Posted 11/2/2014 8:04 PM (GMT 0)
Hi Alcie,
Thanks for the info and support. Sorry you are dealing with so much stuff!!
I am finding that the Voltaren Gel doesn't do much of anything for me. The first time I used it, I thought it was great. Maybe I just massaged the right spot or twisted just right to stop the pain for a while. Not really any relief from it since then. But gonna try it for a couple weeks before making a final decision on it. Really want it to help!! Can't take oral NSAIDs or pred. and really don't want to increase other pain meds. Stupid pain!!
Cannot wait to get surgery scheduled. I see the third doc (the one who's gonna do the bladder sling) on Weds. Then have to wait for the 3 docs to develop a plan and figure out schedules, etc. Just want it to happen NOW. Had to do a "bowel purge" Friday. (Lots of laxatives plus drinking colonoscopy prep every 10-14 days). Horrible for anyone to do once. But 2-3 times a month for the past year for someone with bowel incontinence and no sensation (so NO warning of when something might happen) makes it just awful. I don't really even mind drinking the stuff anymore, and have gotten used to the pain (still sucks, but i know what to expect with that part), but it's gotten so unpredictable. My body is so screwed up. Sometimes I go for weeks w/ no hint of a BM, then one random day I will have 15. And with the purge, used to be "normal", like I knew when it was over. Not anymore. It's like there's stuff hiding somewhere in my colon and a day or longer after I think it's over with, SURPRISE, there's more!! Leaves me housebound and hungry and depressed. While the physical part of my problem may not be fatal, the mental part very well could be if I do not get this surgery. For now, just hanging on to the hope that surgery will happen sometime in the next few months.
Sorry i got way off track from the voltaren topic. Guess I needed to vent a bit.
Question: (not sure what your situation was) but, w/ the hysto, did you have trouble w/ hormone stuff after? Did you do HRT? My urogyn. wants me to start HRT immediately after surgery and maybe stay on it for life. I am 36.
Also, I do go on the ostomy forum here...very helpful, even just to read. Plus, i got connected up with a mentor on MentorOstomy.org a new site for matching people who've been thru surgery to those considering it or currently going thru it. Ended up in contact w/ UCWhat? as my mentor. Small world. She's amazing. And I guess there is a sorta support group thru my hospital, but not a traditional "support group". More like they get together and do fun stuff, talk a bit about medical junk, but mostly just a way to know you aren't alone and can meet others with the same stuff and just live life. Then they often exchange phone #'s or whatever and do more of the support stuff individually or in smaller groups. Surgeon said the ostomy support group that meets at the hospital generally consists of a pretty old group of people, and I probably wouldn't want to even check that out cuz I wouldn't relate and they tend to complain a lot. Not a real positive experience for someone w/ a new ostomy!
Thanks for your advice. Certainly will call the companies, etc. Appreciate it. And thanks for listening.