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Posted 5/27/2008 5:20 AM (GMT 0)
It's stopped now.... *If it starts up again, I'll probably go to the hospital...* But.... I just had a little bit of abdominal throbbing near the left... And there were gurgling noises... but they weren't as loud as they usually are.... they were really soft sounding....

I know abdominal throbbing is not good.... very not good....

Didn't know why, though... but I looked it up and....

Abdominal aortic aneurism?

:S.... Man..... Scared the living daylights out of me...... I have been having a rapid heartbeat lately (but I thought that was just a side effect from my medicine)....

I don't have some of the symptoms, though..... Like... groin pain and fainting.... I don't have that.... and... I don't match the category of people likely to have abdominal aortic aneurisms....

But I just remembered something when I was in that one hospital and had an MRI done.... A vascular surgeon came by to talk with me.... There was a brief concern about something... a blood vessel or artery... can't remember what.... But the concern was that it looked weak....

Later, they told me it was clinically insignificant.... and that was a pretty good while back....

But now... I wonder.... And I'm scared... :(
Posted 5/27/2008 5:56 AM (GMT 0)
I saw an ad about AAA on the street once, remembered that I tend to get a throbbing feeling inmy abdomen. maybe I'll see a doctor about it sometime, but once I read it usually affects male smokers in their 70s with high blood pressure, I forgot about it. apparently it's one of those things that is carried on the x chromosome but doesn't manifest in women very much. and if it tends to be in older men, then it must take decades for those blood vessels to weaken. you can see a doctor about it, but chances are it's the crohn's, which causes pain for me in all sorts of abdominal places.
Posted 5/27/2008 6:06 AM (GMT 0)
I'm going to talk to my doctor tomorrow... if I throb again, though, I'm going to go to the hospital... :(.... *Is going to try not to stress out too much... I'm going to bed.... get some sleep....*
Posted 5/27/2008 6:30 AM (GMT 0)
I was often getting throbbing pain on one side (Iforget now) and a continuos pain on the other pain high, pain low, I thought it was normal for Crohns. Id feel it mostly when laying down, going to bed etc
Posted 5/27/2008 11:45 AM (GMT 0)
Hi Celey How are you doing today? Hope things have improved for you and please let us know how you make out at the Dr. I am concerned about you. lol gail
Posted 5/27/2008 2:13 PM (GMT 0)
I'm concerned too, and hope you receive good answers from your doctor today!
Posted 5/27/2008 2:20 PM (GMT 0)
Celey, please don't ignore any new symptoms. At least let your doc know. Good luck sweetie....
Posted 5/27/2008 4:37 PM (GMT 0)
Well... The throbbing occured again last night.... and I got really scared and went to the hospital... They listened in.... and drew some blood...

They told me it was incredibly rare for someone like me to have one of those abdominal aortic aneurisms... and... taking a listen and everything, they're pretty sure the problem is my Crohn's Disease... Felt really bad when I went to the hospital... got into a lot of pain....

But they didn't keep me.... My white blood cell count was pretty elevated... Guess they felt there wasn't much they could do, though... *My pain medicine still works for me and everything, so my pain level hasn't reached a horrible, horrible level...* The doctor that saw me at the hospital says that I really need to talk to my doctor and my GI doctor within the next few days, especially considering that it doesn't seem like the medicine I'm on right now is helping me with my Crohn's much... I have that appointment with my primary care doctor Friday....

I don't know what to do about my GI doctor, though... since he's away celebrating his daughter's marriage... I suppose I could call the office.... let them know how bad I've been feeling.... maybe I can make an appointment to see him as soon as he gets back or something...

Anyway... hospital sent me home.... with orders to continue the liquid diet for a few more days... :(... Hard being on prednisone and keeping on the liquid diet... but... Maybe it'll give me some relief.... *For the couple days I did try it, it didn't seem like it helped much... :(.... But I really don't know what else to do...*
Posted 5/27/2008 5:41 PM (GMT 0)
Celey, hasn't your GI got someone in covering for him. Maybe you should see him/her. Your white count is elevated
for a reason. I truly believe you need to get this looked further.... Keep us posted.
Posted 5/27/2008 6:10 PM (GMT 0)
I don't know (as I said, he's the only GI in my immediate area... I'm sure there are probably more GI's, up in the city and everything, but transportation issues and all that)... I am going to call my GI doctor's office today... soon as their lunch break is over with...

