Anyone knows about ACNES, abdominal cutaneous nerve entrapment

Hey UpJ sorry your still dealing with the pain issues and not getting a definitive answer as to what and why. Where did you get the idea it's possibly ACNES? Are you relying mainly on internet searches for information? Has a Dr mentioned this to you? I can't recall if you have been seen at one of the more prominent Teaching hospitals but that's about your best bet at this point because once you have exhausted the regular circuits those are the "go to" places for rare disorders and outside the box thinking.

As for Carnet tests and understanding how it works you have to look at the anatomy of those muscles in the area and once you do it makes perfect sense how it could work. Your thinking in terms of direct pressure on the nerve by the strongest point of contraction and it works more by a ripple effect,you tense,muscle contracts,you relax muscle relaxes throwing out a ripple effect to the distal end of whatever point of attachment is. Lol, dangerous game using internet searches for most,the sites are designed for lay folks to understand in simplest of terms so its black or white no shades of gray and medicine is no more B&W then the Anatomy and physiology of the human body. Without all the colors B&W can scare the daylights out of you.

As for the word Anesthesia your thinking in terms of medication only and its likely they mean as a broad term or state of being,like numb. Nerve ablation is considered a "permanent anesthetic state" and most of us know thats not necessarily so,we wish!!

Having recurring local anesthesia is considered " permanent", injection with a LA local med such as Marcaine at scheduled points along the way is a usual treatment for ACNES and other nerve entrapment situations. In case your not aware there are LA and SA anesthetics unfortunately none are permanent in the sense that one injection will last the life span it would take repetitive injections to accomplish such as a epidural cath placement which is a very last resort by the way,to cause an epidural block. Sounds great right? Not so much if you think in terms of all the wonders of the human body we don't know,can't control. The effects are not selective in the process of a epidural targeting a specific nerve but a specific nerve pathway and thats going to bring about losses of all sensory perception along the path. What that would mean simply is to attempt to block lower right quadrant nerves your going to likely block the nerves that tell you your bladder is full bringing incontinence,loss of muscle control to the upper pelvis region and thigh,possibly most use of the leg and not many people are desperate enough to give up all that for pain relief for a small area of their side.

nvrthesame, Im from Toronto Canada, all the hospitals here that Ive been to are like community teaching, research, hospitals. The only problem is its just hard to get anybody to dedicate their time to diagnose me, all the always say is we are sorry we dont have diagnosis for you( cant refer me to anyone else, can't do surgery, no other block besides painful injections in my stomach) and just say I should learn to live with this and try CBT therapy.

As for nerve entrapment, Ive read bunch of articles( also once posted in my earlier threads by Alcie) about abdominal wall pain, and usually they mention nerve entrapment as cause for abdominal wall pain. And I am very sure my pain is abdominal wall. For a long time I was unaware of this, but after getting sick of this pain, I started to mess around, play with that pain area, and now I feel certain its abdominal wall.

I had an appoinment today for nerve block at a hospital linked pain clinic, my last hope in a way you can say. I feel really down because it didnt go the way I was I hoping. The anesthesioligists said he was going to cover all the nerves in that area ( my right upper quadrant where I have pain), the blocks he mentioned was TAP block( transvere abdominis plane) and rectus sheath block. This was way more painful than my previous injections. After the blocks, the pain was same, when I pick my skin I felt more of the same pain.

The anesthesiologists said they got all the nerves, but I don't get it, if they got the nerves, shouldnt my pain have been reduced( even if I take pain part out) , shouldn't I have felt numb in that area, or at least to some degree, lack of feeling, touch compared to rest of my body, since all those nerves are sensory? But whenever I touched, pressed, poke that area ( at different times), it felt the same as always. I dont mean to say they did it wrong because I had the injections two, three times before from different doctors, and even then my skin, subcutaneous tissues, did not feel numb. I would think it should alter my feeling in that area, but it never does. It doesnt affact any sensory feeling on my side, and thats why I feel my pain is always there. I have no clue where to go from here.
But thanks both of you for your ideas.

Post Edited (upjo) : 3/31/2015 3:22:13 PM (GMT-6)