Burning mouth syndrome

Hi, I wasn't real sure what category to put this...
For the past couple months I've had very severe mouth pain to I typed in "burning mouth pain" in the google search and to my surprise, Burning Mouth Syndrome is a real thing. I fit the wiki description perfectly. (Post menopause, female, anxious)
The pain is comparable to a severe tooth ache. I was biting on a wet wash cloth and holding water in my mouth today to try to kill some of the pain. It's excruciating.
Does anyone here know anything about burning mouth syndrome?
I've read it can last months or years I don't think I can keep my sanity that long. From what I've read, the only meds that appear to be helpful are opiates and I don't want to take meds.
I'm going to the dentist to rule out any teeth issues, but it really sounds like what's described as Burning Mouth Syndrome.
Thank you all for any help. I'm not sure where to turn. Seems this mouth thing is kinda unknown. Any tips on lessening the pain would be much appreciated..thanks.

Hi Merrida,
I'd never heard of it either! I don't take any prescribed medication and nothing has really changed in my life. The wiki page did say it could be anxiety related, and it am a somewhat anxious person.
I tried holding warm salt water today in my mouth. I was at my wits end. It's terribly painful. It feels like you should see a red ulcerated raw mouth...but it just looks normal to me. I do need a dentists second opinion.lol
It's fine in the morning...but builds in intensity till the pain peaks at about 4pm and seems to lessen before bed. My mouth doesn't seem too dry.
It's perplexing....
Thank you for your reply..

You can try swishing with mylanta. You dont need to swallow unless your throats involved as well.

For the moment dont use anything to brush with except baking soda and no mouth wash.

There's a prescription mouth was that they use for this and one a compounding pharmacy can make so if it continues definitely ask the dentist or your primary Dr.

When I was going through treatment for cancer - chemo, I had a lot of problems with my mouth.

My oncologist RX'd a "Magic Mouthwash" that helped greatly. I don't know what was in it, but maybe if you googled you might find something. It sounds similar to what Vickie was talking about.

Trudy

Trudy its exactly what I was talking about. Some Drs will add something extra to the original formula, thus the compounding pharmacy. Its good for so many things when it comes to your mouth.

They're are a few different things out but that's been around a long time ands proven the best.

Remember the old purple stuff they use to have you paint kids and baby's mouth with for thrush? Looked and tasted wicked? Well its changed and many Drs use the "magic " now

Thank you all, I had another horrible day. My mouth started burning soon after getting up. I just sat and cried...it's SO painful.
I tried the cold grapes and it was hard to crush them in my sore mouth, but they did calm the fire down by at least 25%. Mashed potato and milk for dinner.(and cold grapes) Baking soda mouth wash helped a little.
I live in the Netherlands and don't have health insurance, but I can't take this pain any longer and will see a "house Dr." Monday or Tues.
I couldn't find Mylanta..it's no doubt called something different here.

Yes Whitebeard, I'm exhausted. I feel like I'm walking in quicksand.
The lack of energy is unreal. I feel achy...but I thought it was due to not doing much the last couple months. I've been avoiding social things and livening supine on the couch. I'm forcing myself to attend my regular Sunday thing tomorrow.
Thank you all...

Merrida,

How it was suggested to me by my oncologist at the time, was to simply refrigerate them, and slowly suck on them. He said there was a certain thing in the green grapes as opposed to regular colored grapes, that caused the soothing effect, believe some kind of emzyme unique to the green seedless grapes. Not sure it freezing them would help, but don't think it would hurt if one preferred that.

My mouth and throat, among other places, burned and hurt so very bad, both during the administration of so much old school radiation at the time, and in the weeks following, I would have been willing to try anything. Even cool water didn't soothe the way the grapes did. Again, I am a person that by nature is suspicious of "cures" or remedies such as this. But it worked, and it helped.

To this day, if my throat feels raw at all, a rare event, I will slowly eat a small bunch of cold green grapes.

