I'm smiling. Not because you have the damage to your nerves, but because you can name what's wrong with you. I know I started to do some "crazy making" in my head when there wasn't a name to it. I mean, when I broke my femur there was a cast. People could SEE there was an issue. When I had surgery there was a brace and a wheelchair. People could SEE there was an issue. When I was hobbling around with a brace and a cane--yup, they could SEE that too.
People can't SEE chronic pain.
What if they think I'm making it up and they think I don't REALLY wanna go back to work cuz I wanna watch soaps and eat bon-bons and do nothing with my life?! (I have an overactive brain and it thrives in isolation, let me tell ya!)
After that EMG (which I'm not rushing out to do again, tyvm!) I could hugged the fella when he gave it a name that I still can't pronounce. It meant it really existed, I wasn't crazy.....and it was official. I called the hubby and told him I'd happily failed the test....and I really DID have "whacked out nerves". Unlike you, I didn't have to endure the emotional pain of having others who really DID disbelieve me. It was all me.
YEAH!!!
I'm sooo glad they named it for you and I sooo hope that the information will help determine an effective treatment course that will help dimish your pain so you can live a happier, healthier life.
*huge hugs*