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Monday check in on Tuesday! !

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Posted 9/9/2014 8:58 AM (GMT 0)
Yes Susie and I forgot yet again! ! Sorry guys, going to have to set an alarm or something here! !

This is check in and should have been yesterday but for all you new folks this is supposed to be where we meet on Monday and check-in!! Tell us about your weekend and your week ahead. Tests, procedures, new appointment or anything else you wish to share.

If you or someone you know needs HW prayers or thoughts this is the place to ask.

Welcome to all our new members and hello to all the old.

Hoping everyone had a great weekend and low pain days ahead for the week.

Prayers and thoughts going out to the families of the hostages who lost their lives and those whose loved ones still being held. Prayers as well to our military servicemen that they find these evil folks and stop these injustices and return safely home to their families. Thanks to them for their service an sacrifices.

Hope everyone has a great HW day! !
Posted 9/9/2014 9:14 AM (GMT 0)
I've had my pc confiscated (in a friendly) way for a few days as Hubby had The Boys over for a weekend of gaming, so I haven't been able to check in. It was a good time for all as they enjoy spoiling me and cook for me and always leave the house and kitchen cleaner than when they arrive.

Had my appt with a new Derm yesterday for a skin cancer screening, and I passed. Yipee. I'm getting the works checked now. Just been dawdling on the colonoscopy, but it'll happen.

Back's been cranky, can't sleep.

Get to see my new awesome therapist twice this week....once this morning, again on Thursday.

My PT is running out soon (I'm going once a week), and then I'll be paying out of pocket. Not looking forward to that too much.

Oh, and thanks to Susie I've been craving, and eating, a lot of potatoes. :)












M.
Posted 9/9/2014 11:38 AM (GMT 0)
I have no appointments or anything this week, although I'm trying to get in to a new internist. Based on the advice from you all (thanks!) I'm calling the university hospital today and try to get the process started to build a team there for me. I feel a small sense of hope about that, because this week and last my depression has reared it's ugly head once again. I need to get out in the sunshine more often for sure; where I live it only lasts a few months so we really need to take advantage of it when the sun shines. I've been having more fatigue than normal lately and have been shuffling things around at work so that I can get naps, sometimes three per day and I'm still exhausted by 8.
Posted 9/9/2014 1:10 PM (GMT 0)
Seeing neurosurgeon today for continuing pain for over a year. The rehab doc didn't do anything except prescribe PT which doesn't work for nerve pain. She just comes in with a big grin. listens to complaints and then sends me out with a new appointment.

Why does the trapezius cause so much pain after ACDF? I've read many complaints, but no cures. My muscle pain is on the opposite side from the surgery. Both the cervical and thoracic parts spasm and hurt 24/7. It causes a headache and shoulder and back pain.

Why aren't we told what to expect long term, even after many visits? We should be fighting osteoporosis which is supposed to be universal within a year. And what's this pain in the bicep and the increasing numbness and spasticity in my hand? Nobody's discussed any of the complications I've had. Thank goodness for the 'net.
Posted 9/9/2014 2:23 PM (GMT 0)
Good Tuesday Morning,

I have 4 appointments this week, but the best thing on the calendar is Grandparents Day Lunch at school with 2 of my grand darlings-at the same time. It's our first visit to their new school, so that's all exciting.

It's mammo day for me. That day always makes me a little nervous. I've been cancer free over a decade, had a very good prognosis from the beginning. It will be good to see that same surgeon and be told See you next year!
Posted 9/9/2014 2:36 PM (GMT 0)
Next Wednesday is my PM appointment and I have to decide on whether to stick with the Xartemis XR or try something else. Xartemis XR is daily 7.5 Oxycodone / 325 Acetametaphine 24 hour extended relief medication that I take 2 in the morning and 2 in the afternoon. Though I cannot feel the affect I could only tell that I've been more active this month. Not sure what this medication will cost me going forward since the first one was free.

If my insurance is still giving me crap on purchasing Nucynta this month then I'll have to find an equivalent extended medication. I'm so annoyed of being questioned on medication. Like I really want to take meds and destroy my body. I'm just trying to function, hold down an awesome job and be a great Dad to my boys. Can't do that without managing my pain monthly.
Posted 9/9/2014 6:19 PM (GMT 0)
I had my Med. Oncologist appt. Monday and all went great, no new metasteses. Last week I had a CT and Bone scan along with a big blood work up so that was the day of reckoning. My QOL continues to be as good as can be hoped for so we have forestalled any stopgap treatments until new mets do show.

