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HUMAN FECAL INFUSION

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Posted 3/26/2008 5:40 AM (GMT 0)
Hey guys,

I've been doing a lot of reading about this particular procedure (human fecal infusion) and there are so many amazing results. Has anybody had this done, ? From what I understand, they perform in Australia, but I am very interested in having it done, and cannot travel so far. Does anyone know of any clinics and/or facilities that perform this in the US? Any information, would be greatly appreciated. Thanks so much:)

Posted 3/26/2008 9:12 AM (GMT 0)
WHAT???? your kidding right?
Posted 3/26/2008 9:37 AM (GMT 0)
That sounds totally gross!!!!!!!!!!!!!!!!!!!!
Posted 3/26/2008 10:03 AM (GMT 0)
Hi Angie
I am from New Zealand and a friend of mine is undergoing this treatment. I have researched it and it seems they have had some amazing results. I am actually having a consultation tomorrow to see if I can be accepted for this treatment too.

The treatment is totally naturally, fully screened and the results are pretty convincing so what the heck, what have I got to lose?

Here is a link to the hospital doing this research and also a link to Professor Tom Borody who is leading the research:


http://www.cdd.com.au/html/hospital/clinicalstaff/borody.html
http://www.cdd.com.au

Good luck in finding someone to help in the States and I'll let you know how I go.

[*I just activated the URL - C2]

Post Edited By Moderator (CrohnieToo) : 3/27/2008 11:44:57 PM (GMT-6)

Posted 3/26/2008 10:11 AM (GMT 0)
But what is it? How does it work? And what's the rationale behind it?

Ivy, in Australia, and intrigued.
Posted 3/26/2008 10:47 AM (GMT 0)
There are only a few docs here in the US that perform it. It is usually a treatment for c.difficile that will not go away with conventional treatments. The theory is that they test your donor for all types of diseases (from their stool). You take 2 weeks of vanco to clean out your bowel and then you infuse your donors stool via enema and replace the microbes in your system with theirs. Dr. Borody is the leader in this. He is also a pioneer in the triple antibiotic treatment for crohns (MAP). I wasn't aware that the stool transplant was a cure for crohn's only c.dif though. It has a99% cure rate for c.diff---don't know about crohns though.

Chris
Posted 3/26/2008 12:15 PM (GMT 0)
Wow...
Posted 3/26/2008 12:16 PM (GMT 0)
I have never heard of this but am interested in learning more. I myself wouldn't go through it just b/c I am so skeptical of things like that but it sounds really interesting. I think if I would be more apt to go to the Mayo Clinic to see what they have to say before I did anything that drastic...it sounds scary to me! I hope it works for y'all! Let us know =) I'll be thinking about ya ;)
Posted 3/26/2008 3:16 PM (GMT 0)
i've heard of this.   

Does anyone know a) the success rate in curing and b) what us doctors perform this?   

 

Posted 3/26/2008 4:18 PM (GMT 0)
Dr. Brandt at Montifiore in Bronx does this but only for c.difficile. I don't know anyone in the US who does this for crohn's disease thoug.
Posted 3/26/2008 7:07 PM (GMT 0)

The following info, talking about its use in UC, is from http://en.wikipedia.org/wiki/Fecal_bacteriotherapy  

"While its effects on ulcerative colitis have not yet been adequately researched, small case series suggest it has positive effects. A recent article by Borody et al which details 6 cases of severe chronic ulcerative colitis treated using Fecal bacteriotherapy suggests that the procedure may be extremely successful in these cases as well. Complete reversal of symptoms was achieved in all patients by 4 months post-HPI, by which time all other UC medications had been ceased. At 1 to 13 years post-HPI and without any UC medication, there was no clinical, colonoscopic, or histologic evidence of UC in any patient[8]. The Sydney group also reports a case of presumed sclerosing cholangitis, a disease frequently associated with IBD, which recovered fully after the treatment..."

Posted 3/27/2008 3:09 AM (GMT 0)
I've heard about this before.

I have to ask this....so how much would I pay for getting someone else's poop! And would insurance actually pay for this! I would like to see the diagnostic procedure code on that one! If all else fails and it is successful, I might and I mean I might, consider it. Do let us know how this works out for any of you that try it.
Posted 3/27/2008 3:28 AM (GMT 0)
dude, i think i'll just stick to what i did and detox myself for 4 months with no grains or sugars and reseed with probiotics. i can handle getting a blood transfusion or even an organ, but transfusing a bowel movement is where i have to draw the line. perhaps it is a mental thing for me. fantastic they are getting results with this. good to see something going on that is not drug related. best of luck for those who are doing this.
Posted 3/27/2008 3:37 AM (GMT 0)
I like your style Harry.The way you express yourself makes sense.

