Back again after long absence. Lab Question

Hi Everyone. I've been out-of-pocket for some time. I wanted to drop in and ask a few questions. I finally saw a good neurologist for the odd pins-and-needles pain up and down my left arm, stiff muscles, weird feelings down left leg. While the problem isn't as painful as it was, it's still there and it somehow seems to be more systemic. For example, I get dizzy and feel nervous, not sure why, but I know that just a small amount of caffine sends me over the edge.

My neurologist did the SPEP test and found a slightly elevated level (0.3) on protien band one. He sent me today for the serum immunofixation test just to make sure there's nothing there. He said the protien band level was just barely out of range and he wanted to be sure. But, I'm scared, naturally, and having to wait a few days to hear back on this. Anyone else had experience with this?

Thanks for reading

 

Hi Mentalcompass!

Good to see you again. I'm sorry you're in limbo right now. None of us like waiting for results...it's frightening not knowing...but we all know at some lever that it can't be helped. You can always hang on to us when you feel shaky...before or after the test results come in. Someone is always around who can post or chat with you. We all become pretty darn good at 'hand-holding'.

Please keep us posted on the progress, OK?
Hugs,
Chutz

Mentalcompass,

I'm not good at waiting for things, either.  I'm sorry this is causing you so much anxiety.... like Chutz said, we are here for you!  I hope you get some answers today. 

Yep, the health journey has taught me many things, too - patience being one of them.....  but, again, the waiting is the worst....

Again, hope you hear today. 

--Tina

thanks everyone. so, i got the labs from the first test, all my blood protiens are normal; however, it says abnormal protien band 1 at 0.3H, when non are supposed to be detected. Then it says possible monoclonal protien (m-protien) present. suggest serum immunofixation (that's the test I'm waiting for). they give this test to rule out blood cancer, such as Myeloma or a few others.

Now Doc called today and said the levels, 0.3, were very low and he tends to think it was either a lab error, or because I was really sick when I took the test. I was super sick with some horrible flu-like problem. So, he told me not to worry and if the results from the new tests shows something, he and I will talk. At that point, I move to a oncologist and it creates a huge mess of tests, including a bone marrow biopsy. So, lets just pray this is nothing because as freaked out I am on this, I don't think I could handle going through the rest of these test to determine such heavy duty stuff.

I just want this all to go away, I so want it to go away. Ya know?

Hi There,
I see you haven't posted on here in a while. I seem to experience similar problems - did you fine some resolution in your journey?
JAK71