Believe me, I really want something to be done as soon as possible... :(... Getting into pain so much... the constipation trouble (it's starting to get pretty bad again, despite my attempts to increase my fiber intake and my fluid intake)... My joint pain.... I'm starting to get nauseous a little bit, now, too... Usually in the morning... and sometimes when I'm going to the bathroom... No vomitting or anything yet, though... *Hope it stays that way...* The gurgling noises.... I had a lot of gas yesterday (but I think that was because of something I ate... it was really stupid, too, because usually that food doesn't bother me... and I really like that food and I don't want to give it up... I'll have to test it sometime later...)... And now this throbbing thing... It doesn't occur very often... it's not constant and it doesn't last for very long... stays in the same position. Very small area where it throbs and it's usually accompanied with very soft gurgling noises... I don't feel so worried about it now that I've been to the hospital, but having a new symptom sucks...

This is all very trying... I feel so exhausted.... and it seems like it's getting harder and harder for me to be my usual 'bright and cheery' self... Try so hard to distract myself from this disease, but I still keep succumbing to bouts of depression and frustration... :(...

I just want to feel normal again... or something close to normal...

It just isn't right to feel like this all the time... and man... why couldn't this kind of thing happen to me when I'm older? Aren't young people my age suppose to be at their peak of health? I should be healthy... I should be able to enjoy whatever foods I want to like everyone else... I shouldn't be in pain so often... Shouldn't have to worry about insurance and doctors...

I believe I am a good person, too... always try my best... always try to help people feel better about themselves... a good student... I wouldn't wish this disease on anybody else... but... with feeling as depressed and frustrated as I do...

And thinking about people my age... that aren't so good... that do drugs... or beat up on old ladies... or those spoiled brats that have mommy and daddy hand everything to them and they don't show an ounce of appreciation.... I wonder.... how come they get off so easy? How come they couldn't have the disease instead of me?

I feel guilty for thinking that... it's not something a good person thinks... :(.... I guess its just the depression and frustration...
Posted 5/27/2008 6:42 PM (GMT 0)

Hope you start feeling better really quickly Celey! I know that after my abcess cleared up I had a lot of throbbing in that area. And gurgling. It took a long time for it to go away. Even now if I'm having a flare up I tend to have throbbing. I think it's just part of this disease. It makes sense. If a body part is damaged or diseased in some way, anything trying to get through or processed may be picked up by pain or nerve receptors.

We all know our own bodies and if something doesn't feel right to you, do what you've been doing. Get it checked out and don't let them tell you it's nothing. You know when something isn't right.

Good luck!  

Posted 5/27/2008 7:07 PM (GMT 0)
hang in there celey,
sometimes it's just the way this DD is - have had horrible gas problems from it for as long as i have had it - remission or not, the DD has cause me to be lactose intollerant - but at times other times I can drink milk and it not bother me other times wow watch out! I can make the big boys cry! the gurgling you hear is the gas rolling around in your system. at time the gas can hurt worse then the BM's. one thing I have found or figured out that does help me is eating activia yogurt, it also helps with digestion and keep yeast under control.
how long have you been on a liquid diet?
Posted 5/27/2008 7:24 PM (GMT 0)
Saturday and Sunday, I put myself on a liquid diet.... was really hoping it would help... but it really didn't help too much.... Yesterday, I was eating soft foods...

I told the doctor at the hospital that I had tried a liquid diet... Guess he wants me to keep at it for a few days, though...