One guy on my IBS forum got WORST with fecal transfusion.I'm done with that.
To me when someone get worst it is a red flag.
Posted 3/27/2008 1:59 PM (GMT 0)
Spas,


What do you mean?  What happened to the guy? 

Posted 3/27/2008 3:28 PM (GMT 0)
He did it for IBS and got his bloating worst apparently.Sorry i don't have much detail.
Posted 3/27/2008 5:39 PM (GMT 0)
They talked about this a LOT on the UC forum. Run a search there.
Posted 3/27/2008 5:43 PM (GMT 0)
Here is one from UC
https://www.healingwell.com/community/default.aspx?f=38&m=1068548&p=1 
 
Ill edit this when I find the second.

Edit: Here is another one that links within that to two more

https://www.healingwell.com/community/default.aspx?f=38&m=1048309

Personally - I would have to be a lot more desperate before I got to this point.  Ive been in remission for sometime though so my perspective might be different if I were flaring.

Posted 3/27/2008 5:48 PM (GMT 0)
My crohnie daughter had a friend online who tried this with her infant's pooh. Her rationale was that it has lots less of the bad flora and just the good guys. She said she had a great improvement in her symptoms then she disappeared from the forum after a few months. Don't know if she got all better and didn't want to post anymore or if she was just a busy new mommy. Anyway, she used baby pooh... Who knew that stuff could be good for something? LOL!
Posted 3/27/2008 8:36 PM (GMT 0)
OK, I'm not doubting there are good results......I just want to know WHO sits around and THINKS UP THIS STUFF???

I just can't imagine a situation where I would be sitting around, most likely on the potty, and then it strikes me - "I GOT IT, let's take pooh out of one person and put it into someone else".

Again, if it works, great. I just don't have the imagination these researchers do I guess.
Posted 3/28/2008 12:43 AM (GMT 0)
i dont know who thinks this kind of stuff up, but i'll tell, in college i studied engineering and most of my epiphanies were when i was on the can. irony?
Posted 3/28/2008 1:52 AM (GMT 0)
Not at all ironic Harry...did you ever see the episode of "Scrubs" where the janitor installs a throne on the roof and attempts to keep it from his colleagues? Everyone finds out about it and each person has there own "epiphanany" while on the roof. What I want to know is do you still have them now? I would imagine you are not alone in this group on this one considering all the time we spend in there on any given day!
Posted 3/28/2008 2:09 AM (GMT 0)
UKpup,

Although it definitely seems bizarre at first glance, this concept is well-founded.  In trying to understand IBD, researchers have been doing similar testing in mice/rats for years now (putting poo from a diseased mouse into a healthy one to see what happens, and vice versa, and also altering the mice genes and then doing the same tests again).  These tests have yielded results consistent with the IBD model of the disease being a combination of genetics and the makeup of gut flora.  So it's not too surprising to see that some maverick doctors out there are trying similar experiments on people.

Posted 3/28/2008 5:58 AM (GMT 0)
So putting poo from a disease mouse into a healthy one gave the healthy one the disease as well as vice versa??

That might make this research even MORE interesting! I guess raising and showing dogs for 30 years gave me a different perspective on poo.

However, the part I'm really leery about is that its coming from another person. I've got enough problems of my own, I don't want someone elses. Some things they don't know to test for yet (think HIV years ago in the blood supply) and if no symptoms have appeared the person is healthy, right? Not necessarily.

I've been intrigued by the research being done in Israel utilizing biopsies from our own gut to make a personalized autologus vaccine for our own Crohn's.

Years ago my hubby broke out in boils - all over - they thought at first diabetes, then they tucked him into isolation and "suited up" before they would go anywhere near him. There were way too many to lance. They ended up bringing some doctors down from Mass General who took samples from the boils, went back to Boston, made a vaccine, came back and gave him some and the boils cleared up and he's never had another.

When a particular kennel was having severe conception problems of long duration it was suggested that samples be taken from each "female dog" *sigh* (since I can't use proper terminology here) and an autogenous bacterin produced to treat them with.

They've been doing this for years in cattle for mastitis.

Hey, they laughed at and derided the guy who discovered H. pylori, remember?

Posted 3/28/2008 3:49 PM (GMT 0)
I would absolutely be willing to try this procedure for my CD if the research indicates such a high success rate of total remission. Like Jeannie 143's friend who used her infant baby's poo, I would absolutely use the poo from an infant to be infused into me so long as it's been tested and it's safe. And if it's proven to work heck yea!!

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