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scs implant charlie horse pain in leg and ankle

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Chronic Pain
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Posted 11/1/2010 6:40 PM (GMT 0)
I just had a revision surgery for my scs implant on oct 12th. it seems to be better now with controlling my leg pain, however, now every time i lie down my leg and ankle feel as though they are going into a bad spasm. for the past three nights, i have had a charlie horse pain in my ankle so bad that it woke me up and i was screaming in pain...let me say that if there was a fire in the house i am not sure i would make it out. my boyfriend thought that there was something major wrong with me because i was screaming so loud. called my surgeon and he told me to call my PM doctor ( who i am still waiting to hear from---imagine that,lol) I was just wondering if this has happened to anyone else. it is to the point that every time i go to lie down, i go into major pain. i take 5mg of valium three time a day, but it is not helping me at all. HELP!!!

thanks to all who read this :)
Posted 11/1/2010 7:05 PM (GMT 0)
I do.
I avoid lying on my right side often (though on occasion I only get relief by lying on my right side). I know it's a big no-no, but I will carefully wrap my fingers around the implant & pull it up. Apparently there is a nerve trapped between my pelvic bone & the stimulator. It gets worse when I gain 5 pounds or more (and I barely weigh enough to reach the bottom of my weight range). Gets worse when I bend at the waist. Just have to be oh so careful with it. But I've had it for nearly 5 years now & in spite of the fact that I can't do core work on a mat and I sometimes have to deal with these nightmare shooting pains coming from the implant site, I'm still happy I got it.
The other thing I did early on when I was REALLY miserable (considering an ex-plant) was I went to an osteopath. He was able to gently move the stimulator to a slightly more comfortable position. BS said it could flip the device & void the warranty but I figured it didn't much matter since if I couldn't get relief I was gonna have the darn thing taken out anyways. Not really advising you try that, but sometimes desperate times call for desperate measures.

Gosh, I sure hope you can get some relief. On occasion, epidurals help. Usually not, though. Oh, I just feel so badly for you. That pain is the WORST!

take care,
frances
Posted 11/2/2010 3:58 PM (GMT 0)
thank you frances....

i stopped taking valium and my doctor put me on skelactin, we will see how this helps! my doctor said give it a few days and if no improvement we will go to plan "b", which i am not sure what that will be!

have a great day and hope that we all stay out of pain

:)

rena
Posted 11/3/2010 2:30 AM (GMT 0)
Rena,
I hope the skelacin helps. I forgot to mention also that my PM prescribed Voltaren gel (topical NSAID). That helped quite a bit. I put it at the implant site, at the incisions & wherever the pain radiated to. There are side effects to it, but it worked great for relieving the pain. Also, I got a stay-cold ice pack from Walgreen's (don't remember the brand name). It is maybe 12"x12"x1". You freeze it overnight & then can put it on for 20 minutes every hour -- it goes in a pouch that you velcro around your waist. It says it stays cold for 8 hours. I've found it's really more like 6 hours, but still, it is very helpful to have something I can take when driving or at work and not have to worry about finding a freezer. Maybe something to look into.

feel better,
frances
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