*I have some Activia yogurt.... I ate some yesterday...*

Don't think the gas has ever hurt worse (it does hurt, though) than when I go to the bathroom, though... :(... Man... I dread going to the bathroom... seems like every time I go in there, it's a battle.... and I cry... :(
Posted 5/27/2008 8:35 PM (GMT 0)
Hi Celey Glad you went to the hosp. it helps to get checked. Were you tested lately for blockage? Did they do a abd. X-ray? I hope you aren't doing too bad with the liquid diet. How much pred. are you on now? Alot of questions but also wandering what is going on with the cyst thing? Don't beat yourself up I know when it hurts it's no fun. Sure will be glad when things get better for you. Don't worry about yogurt and fibre for now with all the pain your in I wouldn't try anything new. I know a blockage will be hurting no matter what a person eats.,same with abcess. I din't take pain meds so hard to say where your pain level is now. If you get D in your sleep or the pain don't let up just go back to the hospital again. Do you still have a room mate for support? Gee this is getting long and I know how frustratining it can get when your not feeling good. Keep in touch we all care about you. lol gail
Posted 5/27/2008 8:49 PM (GMT 0)
They didn't do an abdominal X-ray.... I had a colonoscopy done not too long ago (my memory can be so bad... it was either the end of April... or May 5th... or somethin' like that...)... and all my GI doctor said was that it was a definite thing that I had Crohn's disease (doi) and that there was no sign of obstruction or anything like that...

I did have a gynecologist appointment sometime early this month, too... I was on my period when I went, though... The gynecologist told me that ovarian cysts are normal to have (that's what the ovaries do and whatnot)... and that my pain is most likely Crohn's-related... but he said in a few weeks after my period, I should come in and have an ultrasound done to check for cysts and to see what they look like and everything. *That appointment is going to be June 3rd...*

I'm on 40 mg of prednisone right now...

And I called my GI doctor's office... My GI doctor will be back Monday, June 9th..... I got an appointment in to see him for that date...

And yeah... The doctor at the hospital told me that if my pain continues getting worse or if I just keep getting terrible in general (vomitting, diarrhea, fainting, anything like that) before my doctor appointment on Friday, that I should come back to the hospital... I dunno if I'll be getting diarrhea anytime soon because I've just been so constipated lately... :(...

I still have roommates... One of them has been very good about checking in on my room to make sure I'm doing okay (still conscious and whatnot).... And they're all pretty concerned and wish there was something they could do to help me... *Wish there was something they could do... or anyone could do...*
Posted 5/27/2008 11:29 PM (GMT 0)
My dad had surgery on his AAA last year. He never had any symptoms. His vascular doc has been monitoring it for years via sonograms/ct scans. He used to get it checked once a year then it got to a size that required 6 month check ups and then removal size.
Posted 5/27/2008 11:36 PM (GMT 0)
Yeah... with the AAA they say it's usually asymptomatic... I feel more comfortable about it now... I don't think I have AAA because I'm sure there would've been some kind of change in my vital signs or they would've heard something in relation to my heart and whatnot...

I am going to tell my primary care doctor my concerns about the throbbing, though... and that thing that happened at that one hospital where they did an MRI and saw the weak artery and everything... *They said it was clinically insignificant... but time has passed and everything, and I'd like to make sure it is still clinically insignificant...*
Posted 5/27/2008 11:42 PM (GMT 0)
you have been constipated lately? - when was your last BM? is anything passing????
Posted 5/27/2008 11:46 PM (GMT 0)
My last bowel movement was today.... very painful.... Managed three small *thumb-sized* poops... At least, I have managed to go to the bathroom each day, so my constipation isn't as bad as it was... But it feels like it's getting worse again (when I first started increasing my fiber and fluid intake, I was improving quite a bit, going to the bathroom wasn't such a struggle).... But now it's getting to be very painful again, and the amount and size is getting smaller and smaller.... :(
Posted 5/28/2008 12:05 AM (GMT 0)
hhmmm sounds as if you have rock/pebble poops and you may be blocked or locked as the case may be.... my granddaughter gets these real bad - Dr put her on Miralax to soften her stools so she can pass them. there has been a couple of times I had to do an enema to help break her loose, the plug she would pass would make a grown man cry - she's just 6 - at times her poop is so hard and big it will cause her to tear and bleed thats how Gramma got envolved!!! now we watch and make sure her poops are softened......
Posted 5/28/2008 1:59 AM (GMT 0)
Celery,
If I were you I would contact my primary care and schedule an appointment sooner then 9 June (is that who you have on Friday?), get an x-ray/more blood work, tell he/she about your throbbing (which to me is not abnormal with crohns, but since it is new I think you did the right thing in going to the hospital), constipation, pain. I think Dixie has a good idea with treating c with an over the counter right now (not additional dietairy fiber because it might just hurt you more, but you know your body best and so do what feels confortable). Plus I think plenty of liquids will help. Please do go back to the ER if anything gets worse or something new develops.

