Frustrated

Well, I had the colonoscopy and upper GI yesterday and the doctor said that I do not have Chrons, and while that's good, I'm still so very frustrated.  I have had a HIDA scan, CT, GI in my stomach and lower, colonoscopy, and they can't find anything.  I'm still having these horrible right upper quadrant pains coupled with lower abdominal pain.  It continues today, the day after the procedure.  I'm so frustrated, any thoughts, suggestions, comments???  I have naseau at least 3 times a week, in the morning I have horrible abdominal pain, I have the pain most of the time but mostly in the morning. I get right upper quadrant pain quiet often as well.  I have D more than I have normal, and I don't think I really ever have "normal" poops. They say that my gallbladder is fine, I have no gallstones.  Arrrrghhhhh it's not that I want something to be wrong, I just want an answer.  Thanks for listening to my whines.  Even though I haven't been diagnosed with Chrons, I would still love to hang out here.

They had thought initially that it was IBS and gave me some meds for it but they didn't help.  How did they determine that's what it was?

P.S.  I forgot to add, my daughter, who is 5 yrs old now has been having the same probelms I do since she was 2. =/

I'm so glad you don't have Crohn's. But, I know it can be frustrating when they tell you everything is "fine." IBS came to my mind also. Have you posted any questions on the IBS forum? Just a suggestion. Good luck to you! Julie

Sorry I am to hear this. It took about 20 years for the docs to figure it out. I was diagnosed at 34. You can see the evidence in my pedeatric[sp] med notes. When I was younger the docs said I was a sickly child. Then young teenager I was anorexic and or the opposite
[having problems spelling today]. After that I was doing drugs. That was simple to disprove.

As a young woman I was a frantic new mom. Then a pill popper. After living through all that the docs finally came up with it's all in my head.

By the time I got into the GI's office at 34 the doc literally tripped over the diagnoses. By that time it was an easy call.

You have to just hang in there. You are not having these symptoms for nothing. If it not crohn's there are so many other reasons. You'r body is telling you something. Just takes some time to figure it out sometimes.

BEST advice I can give is- Do not put you'r daughter and you'rself on the same boat so to speak. Keep the two apart. Do not ball the two of you in one. Her medical issues are her own even if you have the same problems. I was so tempted to see every weird [but normal] childhood problems that my kids were having as related. My kids finally had enough of me and decided to let me know. I thought I was looking after their own good and found out I was the one creating the problem.

Good luck to you
rj

Samantha, have you or you little girl been checked for Celiac disease? Or maybe you could be lactose intolerant.

Just a thought!! Hang out here all you like sweetie..

Thank you so much.  If you don't mind me asking, what kind of dietary changes did you make?  I'm checking into different things now.  I think I may try a suggestion I saw some where about running.  I honestly am always so tired but it's at a point where I HAVE to do something.  I'm too young and my children depend on me right now, so I need to get myself in good health, with or without a diagnosis.  I'm so glad I found this board and you all, you have been so helpful!!