So darn frustrated!

Hi guys! I don't post on here very often because I feel like I can't relate to most of what you guys are going thru. There are some of you that have it worse way off then me but I guess there is one thing we do share. I HURT every single frickin' day! Everything I deal with is in my signature btw.

But what gets me is this: I can not take anything besides Tylonel....that's it. Just Tylonel. Why? Because I am allergic or majorly intolerant of almost every pain med out there. Either I break out into hives, vomit my brains out or crash because it lowers my bp dangerously. Btw, if I ever get admitted to the hospital they give me morphine, but they have to keep the saline drip wide open to help my bp from crashing. Last time I had morphine my bp was 80/45....and then even after they discontinued the morphine, I couldn't stop vomiting.

I've been to specialist after specialist...pain clinics, had acupuncture, chiropractor, tried various supplements....you name it, I've tried it.

I guess I am just frustrated beyond belief right now because I had to go to urgent care today for what I thought was a stress fracture in my foot (x-rays can't determine) and the only thing they gave me was a Toradol shot. I'm not complaining because the Toradol shot did wonders for the swelling and pain in my foot, but the doctor was like, "If you can't take any of those things (she wanted to give me Tramadol but it lowers my bp AND makes me vomit and pass out), what do you normally rely on?"...Me: "Tylonel".

I guess I just needed to vent. I don't know why I posted on here honestly because I hardly ever get responses from you all. But like I said, I just wanted to vent to people that can understand what it's like to be in constant pain. Many of my friends don't understand and honestly I feel alone in this.

Thanks so much Vickie for responding. I guess I don't get much responses here is because just like the pain clinic I went to, they threw their hands up because they didn't know what to do with me. I'm an anomoly. But there is one thing I do take that sort of helps with some of my issues. I go in for Remicade infusions every 8 weeks. I don't know if you know what Remicade is, but it's basically a TNF blocker. It helps body wide inflammation. I still hurt every day but I guess it's to a lesser degree. But usually 6 weeks post Remi, all the aches and pains come back but my GI won't decrease the time in between infusions.

As for the Toradol, I have to have it injected. Oral anti-inflammatories give me intestinal bleeding. Life really would be so much easier if I could do oral anti-inflammatories.

But no, I've never tried low dose MS Contin. I'm thinking that if I can't even tolerate Tramadol that the docs won't try that?

I am sorry about you. Tylenol for me is like a candy, it makes absolutely nothing to release my pain.
Do Remi help you?. Perhaps prednisone does also . If your GI does not want to decrease the time Submit a complaint in his Hospital or whatever.

Seymour, Tylenol arthritis keeps the pain to a dull roar. But I'm never pain free. I had a Prometheus test. This determines how the body is handling and metabolizing the Remicade. I'm within normal limits. Btw, I had this test 7 weeks post Remi. Because of that test my insurance won't cover more frequent infusions nor does my Gi feel the need to.

Thanks Susie...crazy indeed!

Sorry to hear about your problems with pain meds! That sure makes things difficult. I can't take any of the NSAIDS, and I have a bad reaction to most narcotics--I get severe migraines. I do take Tramadol for pain daily, which is ok I guess. But next week i'm having a pretty big oral surgery (extraction of tooth and infection material, and then a bone graft implanted). And in several months (no date set yet), abdominal surgery to create an ostomy and probably remove some pieces, like my colon, etc. I don't know what I'm gonna do about pain control for those things.

Is there some way you could get a medical alert bracelet or something that explains your situation in case you are ever unable to tell someone?

I wish I had some advice for you...all I can say is that I'm sorry you have to deal with that. And I will keep you in my thoughts and prayers.

Hi, Sherry. Nice to hear from you, even if it'snot great news.

I don't tolerate most pain meds, or any other meds, well either. I need extra Zofran after any surgery because they insist on giving me things like fentanyl. When I've needed more than my tramadol, I need Zofran along with whatever is prescribed. I've taken my combo for months sometimes. The 4 mg dose is usually enough but only lasts 3-4 hours. The 8 mg dose lasts longer. There is a limit to what's allowed, but there are other meds for nausea they could prescribe.

If you don't want to wear a bracelet, at least make a card for your wallet. I print one business card size in bright yellow. Word has sideways print font so you an make a nice heading. I keep my "novel" (med history) on paper in my purse. A folded sheet of paper keeps nicely in a zip plastic pouch that a pillowcase came in. I've needed this information a few times for ambulance and ER.