"This is all very trying... I feel so exhausted.... and it seems like it's getting harder and harder for me to be my usual 'bright and cheery' self... Try so hard to distract myself from this disease, but I still keep succumbing to bouts of depression and frustration... :(...

I just want to feel normal again... or something close to normal...

It just isn't right to feel like this all the time... and man... why couldn't this kind of thing happen to me when I'm older? Aren't young people my age suppose to be at their peak of health? I should be healthy... I should be able to enjoy whatever foods I want to like everyone else... I shouldn't be in pain so often... Shouldn't have to worry about insurance and doctors...

I believe I am a good person, too... always try my best... always try to help people feel better about themselves... a good student... I wouldn't wish this disease on anybody else... but... with feeling as depressed and frustrated as I do...

And thinking about people my age... that aren't so good... that do drugs... or beat up on old ladies... or those spoiled brats that have mommy and daddy hand everything to them and they don't show an ounce of appreciation.... I wonder.... how come they get off so easy? How come they couldn't have the disease instead of me?

I feel guilty for thinking that... it's not something a good person thinks... :(.... I guess its just the depression and frustration..."

This does concern me about how mentally you are feeling. I hope you do not get offended by this, because I only want to help. No doubt about it this disease sucks, but it is not some divine punishment, nor does it mean anything about your character. All it means is that your are feeling down right now and maybe you could use some help in processing this life event. Could it hurt to talk with someone who specializes in chronic disease therapy? (because it is perfectly normal to feel like there is a loss in part of your life) Like I said I hope you are not offended by this idea. I am concerned and want you to feel better both physically and mentally.
Posted 5/28/2008 2:11 AM (GMT 0)
June 9th is my GI appointment (that's a Monday)..... This Friday (May 30th) is my primary care doctor appointment....

And my primary care doctor did talk to me about my mental health.... *Have a lot more on my shoulders than just this disease...* He said he's going to look into finding me a Crohn's disease support group...

I might look into getting a therapist or something.... because I know I am starting to get real worn down... and I'm more accepting of getting help now than I did when I was younger....

I'm not offended at all, MMMNavy.... I appreciate your concern.
Posted 5/28/2008 9:46 AM (GMT 0)
Celey, I see you're online. How are you feeling now?
Posted 5/28/2008 9:59 AM (GMT 0)
I'm about to go to bed, actually..... *Don't know what it is... but I've been having trouble convincing myself to go to sleep. I think it's because I have such a hard time getting comfortable... and then.... when I wake up after sleeping... well... I haven't been moving, so my body gets really, really stiff.... I feel awful when I wake up*


I'm aching right now..... my tummy is doing fairly okay at the moment, but then... I did take some pain medicine a while ago because it was not being okay... It was a bit easier to deal with today than it was yesterday (maybe the liquid diet is helping some).... *Going to the bathroom was still like going to battle, though...*


Thanks for checking on me... Hope tomorrow will mean an even easier time.... if I just take it easy... try not to stress out too much.... keep on the liquids... maybe I won't feel as bad as I have been....
Posted 5/28/2008 10:04 AM (GMT 0)
Yes, it gets hard when you start to dread bed. Still, sleep is important. Do you have a heat pack or a hot water bottle, Celey? That might help.

Anyway, I hope you sleep soundly and feel much better when you wake. Please do keep checking in with us. We worry for you.

I.
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