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Posted 4/6/2015 4:15 PM (GMT 0)
Here it is Monday again. I don't know where these weeks are flying by too, but I wish it would slow down some, lol.

Hope everyone had a great Easter. We had a fantastic Easter with our 9 yr old grandson. We had an Easter egg hunt for him & he also got to try out some of his new fishing lures at the pond by his house. Had an awesome dinner that everyone enjoyed.

The weather was not so great, rather cool & overcast with some sprinkles & was really wet out from raining all night the night before.


For our new members this is where we check in & talk about our weekend & what we have planned for the week a head.

I see where SisterPam has asked for some prayers since she is having some further testing done. So, many prayers will be sent her way.

I have not seen any updates from Aned so I am wondering what is going on with her. I sure hope all is well with her.

Happy Monday everyone.
Posted 4/6/2015 4:18 PM (GMT 0)
hi everyone. wishing you all peace, comfort and healing thoughts.
Posted 4/6/2015 5:04 PM (GMT 0)
I LOVE reading about your day with your grandson...What a JOY children are at an age of wonder=)  Your family dinner sounds scrumptious, surrounded by those you love...The egg hunt followed by "fishing" is a HOOT.  That visual makes me smile.  I need that.  Thank you so much for sharing.

We, too had an Easter gathering on Sunday afternoon.  We had a traditional dinner, which most of the younger generation will not eat=( We don't see each other much, so it was good to catch up. My nieces and nephews were always the JOY of my life since I could not have children.  They are now grown, married with my great niece and nephews.  We continue our tradition of the EGG HUNT.  Normally, I think I get more excited than they do.

This year was harder for me, as PM is not going as hoped.  I have weaned off the Fentanyl patches because my body seems to "reject" them.  I posted specifics in Hoops thread.  I'm feeling doomed and defeated, deeply saddened that I still have no PM protocol for relief. 

I cried like a baby most of Friday, inconsolable.  I pushed through the pain and sadness for the kids.  They have no clue how I suffer and I don't want them to.  They think I'm just "a big ole kid" because I participate in whatever they come up with. I managed to pull myself together by late Saturday, to prepare for Sunday at my sister's house.  All went well.  We had a wonderful time together, despite the threat of rain.  Those kids are such a lift for my spirits...Giggles and Games are Good like a medicine!

Back to reality...I have to consult with PM, which I dread.  I figure he will throw his hands in the air and QUIT!  He really doesn't have interest in a "difficult case" like me.  Suggestions?

Susie, HT and all my cyber siblings...I wish for you a low pain, but high level of sunshine and happiness this week.  Looks like rain here.  My heartfelt sympathy to those who are suffering loss, as we have lost many of my elder "peeps" over the past month...expected, but no less painful.

~~Dixie

 

Posted 4/6/2015 6:10 PM (GMT 0)
Happy Monday Everyone,

Hope you are resting from the weekend and getting ready to face another week. My grandkids are out of school today so I will get to spend time with them.

Mark13 is scheduled for surgery on the 9th. So many others are facing difficult times. Lots of prayers needed.
Posted 4/7/2015 1:17 AM (GMT 0)
Thanks for the sunny Easter and today. I got lots of grandkids time yesterday and today. The usual nice family dinner, then today the kiddos came up to make potato cheese soup. Ever watch a 7-year-old with a butcher knife dicing potatoes? The 4-y-o stirs the big pot. The 8-y-o reads directions and measures. They ate most of it for their lunch. It's always delicious if they have ownership. :)

Sunday furnace #2 quit. Today a simple fuse got it running. Thanks again for the nice weather. The little car got a muffler and some sort of seal today also.

Z-pack isn't fixing the plugged ear feeling and hearing. I've already tried 3 other antibiotics, 4 nasal sprays, 3 decongestants, sinus washes. ENT on Thurs.
Posted 4/7/2015 4:29 AM (GMT 0)
Welcome back Dixie!! You were missed!

