HealingWell
Search Close Search
☰

Help!!!! Sore tongue

Support Forums
>
Crohn's Disease
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 6/11/2008 10:16 AM (GMT 0)
confused   I have an inflamation in my tongue, sometimes the symptoms come and go, i do not not know if it is related to my crohn's or medication . I saw three doctors one gastroenterologist, dermatologist and general clinic and they told me they do not know what is. At moment my tongue is very sore i am not feeling well. Is there anyone here that have or had  similar symptoms? I am been searching in the internet and i came across with geographic tongue, but i am not sure. What amazing me that my doctors do not know what is . Any thoughts would be helpful. Today i tried a few things mouth wash  with salt water, mouth wash for sore mouth and also i put honey in the inflamation patches. Nothing works, what sort of doctor should i look for to help me with this problem. What specialist is for mouth or tongue. Thanks :-)

Currently on 150mg imuran, folic acid, fish oil, zinc, probiotics and homeopathic remedy.  

Posted 6/11/2008 1:14 PM (GMT 0)
I've had this from time to time. An ENT doc told me I had oral crohns. The medicine he gave me, was a prescription
mouth wash, that you swish, swirl & swallow. It contained a steroid, antibiotic painkiller and nystatin. It was called
Dr. Poppovichs solution (weird I know) It gave me a great deal of relief after awhile.....

I wish you all the best. ...
Posted 6/11/2008 2:30 PM (GMT 0)
ouch, I hope you get some relief!!! Maybe mention a mouth wash to your GI like Vicky said. good luck! Karen
Posted 6/11/2008 7:01 PM (GMT 0)
Wow!  I know where you are coming from, I got a sore tongue, lots of times usually one side only.  The pain drove me nuts, and had a hard time talking. Also not always a white spot. Could be cankers or lack of vitamin C and or Potassium.  As we all know Crohns can happen from the Mouth to the Anus... I always got a sore tongue just a few hours later from taking a Cipro, I still dont know why.  This was going on and off for months.  Then it stopped as fast as it came.  You could be under alot of stress, which causes undue excess bile and acids through your system.  I am also on Humira, and nexium, take one cipro every other day and switch to flagyl every other. Since been on Humira, my symptoms have disappeared.   I have had crohns for 15 diagnosed and 30 years symptoms. I use ambesol if it gets really painful, hard to sleep at night. A oral pain reliever called Zilactin-B helps me, I am from Canada, so not sure if you can get this.   This is viral, and virus' pop up everywhere.  I get yeast infections and urinary infections and cold sores.  These are all normal.  Drink lots of water and stay away from citrus fruits.  Another help is acidolphus or yogurt.  Best of luck, let us know how you are doing.

 

Posted 6/12/2008 1:14 AM (GMT 0)
Does your tongue swell at all? I had my bottom lip swell up last month, got huge. My family doctor said it was from Crohn's. I was also having swelling in my hand, fingers, and foot at the time too. My sed rate was thru the roof too. It was kinda scary for me, never had it go outside of my intestines like that. But like my family doc said, from the mouth to the anus! My GI was of no help, if it's not in the gut he doesn't know.
Posted 6/12/2008 3:03 AM (GMT 0)
I've never had any inflamation of the tongue so I can't offer much. Would sucking on crushed ice help? I'm sure it's no cure as the mouthwash is but maybe it would help?
Posted 6/12/2008 7:13 AM (GMT 0)
Hi, i have started washing my mouth with hydrogen peroxide, feeling better than yesterday. But the red spots that i have in my tongue still inflamated, but i am not feeling so much burn as yerterday. My GI said is not Crohn's, i am worry because they do not know what is. Thanks everyone for the advice.
Posted 6/12/2008 8:48 AM (GMT 0)
My sore tongue is usually down one side, very red and its painful to talk and eat. Usually when i am very low or have had a course of antibiotics. Oral thrush creams, orange flavour, work well on mine and probiotic drink, held in the mouth helps too.
Posted 6/13/2008 2:52 AM (GMT 0)

Krica,

Has your doctor considered oral thrush? I had oral thrush on my tongue. It was very painful!! I developed a thick layer of white gunk on my tongue that shedded. Under the gunk was swelling and red sores. My doctor cultured my tongue and prescribed an antifungal. Within a few days I felt relief.

Hope this helps. Hope you feel better!

Posted 6/13/2008 3:06 AM (GMT 0)

Krica said...
Hi, i have started washing my mouth with hydrogen peroxide, feeling better than yesterday. But the red spots that i have in my tongue still inflamated, but i am not feeling so much burn as yerterday. My GI said is not Crohn's, i am worry because they do not know what is. Thanks everyone for the advice.

Doesn't surprise me at all that your GI said it wasn't Crohn's. Mine said the same thing about my lip, even after I brought up the whole mouth to the anus thing. He then said "Well I suppose, but I've never seen it". It's sad because they really aren't experts in Crohn's, just the part the effects the intestines. He really upset me, because I couldn't figure out what in the world could it be then. Saw my primary doctor, who reassured me it was Crohn's. He seemed to know more about the effects of Crohn's outside the intestines then my GI did.
Posted 1/2/2014 4:00 PM (GMT 0)
my tongue is so sore at times and I think it's the omaprazole I take for heart burn. If I miss one dose I die with the acid coming up. Could it be the meds?
✚ New Topic ✚ Reply