp" and my right hand has been swollen lately....
I did finish a Cross-Stitched tea towel for my daughter...

All three of my brothers are visiting my parents and really want to get them in an assisted care place, as dad fell off his recliner and couldn't get back up without help, one of my brother's wants me up there, but what would I do, I wouldn't be much help to them and the air fare and hotel rooms would be to hard for me to pay for...I don't know what'll happen to dad if he goes into an assisted care place, but they do need help...I have medical problems myself, if I flew right now it would be so very hard on me...as I feel stuffy, nasal congestion...My dad is abusive with lots of bad language and I really don't want to be there because of that. Can't talk about it or bad memories will come flooding up, done with them all...Like the song lyrics "I don't care"...

I'll miss the phone calls with dad but not seeing him, we actually have a better phone relationship then person to person...
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