Getting the treatment we need

I am sorry, because I know I am repeating myself, but something has to be done for us cp patients, as of yesterday, I wrote letters to my Senator Barbra Milkulski, Paul Sarbanes, The Governor of Maryland who I am ashamed to say, that at this moment I cant remember his name, but when I wrote to him and the other 4 officials I wrote to, I got the names right.  I also looked up in the back of the dictionary to see how they should be addressed.

I cannot and will not keep quite anymore, not speaking up will never help any of us.  At this point I have not used the HealingWell.Com name as I am not sure how the admin feels about using the name of the HW name.  But this is not going to stop me,  I will write and I will write until I have run out of things to say on the subject.  I will be going after the Washington Post next, see if I can gather some interest on the subject of Chronic Pain, and the difficulties that go along with having this disease.

Ok, its after 3am now, I think I will try to lay down for awhile.

Take care all, hope everyone is feeling as well as they can.

Kathy/nini

Great going, Kathy!  I got your back, kiddo.  You're awesome and I envy your take-charge leadership attitude.  I wish there was something I could do, too.  Got any ideas?  I would love to help, but I'm way down here in Texas..

 Well I am so proud of my good friend, Kathy. 

Love you girl,

Mysti

 

In October our local newspaper had a four day series on chronic pain which was excellent.
I sent in my letter to the editor stating how much help we need. For example, if you have cancer, well there is no second judging you, you are given all the help you need immediately. Well chronic pain is just as serious and we need help too. To my disappointment they did not print my letter. I also went to my member of parliament for the area i lived in and sorry nothing can be done. Yeah right buddy, i bet if you had chronic pain i bet you would get the care you needed. Anyways, I tried, but it will take more than one person. The word has to get out there as to how much those of us with chronic pain suffer.

You go girl, Kathy. All the power to you.

Suzane

Kathy,

Good for you. I am all about good old fashioned letter writing. A well written letter to the right person can still be a very effective means. While I was getting the runaround on getting my SS Disability approved (about 2 years into it), I had had enough. I wrote a letter to my U.S. Senator (Lindsey Graham), and hand delivered it to his office here in Greenville, SC.
Over the course of the next 3 months, I got 4 or 5 personal replies from him. He looked into my case, and soon after, it was quickly approved. I have done stuff like that with other important issues in my life.

Good luck on your particular cause, you already have my support, if you need any help, please contact me.


David in SC