David

Just,

There was just a recent thread here at HW CP, related to dental matters. Seems to be common among many of us here. Especially with crumbling and teeth simply breaking apart. Some seems to be related to the long term use of meds we are on and for other reasons.

Just the other night, I had a front tooth simply break right in half. Kind of my own fault. My wife eats these really hard granola bars, I usually avoid them, but hungry for something sweet, I started to eat one. Wasn't even chomping down hard, but it was enough to snap still another tooth.

I know I am soon headed for the world of dentures. I too have a morbid fear of dentist. It began as a kid when we lived overseas. Had all my dental work, including fillings, done with no pain deadening at all. The military dentists there did not have access to any numbing agents, so it was terrifying to me to have any dental work done.

So as an adult, I have tended to let my teeth go, and have lost quite a few over the years by waiting to they need extracting. And even then, I will pay the extra to have them pulled by a dental surgeon.

I don't see how the mouth burning could be directed related to either your teeth or to stress, but stranger things have happened.

David

After a nearly 3 year battle of mouth pain, I am finally back to normal.

First and formost let me plead to anyone, do not use the internet to find a cure for your health problems. I did this and it almost killed me. Keep in mind that no one on internet posts like this have any medical background and most people enter posts when they are in panic mode, they almost never go back and post that they are ok!

After being diagnosed with everything from burning mouth syndrome, to MS. to Trigeminal Neuralgia and ending up in a psych ward because of Lyrica suicidal side effects I have finally got to the bottom of all this.

I have been to 7 different dentists and none have a clue. So here it is:

Many of the dentists said burning mouth syndrome is not real, not to say the symptoms aren't real, just saying that your mouth doesn't burn just because their is some fantom mysterious Illness out there.... there is a reason for it.

And 9 times out of ten it is related to your teeth. Teeth or sinuses. In my case, it was my sister who finally figured it out. She is a nurse practitioner and she was convinced it had to do with me clenching my teeth at night. So she tried to do a little test. First she injected Botox into my masseter jaw muscles then she had me take muscle relaxers 3 times a day for 3 days. Bam, almost no pain, first time in a year.

Next, I have been fitted for a TNI mouth guard that just fits on the front incisors. This eliminated the teeth from clenching at night. Since then I am pain free!!!! CURED

The clenching was actually forcing my upper teeth directly into my trigeminal nerve causing irritation and referred pain and burning sensation.

One last note: If your are taking an anti-depressant then clenching is a side effect. see: BRUXISM, they are also finding it to be a major cause of migraine headaches and Botox is becoming a popular treatment.

Kaopectate and antihistamine? Wow, I never would have thought that combo would have helped, especially with thrush. That's awesome.

Before I got my dentures, all the broke and sharp bits of teeth would be constantly scratching my tongue and cheeks, making them burn and get sore. Since the broken teeth never went away, I re-irritated my mouth constantly.

Now with dentures, well, we still have the thrush to worry about, and the pinching from relines and rebasing until we get it right. But wow, it sure is a whole lot better than what I went through.

Too bad there's not one of those recipes in the Farmer's Almanac for mixing up these ingredients at home! ;)



M.

about BURNING MOUTH SYNDROME.I SUFFER FROM IT FOR 8 YEARS, NON-STOP EXCRUCIENT PAIN NOT MATER WHAT I TRIED!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
DOES ANYBODY KNOW about "ROOF OF MOUTH BMS" CAUSED BY IRRITATION FROM OLD (35 YEAR OLD)DENTAL PLATE PRESSING ON ROOF OF MOUTH? I VISITED 4 DENTISTS, NONE HAVE A CLUE. NEITHER DO DOCTORS: AMYTRIPTILYN AND GABATENPIN DID NOT HELP. DOES ANYBODY TRY
CYMBALTA? GAMA KNIFE?, BOTOX?
ANY SUGESTIONS (ROOF OF MOUTH SYNTOMS) ARE WELCOME!!!!!!!!!!! THANKS!!!!!!!!!!!!!!!