Some of you may wonder why I post on this channel as well as the Prostate Cancer forum, the main reason is that I already had CP before the cancer hit but it wasn't so bad for me to even consider meds as I have a high tolerance for pain. However, the hormone therapy I am given every 4 months has the side effect of aggravating the existing OA as well as adding a few new chronic pains and fatigue. This forum covers my problems so much better than the PC banner that I decided to be a two forum guy. I hope that all had the least of pain and loads of fun this past weekend . . . Q
Posted 9/9/2014 6:38 PM (GMT 0)
Well all in all everyone seems to have gotten petty good reports. Alcie I don't have a clue other than most wouldn't have the surgery if we knew what was coming and that would mean some surgeons that would be driving fords instead of jaguars?

Keep the good tests rolling and Quincy we don't mind at all and I certainly pray for the day you will never have to return to PC.
Posted 9/9/2014 7:00 PM (GMT 0)
Alcie,

Just thinking out loud, but when my neck and shoulder flare up, there's usually a pulling/burning sensation down my bicep as well, right down my arm. My trap can get hard with lumps that can be palpated, and spike like referred pain up my neck into the back of my scalp.

If I didn't experience these symptoms all together, I would never would have thought there could be a single connection. But yep, it happens....(sigh)











M.
Posted 9/9/2014 8:57 PM (GMT 0)
On my way home after hearing those wonderful words, See you next year!

My best to everyone. Hope you also hear some good news
Posted 9/10/2014 1:01 AM (GMT 0)
That is some more great news Abilene! !
Posted 9/10/2014 6:16 PM (GMT 0)
Sorry for appearing GOOFY for the "check-in"...You made me feel much better about myself=)

I saw NP yesterday for continued shingles pain in eye/ear/face.  She told me what I had already "googled" but didn't want to accept...This could last for up to a year and beyond.  She says eventually it will get better, but I think ahe couldn't bear to tell me "this is as good as it gets".  I'm back on anti-virals for 2 months, prescribed drops for eye and ear (which pharmacy had to order).

My pre-shingles pain continues to be a constant companion, though I am in PM.  I put boots on the ground and wade through the...um...er...S-S-Stella Lillies of day to day existence.

I feel empathy for those who are suffering and/or facing procedures and appointments.  I've come to realize that CP is sadly a condition in which "If you're not in the midst of a storm, there's either one coming or one that has just passed".

I am happy for those of you who have GREAT test results, or at least not "as bad as you thought". I am in awe of those who manage to see the sunshine through the clouds.  KUDOS=)

I'm confused by something, as I read the check-in posts (late and clueless on Wednesday at noon...duh).  Quincy...why would you NOT be welcome on the chronic pain forum?  IMO You bring a wealth of knowledge and experience to the conversation.  Not only do you contribute to the medical aspect of CP, you also provide a light-heartedness that tickles my funny bone.  I feel that if we can LAUGH at "it", perhaps we can SURVIVE "it".  My disease is not cancer, but the mutant cells act like cancer.  The treatments have destroyed my bone mass and caused crippling osteoarthritis.  Even my pain doctor said, and I quote verbatim "Pain is pain".  Please stay, Q=) 

Posted 9/11/2014 1:56 AM (GMT 0)
Yay Abilene for your clean bill of health/mammogram news! That us just wonderful news!

Quincy! I am so glad that you're a "two forum guy"! I have enjoyed your posts, and I would have never met you if you were a "one forum guy"!

I hope everyone has the smallest amount if pain this week, and in every week. I am so well aware of how chronic pain shadows everything we all do, or attempt to do. I want to say again how thankful I am to this forum of wonderful folks for all the support and genuine sentiment that I see expressed here every single day for each other.

I am feeling stronger everyday since my c-spine surgery done 8/21/14. As most of you have seen, one of my worst faults is my lack of patience. I'm working on that! I have some strong pain tonight, and it feels like some of my original pain. I am trying not to freak out about it, and just be still tomorrow. Complete inactivity on the couch. I learned that approach right here on this forum.

Thanks so much!
Posted 9/11/2014 6:40 AM (GMT 0)
Just wanted to add my $0.02 in to Abilene. Yay, that's terrific news!

I'm very happy for you!! Happy Dance!!












M.
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