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endometriosis - not sure what else to do

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Chronic Pain
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Posted 12/19/2012 4:34 AM (GMT 0)
Hi, this is my first post in the chronic pain section

I have had severe cramping every month since I was 12, I'm 28 now. My doc says its probably endometriosis. Birth control pills are the only thing that I have found that works, unfortunately I have bad anxiety associated with taking meds, especially when its been confirmed that BCP increase your risk of heart attack and stroke. I am using Mirena IUD now. I was more comfortable with that because its progesterone only and carries less risk. But the instant I got it inserted I knew it was a mistake. i was having severe pain for the next 2 weeks straight. It did get better, but now 3 months later is incredibly painful again. i am getting it taken out as soon as I can get an appointment!

I am going to be elated to have this pain torture device removed, but now I will be back to my regular pains, which in hind sight I would prefer to the mirena pains, but really why do I have to live in pain at all!!!! My doc said the only other option besides going back on BCP is surgery to confirm that its endometriosis and then remove it. Has anyone had the surgery and found it was worth it? I mean, really if i'm too chicken to take pills, i'm not sure how my anxiety will fare with surgery, but I really can't take it anymore.
Posted 12/20/2012 12:20 AM (GMT 0)
The exploratory surgery is not to bad, if they find endo they will try to get as much out as possible, after the surgery the worst part for me was the gas that has to rise out of your body, they blow CO2 in your belly so they can see everything well. It takes a week or so to come out so your belly is distended and you have a achy feeling. You also may experience cramping after the surgery.
Your doctor should prescribe you a short term dose of oxycodone or hydrocodone after to help with this.
As for the mirena I am with you!! I had mine put in one year ago, it never helped my period it made it worse and I had one every month after. My rhuemy was so mad I even had it put in, he said my gyn should never have put this in me knowing I had RA because it says right on the mirena site should not be put in for people who have immunocomprimised systems.
Anyway a month ago I was in excrutiating pain , like when I had kidney stones. Went to the ER I had high BP, and blood in urine, they did a CT and said no stones but they wanted to do a ultrasound because I had abnormal fluid in my uterus. Turns out at some point they think within that last week my body rejected the mirena pushed it out I was having uterine contractions because of it and my uterus had alot of blood in it they said most likely from the mirena being forced out. IT was a mess and I would not recommend a mirena to anyone!!
I am back on BC pills now and happy to be
Posted 12/20/2012 7:32 PM (GMT 0)
Thanks for the info on the surgery, I will probably consider that. Sorry about your bad Mirena experience! This thing is just awful, it seems like there are more people who have a bad experience than a good one, doctors should recommend this more cautiously.
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