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Anyone want to come to my pity party? I'm serving cake

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Posted 7/15/2008 9:46 PM (GMT 0)
I am normally the type of person that doesn't let things get to me.  I try to go with the flow but every now and then I become a bit depressed over my situation in life.  I am usually an upbeat, hopeful and cheerful person so I HATE it when I go to a pity party.  I found though that sometimes just sharing with others that can understand makes me feel better - maybe it's words of encouragement or sympathy or even someone saying "Hey, stop your sniffling and get over it!"  smurf   Just knowing that I can get these things off my chest really does help me not flip my lid or end up crawling in a corner for a month, crying my eyes out.

So I've had Ulcerative Colitis for 16 years.  And within in those 16 years I can count on one hand in which I haven't been in some sort of pain.  I am almost always flaring with this disease (flaring means presence of symptoms) and I just recently found out that the one almost end of the line meds is not working right for me.  So I came to the conclusion and decision that next year I want my large intestine removed.

Over the years, I have had many maladies that come along with Uc - frequent eye infections, aching joints, reoccuring ovarian cysts as well as other cysts on joints, warts (eck!), kidney infections - you name it and I've probably already had it at one time or another.

So then enters my new dilema of having a bulging disc and a slight herniated one (thoracic).  Top that with the years of suffering with lower back.  Going to many many doctors for years and not a single one could ever tell me why my lower back is mess.

Oh and let's not forget my horrible Raynauds.  It seems that the fates are piling up against me and I'm being backed into a corner. 

Sorry this is so long, but I just wanted to see who was actually dedicated enough to read this and make it to my pity party.  So if you've made it this far, the cake is chocolate (to me there is NO other flavor but chocolate :-) ) with ice cream of your choice.

Posted 7/15/2008 9:59 PM (GMT 0)
Red-34 I would do almost anything for cake. The ice cream is vanilla.
All of us feel like having pity parties everynow and then-I was amazed at how dignified yours was as mine always involve lying on the floor kicking and screaming with real tears rolling down my face.
I hope they are able to help you resolve some of your medical issues and in the meantime know that we are always here on the boards willing to offer whatever is needed wether it is guests for a pity party or someone to cheer you on.
Sj
Posted 7/15/2008 10:10 PM (GMT 0)
Red,
I'm there. Do you have any black raspberry ice cream? Oh, sorry to be such a bother, but a little hot fudge sauce, too?

Do not feel alone, dear one. If you look back a couple of pages I started a thread with my own pity party! Only I didn't have the sense to offer goodies!!

Multiple health problems. Like one isn't enough? I'm just beginning to pull my head out of the sand about another health issue I've not wanted to face since my back surgery. Not even ready to write about it, but I'm scared because I wonder if i go to the doc for this that they'll want to reduce or change or even eliminate some of my pain meds!! Because of course, we can count on our docs to be sympathetic, and understand complex cases, right? Oh, silly me! No reason to worry!

I'll bring a bottle of wine!

PaLady
Posted 7/15/2008 10:44 PM (GMT 0)
Oh what I wouldn't give for a good ole bowl of black raspberry ice cream and wine!! Another diet limitation due to my Uc, so I guess I will settle for Chocolate Soy ice cream instead :)

Oh, I've had a ton of doctors understanding my complex case.....um NOT! But I do have a peach for a primary, a gem for a neurologist and a saint for a gastroenterologist - it was all the other docs I could've done without!

And Sj, I will have all the vanilla you like - heck even if you don't like chocolate, I will break down and make muffins or cupcakes of your choice, how's that?? :)
Posted 7/16/2008 12:47 AM (GMT 0)
The chocolate cake is fine-sounds yummy I just have this thing for vanilla ice cream. I can't have wine-mtx-so I will bring some raspberry gingerale for all of us who's meds won't allow anything stronger.
Sj
Posted 7/16/2008 1:51 AM (GMT 0)
Chocolate for me please! Pity parties are great when Ice Cream and cake are involved in my book hehehe.
Posted 7/16/2008 2:09 AM (GMT 0)
Hi Sherry: Thanks for the invitation to share Your problems. Funny how some days You can take so much abuse and pain and others we just want to go into a corner and cry. I am new to Healing well and not that good at writing to help people feel better. All of my problems are neuro and orthopedic however a couple of years ago I had my gall bladder removed and remember the pain and discomfort and that is no where near the pain You are experiencing. You want Your large intestine removed is the intestine causing a lot of Your problems? If iam being nosey PLEASE forgive me as I sit around trying to figure out how I can help even in the slightest way. Your in my prayers, Tom
Posted 7/16/2008 5:54 AM (GMT 0)
I'm there for the party. I'll bring my own ice cream along with my problems. We'll need hankies too so I'll bring some pretty ones too with me. Oh I feel better already.

Hugs and prayers for you, Sherry.

Lindaloo
Posted 7/16/2008 9:12 AM (GMT 0)
Tom, there is really NO way anyone can be nosy on here! :) My colon is the majority of my troubles, there are so many limitations to what I can eat and what meds I can or can't take so I had to weigh the pros and cons of such a surgery, one in which I have been doing for the past 2 years. This was not a decision I came to lightly. I wouldn't say that I am in pain 24/7 with Uc, it comes and goes. I think well ok this isn't so bad when the pain is absent and then it comes back full force and I say ok, I want this thing out! I have been see sawing with this for a long time and I am just plain tired of fighting. If I can rid one thing at a time that is causing me grief then I will be one happy camper by the time it is all said and done :)
Posted 7/16/2008 2:18 PM (GMT 0)
Red;

I know how ya feel which is kinda a blessing when it comes to boards like this. Dealing with the pain everyday 24/7, 365 days out of the year wears a person down to the point where they just want it to go away. I was down to an eight and seven on the medical lovely pain scale, but now am back to a 9 all the time. The most horrible part I think is the fact that I cannot get comfortable and feel so isolated from my friends and family. My husband does understand my pain (and here I pause because I almost forgot to take my meds once again) as he has been there. Two days after my work injury where I haphazardly decided that the resident I was getting up for morning breakfast was more important then that of my own back was the day I do not regret (resident lost footing and was about to fall and I, being the kindhearted person that I am, twisted to ensure that she would not fall and caused two herniations of my lower back); hubby injured his back at work. The strange thing was hubby had two herniated discs as well and his healed fine, although mine did not.

