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counting the days til the new Rhuemy...

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Chronic Pain
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Posted 8/11/2010 3:23 AM (GMT 0)
I don't know how i can keep from overdoing at the job that i have now!! It is so frustrating. I came ho,e today and crashed. Kids woke me up to say we had back to school night in 45 minutes. I couldn't move my hands, feet, elbows, blah blah blah. Any of it. They were so stiff and sore. I had to have them start dinner while I waited to move. I have 11 days til the new Rhuemy app. I am on a count down and so very nervous. I am praying that this dr. will run the test needed to find out what is wrong for sure this time. Some treatment before my fingers keep turning. After I get the sharp pains in my elbow joints I feel like a golf ball size knot above my joints. In my fingers when I get the stinging, burning stuff within 2-3 weeks I notice the tips of middle 3 fingers, both hands, start turning towards my pinkie fingers and have stayed that way. Does anyone else get this. My fingers are short and stubby, even when i was smaller they were, so how can I tell if they are swollen? When I rub my hands fingers down my other fingers I feel knots next to the joints and they stick out. My older kids say my fingers and ankles look swollen. Who knows. I'm just nervous, frustrated, and in pain..of cours, today. Hope you are having a better day than me..pain free I hope. Heather
Posted 8/11/2010 4:43 AM (GMT 0)
Hi Heather!

Wow, you sure do have your hands full! I have Fibromyalgia which is constant muscle pain with no known origin. Not a pretty sight. Some of your symptoms are like fibro but others might not be. Obviously I have no clue what you have nor would I pretend to try to diagnose but I can share my experiences with you.

One thing I would encourage you to do is not leave that rheumys office without at least something to help your pain. Just because you don't have a diagnosis yet is no reason not to give you some help. Also, is there a reason why your primary doc can't/won't help you with some pain relief? There are some doctors who freak out at the thought of helping a patient in pain. Some seem to think we are all druggies trying to get a 'buzz'. Well, I can tell you I've taken bucket loads of pain meds of the years and never once have I felt any 'buzz' or anything pleasant at all. At best I get some relief from the pain. If you don't find a doctor who is willing to help with pain relief the way you prefer then you are totally free to hire someone else. Yep, hire them. That's what we do when we go to a new doc. So respect yourself and find the best!

In the mean time you might try very warm/hot soaks in the tub or shower (which is what I do), warm compresses on those spots that hurt and maybe a very delicate massage on the knotted muscle areas. Sometimes having your spouse or significant other just lightly massage the area, without any pressure, can make a huge difference. If you can get some endorphins flowing those are some of the best pain medications going and they are free!

Keep in touch,
Chutz
Posted 8/11/2010 2:37 PM (GMT 0)

Chutz,

I appreciate your reply. I was dx with FM about a year ago. Back in Jan. I started having more stiffness and pain that has lasted since in both elbows, fingers, knees, shoulders, and ankles. When I had to go on predisone for a herniated disc, it was the only time that I went pain free. My mom has had Fm for 20 plus years so what I know about it, it's not an inflammatory disease. So when I begun to have that reduction in pain, it was my first clue that something else was going on. I couldn't get in to see my Rhuemy(he doesn't listen and hasn't ran any test anyways) so his RN saw me. She said my joints looked inflamed as well and noticed the rash i had tried to point out to him. She ran crp levels and they were elevated. Ran them a month later and they were elevated again even higher. He saw the results and blew it off. Needless to say I started looking for a new Rhuemy. I take Tramadol and Cymbalta but it doesn't come close to helping. My new app. with the new Rhuemy is in 9 days and I hope he is a good as people say. I am so over it and ready for some help. Heather

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