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How did you tell your family?

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Crohn's Disease
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Posted 5/14/2008 4:48 PM (GMT 0)
Megera - I can relate to your situation in another way. I have an alcoholic cousin with lots of mental illnesses. Any time someone in the family is sick or has a set back it is his excuse to "fall off the wagon" and say oh woah is me... Then he will say "it wasn't my fault, I was just so worried about x that I couldn't control myself..." I don't really tell him anything about my life. I try to only talk about neutral topics with him.
Posted 5/15/2008 2:52 AM (GMT 0)
erik sorry about your friend....No there is nothing normal in the way we have to live. Before my life was normal maybe upset stomachs here and there but that was all, I never got sick I worked in a doctors office around all these people where even the doctor got a cold and me nothing. So yes it was a shock when one day I was feeling exhausted and then it went into weeks I finally did a blood test to find that i was anemic and then came the test and the answer that I had crohns, the medications and now the change in life where you always look for a bathroom, the anxiety of going too far of what you can eat when your out,the pain....my cousin has had crohns since she was young she has been in and out of the hospitals her whole life never had children was engaged once but he couldn't handle it, walks with a cane from the arthritis some days she can not leave her house I look at her and it scares me.....sorry I don't mean to depress anyone....I also guess we learn to live with this disease that it becomes just normal for us if you get up one morning and you feel great and your day goes pretty well you feel like you accomplished something.Normal is different for everyone if that makes sense.

Posted 5/15/2008 3:19 AM (GMT 0)
Well, I told my mom and she informed the rest. I feel this is the time that you need support.  I have three siblings I never hear from and two that are very supportive.  Two of the ones I dont' hear from have Irritable Bowel Syndrome and Diverticulitis.  But back to my point, they need to know for their own health and to support yours.  The longer I have it, the easier it is to share. 
Posted 5/15/2008 1:16 PM (GMT 0)
Erik - I guess your post made me realize I am not as normal as I thought I was. After reading it I was more cognisent of the ways crohns invades everything I do. Way2tired - your exactly right. How does one define normal? But, while I may not be normal, I think I live a good life.
Posted 5/15/2008 3:50 PM (GMT 0)
Hey Fitzyk :)

Just going a little off topic here, but I noticed you're lactose intolerant (there are varying degrees) I was quite severe with lactose intolerance myself and had to depend on lactaid pills but since taking the primadophilus reuteri daily I no longer have to take the lactaid as well as it aids with lactose intolerance and also, since you're on the "pill" it aids with vaginal health (as the pill can also contribute to yeast infections at times) besides which, the pill can promote bacterial over-growth, which is another really good reason to take a good probiotic daily...bacterial over-growth can exacerbate IBD symptoms.

I'm glad you're doing fairly well with your CD, it never hurts to possibly do better since probiotics can aid with symptoms.

:)
Posted 5/16/2008 1:28 PM (GMT 0)
FitzyK23 I'm sorry about the post earlier i realize that you understand this disease and the seriousness of it. But they show me a video of Crohn's in the hospital when i was first diagnosed and they said the same thing "most people live normal lives" it brought me a major relief. Then BOOM after that i went through total hell for a year and misery and pain. I don't think the Government realizes how serious this disease is and treat it as a minor defect in us. They told me the same thing like you at first it was in my head and i was relieved when they told me it was Crohn's.
I'm glad you only have a mild case of it, i hate seeing people suffer with this disease and it is better treatable now then 14 years ago. I guess it is better to feel normal some days then like crap everyday.
Stay well FitzyK23 take care of yourself and good luck in your schooling.
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