Posted 9/3/2014 8:46 PM (GMT 0)
Wow. This is my third attempt to make a post. I have trouble doing this. But it is important. So I will keep trying.
I fell backwards on my head, neck, and shoulders over four years ago. I was diagnosed with a traumatic brain injury. But severe severe pain came and doctors (so many I've lost count / 20+) were confused because nothing showed up on scans as to why I would have pain. My symptoms were / are severe. Extreme dizziness, and major issues after any kind of physical activity (use of arms and legs), and if my head was not supported - I would have severe inflation in back of throat, sometimes stop breathing, numbness in limbs, eventually bloating from extreme pain, muscle spasms, feet / toes curling, vomiting from pain levels, just so extreme - and years of this, pursuing every option possible, wholistic and conventional medical, the situation only worsened until by last year I was in full states of paralysis (which was a nice relief from pain, Altho the body was dying), and I had lost control of bowels and ability to talk or walk.
I had been diagnosed with so many things, it was amazing that every doctor thought he or she knew exactly what was wrong. Oh! It's a sleeping disorder! Or it's psychological! Or it's multiple Schlorosis!
Finally this year I was diagnosed with the right issue, Venous Compression. It's where the bones structure is compromising the blood flow (and other important fluids). I have been undergoing aggressive treatments with an osteopathic neurologist. After six months of treatments, it is helping, tho it is still a long way, well maybe by one year mark we will see the full recovery (what ever that means for me, as we know after this, I will never be what I was before injury!)
I am full of faith and positivity. I am in severe severe pain even still, but it is tremendously better than last year.
I was in my early 30s when I fell, and now I am almost forty! I was a professional singer and I hope to get back into that some day. But it still seems like miracles are needed to get there. That is where my faith comes in. And I am grateful to reach out to all of you.
I've found that being disabled and in pain is very isolating and many people cannot understand what it is like. People often either gawk or look the other way (iF I am ever out in public which rarely happens only for medical or lawyer issues). It is amazing the people who do have compassion usually have a story to tell about how they or someone close to them had a disabling experience. In the U.S., I'm afraid it's the disabled people, the ones in the greatest need, that are being left behind. I am lucky because I have faith and my spirit is strong.
From my Reclined Resting Status,
Warmest Wishes to you All.