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Polymyalgia Rheumatica questions

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Chronic Pain
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Posted 4/28/2015 6:17 PM (GMT 0)
I was diagnosed with PR about four years ago, but suffered with it for close to a year before diagnosis.  I have read it usually just goes away by four years.  Would this mean that I have most likely been misdiagnosed?

I have been on predisone three times.  The first two times, I didn't have any pain for several months after discontinuing the prednisone.  But this time, my pain began again the very day after I tapered and finished with it.  I have done well on prednisone, no noticeable side effects.

It seems that my pain flares up when I am under stress.  Does anyone else have that experience?  But since I am stressed by nature it makes it difficult.  I am thinking of starting a journal recounting when I am in pain, what I have recently eaten, what I've taken, all other seemingly noteworthy items in my life, just to see if I can detect a pattern.  Does anyone think that would be likely to uncover anything useful?  Any advice I can get I appreciate.  Thanks.

Posted 4/29/2015 12:28 PM (GMT 0)
Hello, first write this down and talk about this concern with your doctor. Your doctor might give you better advise on what to expect.
Second, your a individual and therefore you might not follow the guidelines of what should you expect, maybe some people do see a remission in 4 years while others might take longer. An ailment doesn 't alway effect everyone the same. But your among others now and most of us here don 't always have diseases that follow a certain guideline...hopefully, you will go into remission soon.
Third you could try posting this question in the RA forum for more help.
And its good you've read up on your disease/ailment and that should be your starting point when you right up questions for your doctor.
Many well wishes and Hello!
This is a great forum and others will come by with more advise for you...
With having a form of RA, when you have a symptom free peroid its usually referred to as a remission from disease activity...
Nice to meet you, hope your doing better soon...
Posted 4/29/2015 12:28 PM (GMT 0)
Hello Bridget. Welcome to the forum. I am not familiar with your diagnosis and cannot comment on what would be helpful. Others are sure to post replies. Have you looked at the forum listings to see if there is another relatable forum? I myself post here and in the depression forum. Casting a wider net may catch more fish.
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