HealingWell
Search Close Search
☰

Just thought I'd post....and has anyone ever done home infusions of antibiotics??

Support Forums
>
Chronic Pain
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 7/30/2009 7:33 PM (GMT 0)
I haven't posted on here in a LONG time.
I have been on A LOT of pain meds in my 24 y/o life, from everything to simple over the counter to Fentanyl suckers.
My pain is still there but i'm learning to live it. I finally had to start getting off of so much medicine and that when my pain finally started to getting somewhat tolerable. I'm down to just a few Hydrocodone a day which is HUGE.
(The main reason I had to get off of so much was tolerance and signs of addiction. It was really hard to be to take my meds as prescribed.)

I still have pain, still have TONS of medical problems though. I wonder why friends I HAD are getting married, having kids, working and I'm stuck at home on disability. I wonder why God made my journey so hard but I just have to keep going.

I hope you all find peace in your journey.

Ang

PS: I'm on home infusions of antibiotics for pneumonia and staph, and its making me really sick to my stomach. Has anyone done home infusions before? What did you do for nausea? I have Phenergan and Zofran but its not helping.
Posted 7/30/2009 8:23 PM (GMT 0)
Ang,

I have never done a home infusion anything, is it IV? I know when my pain get's bad I get really nauseated and can't take anything orally to help with it, so my doctors gave me anti-nausea suppositories that helped. The one that helped the best was called "compro". If they are oral medications make sure to eat something before you take them if you can. For me two pieces of toast or plain bread and big glass of milk helped with oral antibiotics.

Good to you for getting off so many pain medications and seeing that you were heading down a road you didn't want to.

Isn't it amazing how chronic pain shows us who are real friends are? I wish it wasn't so. The thing is that for some seeing someone in pain that doesn't go away is more than they can take. Most people cannot, or don't want to, see pain as anything that two tylenol and good night sleep won't fix. Everyone wants to believe that everything can be fixed somehow, and it makes people face their own fears when they realize that there isn't a magic pill for all ailments.

The best thing you can do is what you've done, take your life back from the chronic pain. As you said you are learning to live with it, but possibly try to live to spite the pain. The way that pain has invaded every part of my life really angers me sometimes, tasks as simple as getting out of bed sometimes are taken over. I made a decision years ago that the pain was not going to change who I AM. I am still the girl that trys to see the bright side of everything, even the pain that I battle. I still laugh, and I still smile even on my very worst pain days, because I will not let the pain take that from me.

Also remember that it's easy for us to shut out the world without knowing we are doing it. Sometimes it's just easier to push people away than to let them see the things that we deal with. You may have done that and not even known it. My husband has learned that those are the times I need him the most, because I'm pushing people away to protect them from seeing me hurt, when I really need someone there to help me with it. Not sure how you feel about dating sites, but if you are looking for a relationship of any king you might look there. I met my hubby 13 years ago on the internet when I was only 15, I'm 29 now (okay so I guess it was 14 years ago). I lost a lot of friends from 2000 when I first injured my back and the following years. It took me reaching back out to them to find them again.

Just know if nothing else the people here at healing well are ALWAYS here for you!
*hugs*
Posted 7/30/2009 10:28 PM (GMT 0)
Oh I am sorry about the nausea.  That is a horrible feeling.  I have never had IV antibiotics only the IV steroids.  Those come with a whole different set of side effects.  You might post on the lyme board.  Those members have a ton of experience with IV antibiotics.  They may have suggestions as to how to deal with the side effects.
Posted 7/30/2009 11:12 PM (GMT 0)
I just wanted to jump in and say Good for YOU!!!! Seems you are heading down a path that suits you.

Best Wishes
Laurie
Posted 7/31/2009 12:55 AM (GMT 0)
From my experience Zofran usually does the trick. Ar over $4000 a month, it thens to be the gold standard for chemotherapy nausea and vomiting. It was a miracle drug for me. Talk with your doctor about alternatives, but I was under the impression that this was the best.

Good luck in your search. How much longer will your home infusions last?
Posted 7/31/2009 1:59 AM (GMT 0)
thats what the doctors say, about the Zofran. BUt it doesn't work for me. I was in the hospital getting it IV and phenergan AND reglan and I still was throwing up all the time.
Did you know hospitals are only giving 6.25 mg of Phenergan IV now, rather than 25mgs they used to give b/c too many people were dying and stuff. At least thats the case in the hospital i was in. Crazy.
Posted 7/31/2009 10:47 AM (GMT 0)
I have a port a cath in my chest because I did Remicade infusions for crohns disease, had terrible veins. I had to do home antibiotics for cellutlitis in my legs. When I was released from the hospital. I was on vancomycine and it never made me sick at my stomach. I am sorry you ar having such a terrible time with it. I too take Zofran and its been a life saver for me.
Posted 7/31/2009 3:30 PM (GMT 0)
 

   Dear AngMichelle,

 

     GooooOOood Morning! *huggs* It is good to see you again. I think we met last month, but my memory isnt the greatest smilewinkgrin   I am sorry you have had to deal with so much these last months. I sure do hope things slow down for you. That is alot to go through.

 

     Has anyone done home infusions before?

     Nope! In fact the closest to home anything I get is little bottles of antibiotics that smell like eggs.. and the farts?!?! Girl, I can clear an isle at the store in one blow!

 

     I know not much help. I just wanted to stop by and say hi :-)

 

*huggs*

   dani

Posted 7/31/2009 6:53 PM (GMT 0)
I've had a PICC line in/out over the years - I need fluids on a regular basis. There's been times that I've done them at home. Right now, I just go in as I need them...

Re: the nausea - Zofran works wonders for some, not for me either. I use the Phenergan suppositories (lovely, I know...); the oral meds don't work for me when I'm in a bad cycle of nausea/vomiting.

When I go to the hospital... they still do 25mg of Phenergan for me. There was a time long ago that it would wipe me out for the rest of the day/night (major drowsiness)...but now, it doesn't do that. But, yeah - I've heard that some hospitals don't like to use it.

You wrote "I wonder why God made my journey so hard but I just have to keep going" - I've been there definitely. I still have my moments...this week has been particularly hard for me. So, I don't have any major words of wisdom right now - only that I do understand what you are saying! Hang in there, Ang....

Thinking of you -
Tina
Posted 8/1/2009 12:57 AM (GMT 0)
Yes, I've had IV Antibotics and visiting nurse to help with it..was for 3 weeks, I didn't get sick, because the infection was so bad
in my body, so I can't help out with the nausea issue, sorry...Pneumonia is no fun I've had that 3 times too...
I hope your feeling better soon...
Well wishes being sent your ways
and lots and lots of soft hugz....
((((((((((((((((((((((((((((((((((((((((((((((AngMichelle)))))))))))))))))))))))))))))))))))))))))))))))))))))
✚ New Topic ✚ Reply