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got one to stump you guys lol

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Posted 6/20/2013 8:55 PM (GMT 0)
I went to see my Neurologist yesterday. I saw his NP for the first time. She is getting her PHD in study of the Autonomic Nervous System. She says that while she does not think that I have some type of really bad disorder, she thinks that my autonomic nervous system may be out of balance. She wants to do a test on me called and ANSAR. She said that what she studies I have probably never been told before because only about 6 places in the US do what she does. Has anyone heard anything about this? She says she can see if it we get it back in balance me being able to come off some of my meds.

This reminds me of this thing my psychiatrist wants me to try that my husband is totally against. It is called inflammation therapy. You take this certain low dose BP pill and some diff antibiotics for a couple years and it is supposed to almost rid you of diseases that start because of inflammation. My husband calls this quackary and won't even read the website. I personally do not think either are quackery. I think they must work for some people or they would not still be going.

Anyone know anything? You guys are the smartest people I know.
Posted 6/20/2013 9:05 PM (GMT 0)
I'll look up about that testing in just a few moments.....

But I have something called "dysautonomia" (which a couple other members on here, too, have... I also have POTS, which goes hand in hand w/ dysautonomia).... it's basically dysfunction of the autonomic nervous system.... Our ANS affects most systems of our body.... it's a very real disease, as I know all too well. Here's a couple of links that will give you more information:

www.dinet.org/

www.ndrf.org/

wheredidigetthislemon.blogspot.com/2008/06/what-is-dysautonomia-what-is-pots.html

So, I don't know about the testing.... like I said, will look it up here in a moment.... but I do know dysautonomia can cause many, many problems and is difficult to diagnose.

--Tina
Posted 6/20/2013 9:12 PM (GMT 0)
I just quickly did a search... search the ANSAR test on the links I gave you above. It does seem like one of the main tests used in diagnosing dysautonomia.

The way my dysautonomia is treated is system by system. I see a cardiologist for my heart issues/POTS. I see a pulmonologist for the respiratory component. A neurologist. An endocrinologist. Etc. Etc.

So.... not sure if that's what you have.... but just wanted to verify that it is a real illness that many have. Spend some time on those sites I gave you and you will see. Maybe you might find some information there to help you.

Re: the other thing you mentioned (inflammation and meds, etc) - I've never heard of that.... I, too, might be wary of that. My own immune system was further compromised by extended antibiotic use, because a doctor was doing something similar to what you mentioned. So I would definitely think long about doing that one.

Take care.... hope some of that helped! --Tina
Posted 6/20/2013 9:13 PM (GMT 0)
The only thing I can find online about it describes it as:

The autonomic nervous system testing measures the heart rate, respiration and blood pressure in sitting and standing. There are two breathing challenges during the test to measure the balance between the sympathetic and parasympathetic branches of the autonomic nervous system.


I guess it all depends on what they are saying they want to do to treat you to "get you back into balance"...

I certainly believe in and do non-medicinal things to help my pain like acupuncture, physical therapy, cognitive behavioral therapy, counseling, exercise, yoga, TENS unit, ice, heat, eating well, etc...All these things help me take the least amount of medication I can.

But if they are wanting you to buy their brand of expensive vitamins, foods, juices, or buy books or CDs that they author, or have all these other treatments that aren't covered by insurance...then this is when I would run the other direction...LOL

First thing, I would make sure that the actual test is covered under your insurance.

I am always open to new ways to work on my pain levels both physically and emotionally/mentally as long as it "makes sense" and there are studies done on treatments or I know of others who have actually been helped.

Keep us posted on everything!

Posted 6/20/2013 9:42 PM (GMT 0)
Best thing is to google it and see what comes up, if you feel uncomfortable with this doctor then do not continue with him/her. I one time went thru prolotherapy did one series of these injections had a very bad allergic reaction and never went back to that doctor, what a quack! just do not do prolotherapy...
Posted 6/21/2013 8:08 AM (GMT 0)
Another great way of making money for the doctors. I did some research on the ANSAR testing and it just leaves a bad taste in my mouth. I worked in the medical field for 15+ yr's and have never heard of it. This is just my opinion but I always look under the medical professional explanation of this test and it just keeps mentioning how much your medical practice can make in a month. (an extra $7000 plus)
Posted 6/21/2013 9:39 AM (GMT 0)
Remind your husband that thru the centuries of medicine things that are now successful treatments and even C-sections were quackery.

Im a firm believer that if there's low risk what's the harm?
Posted 6/22/2013 5:50 AM (GMT 0)
Thanks guys. My insurance covers it so there is no reason to not take the test and see what she recommends. I appreciate y'all.
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