I'm sad to hear of your struggle--life isn't fair, and I sometimes struggle thinking it oughta be. I talk with The Big Guy and I tell Him if *I* was running the show it wouldn't be this way. But I'm gently reminded if I were running the show I would have cheated myself, being a person of limited vision....I would have stayed in an abusive marriage, I would have stayed in a job that limited my usefulness to others....I never would have let the stranger in the international airport buy me coffee (he later married me).....and I wouldn't have the 5 year old grandchild either. LOL....basically, I'd suck at being G-d.
It's good for me to remember those things when I'm discouraged and disheartened and can't 'see' something different for me in the future...except more of the same, which isn't reallllly what I was hoping for. I have limited vision. And as much as I like to critique The Big Guy on how He's slackin'...I have to admit, He's pretty slick at orchestrating things without my awareness. Sneaky fella! LOL. So I'm hanging on to the belief that something's in the works for you AND me and everyone who hangs around here.

I mean, look at how incredible the folks here are!
LOL. All the cool kids come here! ;-)

Right! Sorry for stealing the soapbox.
THAT being said, I'm not happy with the plans that included me getting a wicked eye infection that landed me at urgent care today. But ohhh... I had a great extra day off, enjoyed the trip to the Missippi AND I got to go kite flying.
All Easter plans with the daughter and grandchild....cancelled due to their sickliness and my compromised immune system. Just as well given my wicked eye infection! (We'll reschedule and do a different hunt ... butterflies maybe? LOL)
This week it's a visit to the eye specialist and one to my PCP. Hopefully NOT another visit to urgent care (which is really misleading given it was almost 2 hours in the waiting room! LOL) Never a dull moment!!

Prayers to all those who need some raised.

Happy new week to everyone!
(And thanks for the thread, Susie!)
Posted 4/7/2015 6:25 AM (GMT 0)
Hi Everyone!
Praying that this week is better for me.

Welcome to all our new members. Hope this site helps u as much as it has me.

Yesterday, I attended our church's Easter Sonrise Service and ate breakfast. But that was all I could do. The pain in my tailbone area was pretty severe, my lower back was starting to hurt, and my headache went from headache to the worst migraine ever. I wanna feel like I should and be doing better. Its only been 7 weeks since my last back surgery which had to correct everything my previous neurosurgeon screwed up just 3 weeks before. So 2 major back surgeries 3 weeks apart takes a toll on the body. I'm just not very patient. My children are entering their teenage years which will be pretty active and I so want to experience this time in their lives. Their always so understanding but I know it is important to their hearts. So this week I don't have any appointments and I'm just trying to get thru it and recover so I can get some strength for grocery shopping. I'm trying to build my strength to get thru that.

Hope everyone else is doing great.
Posted 4/7/2015 7:59 AM (GMT 0)
Hello everyone. Hope everything is going well. Happy belated Easter.
Going for pre-op tests Wednesday, still waiting for the appointment to be made for the second opinion. They are supposed to call Wednesday.
Have gotten over the soreness from physical therapy.
Wishing all a less painful week.
Posted 4/7/2015 9:48 AM (GMT 0)
Well after missing Monday check in I show up late for Susie's and thats how my entire week was last week. I had so much going on and just couldn't get caught up with all of it, still working on it. We had a new in ground pool put in and I was so excited about having a place to use hydrotherapy with out leaving the house but I never gave a thought to the added work with cleaning and treating the thing!! Had to take a mini course on chemistry to learn how to keep pH in balance and algae away and my brains long past remembering things like numbers for more than a few minutes. It's still heating up in the Florida sun and I am not brave enough to step in the current 70 degree water even though my grandaughter has virtually lived in it since it's completion. It will have to get a whole lot warmer than that for me.

Had a great sunrise service on the beach Easter although the wind was bad and the tides high enough to push us up into the park it was a great day.

Appointment this week to see what this knot is I have been dealing with in the arch of my foot. It's now painful after not being so for months.

Hopefully everyone enjoyed the sunshine last week and had a good Easter.

