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migraines and crohns?

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Crohn's Disease
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Posted 4/18/2008 2:57 AM (GMT 0)
Anybody else have them...seen any research about this?
Posted 4/18/2008 3:15 AM (GMT 0)
I have migranes but a lot of ppl in my family do.  It would be an interesting study to see if there's a link somehow.
Posted 4/18/2008 3:53 AM (GMT 0)
Interestingly, after having a history of migraines from childhood on up, they stopped almost entirely after my crohn's/colitis diagnosis. Now I only get maybe one per year.
Posted 4/18/2008 5:17 AM (GMT 0)
I had them before my Dx and have them now from the Imuran. Usually take it at night so I can advert this. It used to be I was just light sensitive, couldn't handle certain perfumes and car exhaust were my triggers. Now, within the last couple of months my migraines have changed to cluster migraines. Those are freaky cause they will flare up for a few days and I get a headache exactly at 5:00pm every time it happens. (?)
I also get hormonal migraines 3 days prior to the week from H#@L!
Posted 4/18/2008 6:18 AM (GMT 0)
I've had migraines from the age of about 6 to present day....I'm 51 now. Like Broomhilda, mine came in clusters, lasting days on end. When I was pregnant for my first child at 31, they were absolutely unrelenting..I would lie on my bed with cold packs on my head and cry..(didn't take anything for them while pregnant). I was diagnosed with CD around the same time as I had my first baby,but my GI believes I'd already had CD for at least 10 years by then.As a child, I remember always having a lot of nausea and vomiting, and constant tummy aches along with the migraines.
The migraines eased a bit for about a period of 5 years or so, coincidently so did the CD....but now everything is back with a vengeance. I'd love to know if there is a connection.!
Posted 4/18/2008 7:14 AM (GMT 0)
Migraines are my nightmare.....  I suffer very often with migraines, and they last 2-3 days.  Sometimes I can handle them, sometimes I have to lie on my bed, no lights, no sounds, no voices, and try to sleep.  When this gets out of control, I give in and take an NSAID pill (called Mesulid here in Greece), which I know is bad for my gut, but it's the only medicine that can ease my pain.

For me my migraines are much more debilitating than my Crohns, because at least when I have a Crohns flare up, I can work!!  When I have a migraine I can't do anything.

What I found out that helps me is the following:

1) The key is to "catch" it before it gets worse, meaning when I wake up in the morning with a headache, I know I have to take something before the symptoms get out of control.

2) Sleeping is a great medicine, at least for me, it eases the symptoms.

4) Hot shower / bath. It relaxes all the muscles, including your head.

3) Massage.  When having a migraine or a headache, ask somebody to give you a massage around the shoulders or your neck, it eases the symptoms, because it's like you "draw" blood in another area than your head, giving your head a chance to relax from the pressure.

The combination that works for me is: first I take a warm shower.  Then I take an NSAID pill, and go to sleep.

Maybe my english is not so good, but I really hope you understood what I meant!

Christina

Posted 4/18/2008 10:27 AM (GMT 0)
I too have always had them
Posted 4/18/2008 1:56 PM (GMT 0)
I just started getting migraines the last couple months. I was kinda told it was stress from being sick.... I take my pill for it & it helps right away. I couldn't imagine 2-3 days!
Posted 4/18/2008 10:29 PM (GMT 0)
My migraines started right around the same time my crohns symptoms started or maybe a bit before.  However, I was diagnosed with chronic daily headache syndrome or something like that.  I was diagnosed with that and have had that under control...I do wonder if they are related and plan to ask my neurologist if I can be taken off my meds...afterall I will have to go off of it when I want to get pregnant.

Posted 4/18/2008 11:22 PM (GMT 0)
Hi Navy, I've always had migraines. The horrible throwing up every 5 minute ones. They started when I was about 16, time I reached
40, they started to subside. BUT, every time I get near a hospital & IV meds, they comeback. I don't go in hospital now without my
Imitrex pen. That stuff is a miracle.......
Posted 4/19/2008 2:24 AM (GMT 0)
Mel05-Cronic daily migraines? I refer to that as "work". I have a high stress job and I'm afraid to leave it as I work a flex schedule which is great for my CD. Most likely why I've developed the 5pm cluster migraine to :)
Posted 4/19/2008 3:19 AM (GMT 0)
i have them too and they run in the family. mine tend to be more common around myperiod. In the pas cpl years I can only recall 1 so bad that I wasnt able to function. My neuro doc did send me for a MRI of my brain to r/o them being caused by the CD. I found since being off of ASA and remicade that i get fewer migraines and was able to lower my elavil from 100mg to 25mg. I dont get the headache/migraine issues from humira
Posted 4/19/2008 4:14 PM (GMT 0)
broomhilda-I am a kindergarten teacher...I do believe some of it was stress.  I also believe it is triggered by the lights in my school.   because it's not as bad at home or in the summer but the meds help tremendously.  I'm a little nervous about what will happen when I go off to get pregnant, but then again the hormones for  my period won't play into that either because it gets really bad then, too.  We'll see...have to wait for docs approval to get pregnant...will see him in May.

Posted 4/19/2008 5:51 PM (GMT 0)
No migraines thank goodness...it's bad enough when sometimes I'm pushing hard to get a bm through I get a dull headache and usually a stuffy nose (I have some mild sinus issues).

I feel for you guys that suffer with migraines, having a regular headache is bad enough, I couldn't even (nor do I want to) imagine what a migraine would be like...I'm such a baby though, so I likely wouldn't live through one if I ever had one.

:)
Posted 4/20/2008 12:36 AM (GMT 0)
I get them and have since I was about 10.  I get them twice a month, every month.  The worst one is when I get my period and the other one is when I am ovulating.  They last about 4 or 5 days each.  Those "tryptan" meds do not work for me.  Mine got better  when I was pregnant. 

Posted 4/20/2008 2:31 AM (GMT 0)
Hi,

I also suffer from migraines.  I've had them since around age 6, and they're still going strong.  One very important thing I learned from my neurologist, is that chronic migraines can transform into chronic daily headaches that are actually "rebound headaches".  Taking frequent pain medication can cause this horrible and vicious cycle.

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