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Crohn's Disease
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Posted 12/31/2007 1:13 PM (GMT 0)
sad  I have been trying to manage my flare first with ultram, then moved up to darvocet and am now trying vicoden. It just takes the edge off and leaves me sufficiently miserable and unable to sleep. Would love percocet but dont think my gi would ever give it to me. Am struggling right now as to whether or not to go back on the prednisone merry-go-round. really really dont want to but the constant pain, night sweats and diarrhea are killing me.. plus it makes me too sad when my 3 yr old keeps asking me if my tummy still hurts and why? wish i could answer that myself! i dont know if popping vicoden and darvocet are a better alternative than the pred joy. how do you know when to start it again? i had a brief period of 4-5 days when things really improved and now have backslid dramatically. its not so much the diarrhea as the pain. do the pain meds mess with your stool and the pain involved with passing as well? i keep telling myself that it is the holidays and all the rich food and have been doing rice and bread for a few days now. any advice? my last csope was a year ago after being on pred 45 mg for 3 mos and showed mild inflammation spread throughout the colon.. i have decided that i will insist that all future csopes be done when i am so sick and not a couple of mos after being on meds and when things are feeling better- would love to know right now what is going on inside that causes all this pain. any advice anyone? my gi is very very conservative and only now believes i have crohns and not just ibs.
Posted 12/31/2007 2:25 PM (GMT 0)
Pain is a symptom of the disease. Using pain meds, while giving you the ability to cope, does not reduce inflammation or the disease process. You should be under a GI's care and on medications of some type, whether it's prednisone or something else, especially if you're having so much pain that you need meds.
Posted 12/31/2007 3:29 PM (GMT 0)
i am under a gi' s care- am currently taking colazaal 9 a day and he is the one who came up with my pain control so he is aware of that as well. i see your point about the inflammation though. just keep thinking that if i restrict my diet enough i can get this under control and wont have to go back on pred.

Posted 12/31/2007 4:27 PM (GMT 0)

Valorie

Hello and I am sorry your going through this flare up. I think the pain meds are ok but they are for pain only and will not help with the inflammation or whatever is going on inside you. Continuing to go up to a stronger narcotic is not going to be the answer IMHO.

The narcotics can and often do cause constipation.  You stated you had a brief period of 4-5 days when things improved, may have been the side effect of narcotics but just a guess.

Never good when you start popping narcotics in place of getting to the real root of your prolbem.  I would kindly suggest you see your GI and look at your next option.

Bless you and keep on posting.

Kitt

Posted 12/31/2007 4:37 PM (GMT 0)
thank you for all the support- i always wait to the last minute and try and be my own dr.. i just tried to call my gi and of course he is on vacation until wednesday- will call then and let him know what is up.. if need be, have some pred here that i can start.. this is the best site ever,, am so grateful that it and all of you are here.. you are invaluable and a true godsend
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