Prayers for Pam and Aned as well as anyone else struggling right now.
Posted 4/7/2015 9:51 AM (GMT 0)
sore. arms and shoulders. winter chill. keep well my dear friends. am rugged up. had a migraine last night and was very ill. rested all day today. i got them as a teen, and severley. they found something wrong in my brain. i was on some nasty meds. ergadryl. my pharmacist says, it is gone here. it fixed the intense migraine, but at the loss of your dignity!!!
Posted 4/7/2015 11:14 AM (GMT 0)
Hello all. The doctor confirmed my daughters diagnosis of Cushing's. Now her case is being transferred to a University Hospital that has the staff and skills to carry on with what tests must be done before brain surgery. Tomorrow is Cushing's Awareness Day! We are VERY aware of it! It is a one in a million diagnosis. Very rare! So, I'm wondering, just how experienced can these doctors be? Must stay out of my head.

Tomorrow I will see the new PM doc. I'll let you all know how that goes.
Posted 4/7/2015 9:46 PM (GMT 0)
Hello all hope you all had a nice Easter. Weather was miserable the first two days but glorious the last two so had lots of reading time in the garden. I hope everyone felt ok or as can be over Easter. Love Di xx
Posted 4/8/2015 3:36 AM (GMT 0)
Well, I feel like I've had something of an Easter miracle. Convinced my PM to switch me to MS Contin last week, as the Oxycontin was NOT helping at all. He had mentioned morphine before, but then seemed to forget about it. But I brought it up again, because it is one of the few opioids not metabolized by CYP450 enzymes, of which, many of mine do not work correctly (hence why the oxycontin didn't work).

Anyways, after just a day on the morphine, I began to notice not only that my pain was less, but also that I seemed to have significantly more energy! Whereas I was sleeping most of the time before because of extreme fatigue, I am now finally able to be up and about most of the day. It feels so good to finally feel somewhat like "me" again. I really do feel like it is a miracle! I just hope that the relief, etc that I am getting lasts, and is not some fluke. I've only been on the morphine for about a week, so we will see what happens after I am on it for a longer period of time. Of course, I am still in pain. But so far, this is the best relief that I have ever gotten!

In other news, I finally connected with the doc for the ketamine. And so I have my "pre-op" physical on Friday. After that we will be able to schedule dates for the infusions. This will be for depression only, not pain. It turns out that the protocols for pain and depression are not compatible. And so I will have to go someplace else (do have a name of a doc/facility) if I decide to go forward with infusions for pain. But we will see how I respond to the treatment for depression, first. The infusions for pain are much more involved (higher dose, longer infusions, more treatments). So I want to make sure that I handle the lower dose, shorter infusions okay first.

Hope everyone has a good week! I for one, can't wait to bring a positive report back to my PM, for once!

Skeye
Posted 4/8/2015 9:08 PM (GMT 0)
Hey again Y'all...HUMP DAY!  It's great to hear much of the good news here, as Spring has sprung!  What was that old song..."Sure could use a little good news today"...any day!

I'm checking back into this thread in hopes that some of you might check in again throughout the remainder of the week.  I am in desperate need of your time and energy, my HW siblings.  I realize that for many of us, we continue to struggle with unresolved pain.

Skeye...GREAT NEWS with the success of Morphine.  I hope your relief sustains, sweetie.  Could you email me?

Genetic Testing for Metabolism of Opiates:  Cheek Swab

 

Would anyone care to share their knowledge/experience with me?  I'm at the end of a tattered rope.  I've tied many knots and held on for dear life.  However, my PM doc is about to cut and run!

Please post your replies on DIXIE6 thread, as I have no desire to hijack this thread with my woes.

Thanks~~Dixie

Posted 4/8/2015 9:26 PM (GMT 0)
(((( Dixie )))) I have no knowledge on the cheek swab test-- I have faith others do, though. In the mean time, I'm checking in. Recovering from a wicked bacterial eye infection. Doing way better today with THAT, after 3 appointments and some kickarse antibiotics eyedrops!
As for the leg...It's angry and I'm using Max (the TENS unit I lovingly named...LOL). I should buy stock in the Energizer battery company. LOL

Happy Hump Day!!
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