The constant pain down the legs, the numbness in my toes, the excruciating pain in the back all drives me completely insane and sometimes, alike to most of you I fee like curling into a ball and bawling my eyes out. Today is one of those horrible days, so I'll have a slice of pity and a helping of ice cream and a hanky to boot and cry like a baby.
Posted 7/16/2008 6:29 PM (GMT 0)
CAKE?!! AHH, chocolate, I hate chocolate!! LOL! Did you ever meet anyone that didn't like chocolate, like me? LOL! I'll eat it, but I don't really enjoy it like everyone else!! LOL!
Posted 7/16/2008 6:44 PM (GMT 0)

LOL!!  Now that I read through all the posts, can I bring a fruit cup?  I'll still have a piece of pity, but I'll have it with vanilla ice cream please!!  LOL!

You are all very great!  I love my new friends!!  Even in the worst, you have your sense of humor and that is the BEST medicine!  Though it's not great for pain, especially if you're laughing too hard!!  LOL!

I enjoy pity parties, because I feel the SAME way as all of you!  I like to be able to get my frustrations out, though I haven't started on all of my problems, I think they are too much for anyone to handle!!  LOL!

Tom, you are SO worried about making someone feel better, but by you posting, you did the best thing!!  You care, and it shows, that's all anyone needs in the situation!  You did good, my man!

Red, I'm SO sorry about your problems, I hope that you get some relief!!  I wish you didn't have to think about removing your colon though!  Wow!  Is that the last option for you?  I hope that there is something you could do, without having to go through all of that, but I'm sure you've researched and spoken to your doc about that.  You will get through it!  One day at a time!  Just out of curiousity, I'm not very familiar with the condition, but have you tried probiotics?  They are supposed to be good for intestinal health, replacing the good bacteria in your gut!  They've worked a little for me, though my problem is constipation more so.  But they are supposed to help rebuild the lining of the intestines by fighting off all of the bad things that eat away at it, and that in turn is supposed to keep toxins from leaving the bowel, and with less toxins in the body, the body gets healthier.  Just a thought, like I said, I don't know much about the condition, but if you are interested in probiotics, I can tell you more too.  I wish you the best of luck!

You and everyone are in my prayers!  Good luck to you, and all!!

Keep that sense of humor, and stay positive!!

Posted 7/16/2008 7:05 PM (GMT 0)

Aw Red, I can relate and understand where you are coming from. You see, I have crohns & UC, I am one of the lucky ones too. I had an emergency small bowel resection 7-4-02, I cannot tolerate steroids, so I went straight to Remicade and did it for 3 1/2 yrs. CD has not ever gone into remission, now putting up w/fistula that came out of my old hysterectomy scar on my belly. Was put on Flagyl and I am back on Remicade every 4 weeks, plus I was already on Imuran & Entocort. The Entocort does not bother me because it it not released until it hits the small bowel. Yea for me. I am on Lialda for the UC, 4 pills a day right now. I was on 2 but he upped it. I would not wish either disease on my worst enemy. I was dxd w/UC June 06 after a scope that found my colon was full of ulcers and the biopsy nailed it.

Now, about the chocolate cake. I love chocolate, however, my gut hates me when I have been brave enough to eat it. I sit on my thrown way too much as it is, but chocolate increases my time there.lol. My diet is so poor right now, I don't know what to do. Eating a bare minimum not quite 1 meal a day, husband stays on my case for not eating, I don't know if I have developed a mental block or what. When I think of food I want to throw up, I live on Zofran for nausea. I have lost some weight which was needed but its being done the wrong way. Dr has me on B12 shots for the past year.

I am an oxygen  patient so please tell the smokers to smoke outside, otherwise I may cause your place to blow up when I arrive.lol Where I live Blue Bell ice cream is the best, and the banana split is awesome, I will bring it. Our nasty air is back and we are a level orange today, no wonder I couldn't breath when I went out back w/o oxygen on,lol Hugs, Susie 

Posted 7/16/2008 7:57 PM (GMT 0)
Dragoness..........Omgoodness, how can someone not like chocolate?? That's like someone saying they don't like sunshine! :) Just kidding. Everyone has their preferences. Personally, I think I would die without my chocolate! As for the probiotics, yep I am on one. Pro-Bio to be exact and it has helped make me feel all around better but it didn't really do much for my flares. I have only maybe one other option I could try before surgery, but I am just putting off the inevetible (sp?). And yes, I've done my research like crazy. They have a procedure called the Jpouch, this is where they remove the large intestine and create another "intestine or pouch" out of your small intestine. I would have to be with a bag for a while until that new pouch takes and then they reconnect everything. So that is what I am aiming for. But hey, the way I look at it is even if the Jpouch doesn't take, at least I will (hopefully) be out of pain from UC, off the 17 pills a day that I have to take and can eat and drink almost everything I want.

Susie, there is no smoking allowed in my pity house so outside they shall be! :) And it sounds like you need this party as much as the rest of us! :)

Scared, you are so right! I am so very grateful for HW. And obviously I like coming here since I've been a member (and moderator) for 4 years! :) Y'all are stuck with me whether ya like it or not! lol
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