HAIR LOSS= CROHNS

my hair has fallen out all around the edges and across the back. I kind of look like a female Mr. T. Could this be related to the crohns or the humira shots. I am really sick right now, about to get a resection. It seems like if anything is different I attribute it to the crohns, just wondering if this falls in the catergory or not.

Nicole

I lose hair after I've been on steroids for a few months. How long have you been off the prednisone? Could it be from that? I wasn't on Humira long enough to know but the Remicade never caused hair loss for me.

My hair fell out after the first time I got really sick - the drs don't know, my GI tells me to go to my dermatologist, they tell me to ask my primary care dr, etc etc - here are some things they said it could have been for me:

*extreme weight loss (about 35 lbs, down to around 98 lbs)

*trauma of getting very sick very fast

*6mp

*prednisone

*tellogen effluvium***

*** this was the diagnosis my derma gave me, similar to what pregnant women go through, it starts about 3 months afrer a traumatic event, hair loss mostly around the perimeter of the scalp, lasts for up to 6 months of falling out, peaking in the middle then tapering off.

Once my hair started to grow back I got sick again, went through the same cycle, but it is not as bad this time (then again there is less to fall out, you MUST have a sense of humor about this :)

One thing I unfortunately realized is that doctors treat the problem they specialize in - so while my GI dr might try to understand that it is difficult for a 32 yr old single girl (who has enough problems, lol) to have her hair fall out on top of everything, the main priority for them is getting the Crohn's under control so while they may try to empathize, it has been my experience that I end up leaving the office with as many answes as when I came in.

Good luck and let us know if you get any more info!  BTW I forgot to mention that as stressful as it is, your hair WILL grow back, pretty as ever. :)

Oh sweetie, don't think of yourself as being vain. You are just normal. No one likes to see these horrible changes in our bodies. It's hard enough feeling terrible on the inside and then seeing changes on the outside is just too hard. You are not alone here! I was very sick when I was 21 and my hair started to fall out on top of everything else. I was so worried, but it finally stopped and grew back just fine. I was very sick again last year when I turned 40 and again my hair started to fall out. I wasn't so worried this time because I knew it would come back. It did, but it came in grey! Ugh! At least that's something I can do something about! So, don't worry. We're here for you!

I had a bowel resection in Oct 2006. Within a short period of time I began to go bald. I had a girlfriend suggest a liquid vitamin/mineral supplement called Intramax. I found it on the internet. Within 10 days I began to grow hair again and now I am healthier than I have been in years. I think Intramax changed my life. Mal absorption was horrible beforehand. It's 100% carbon bond organic. So it can't hurt.

a lot of my hair fell out when i was on pentasa, imuran, remicade, and after tapering prednisone. but i think the real culprit for me was the imuran. i am back on pentasa and have had no problems. it made me so mad when my doctor kept telling me "the number one cause of hair loss for women is stress/anziety". i just wanted to slap him, i knew it wasn't that. about a month after stopping imuran, the hair loss stopped for me. i got a cute short hair cut and now it's growing back in fuller. good luck to you, i know how rough it is, especially for us girls to deal with this!