Severe Stomach Pains

Hello & welcome, have you had a colonoscopy yet? If you haven't maybe that would be a step in the right direction.

I always feel if there is pain and it is severe, it really needs to be checked out..... Good luck.

There is no cure for crohns.
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Post Edited By Moderator (MMMNAVY) : 6/13/2008 2:41:07 PM (GMT-6)

I agree with Nanners on the antispasmodics.  My pain is a couple of inches above my belly button and has brought me to the floor in severe pain many times.  I've tried several anti-spasmodics and the one that has helped me the most is Librax.  I would definitely ask your doctor for an endoscopy/upper GI...mine showed gastritis, reflux and ulcers. 

LIke you im new to crohn's. Pain just above the belly button. Only upset stomach every now and then. Eating mush cuts down on pain a bit. But not eating helps, but probably not healthy. I have lost nearly 3 stone since January.
I have an upper tract endoscopy next Thurs. But im afraid the pain is too low for them to find it.
Things in the UK move very slowly. Appointments are many weeks apart.

I would have thought your entocort should have cut in by now. I think if your pain continues at the rate it is, you
may need to discuss a stronger med like Humira.
My disease is in my ileum too, as it is for the majority of us. The pain I feel is felt usually in the lower right side,
but other times it will be more on the other side... I also get mid abdomen pain, if I'm beginning to obstruct.

I really feel you need to talk to your doctor again....

Let's be supportive here.
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Rule 3

Post Edited By Moderator (MMMNAVY) : 6/13/2008 2:44:11 PM (GMT-6)

Just wanted to say... Let's not get mean to each other and everything... Rob, I'm sure Nanners wasn't trying to be rude or offensive to anyone. She's a very nice person.

This disease is just very frustrating... and when someone claims that there is a "cure", it can be very upsetting because some things that work for others (puts them in remission, not cure them), don't work for someone else. And when someone is insistent about a "cure", it can make a person frustrated and angry because its almost like being accused of not doing everything you possibly can for your health.

Let's all just get along, okay? :)

And... welcome to Healing Well, JG. I hope you get to feeling better...

We have alot of newly diagnosed people on this board. I do not want one more innocent person to be misled into believing there is a cure for Crohns. Because it is a fact that there is no cure for Crohns! Yes I am a slave to western medicine because it works FOR ME. Some have been lucky to be able to have their Crohns controlled with diet when medications didn't help. Some have been able to use natural routes. Some are finding success with LDN or one of the newer released meds. This is an individualized disease and people who doesn't even have Crohns themselves, can't come on this board and put out false information like that. I also believe he has been corrected on this more than once. I in no way was trying to be inflammatory, I was frustrated that this person who doesnt even have the disease is putting out false information. And thank you Celey for your constant support. As always I am here for you too.

Post Edited By Moderator (MMMNAVY) : 6/13/2008 2:48:34 PM (GMT-6)

Hey Ya'll,
Let's be supportive here, so I took out the personal attacks. Until a cure for crohns is found that is well regarded in a top tier peer reviewed academic journal, has been proven unconditionally, is an accepted by WHO/AMA/(etc.), and works universally, I would feel the word "cure" is being used inappropriately in this forum. The avocation of medical causes is not allowed on this forum. You can say that "I have had some success with this option." But one cannot say the same basic thing in every post. For example, "If you do or take this ___ then you crohns will be all better, and here is my story about it." That is not allowed. That is advocating.
Navy
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4. Use good judgement. NEVER rely on information or opinions exchanged via the forums or chat rooms to replace necessary, personal consultation(s) with qualified health or medical professionals to meet your individual health or medical needs. Remember that what's right or has worked for one person may not be what's right for you.

Navy – thank you for cleaning up what apparently was an unintentional attack in the form of miscommunication. You’re edit of my post is definitely a better way of saying what I was attempting to communicate.

Nanners – my apologies for my post being written as if you were intentionally being mean. I don’t know you enough to come to that conclusion one way or another so for that I apologize. It was really late, or shall I say early in the morning and this was my first time back on the forum in many months so I was unaware of any history that you’ve referred to and was reacting based solely on this thread alone. Please accept my apology.

Everyone – the perspective I was coming from regarding the word “cure” was based on the definition of cure rather than whether or not it had been officially declared that there was a cure for/from IBD/Crohn’s/UC/etc. Here are a couple of the meanings of “cure” according to dictionary.com 1) a means of healing or restoring to health; remedy. 2) a method or course of remedial treatment, as for disease. 3) successful remedial treatment; restoration to health. 4) a means of correcting or relieving anything that is troublesome or detrimental.

So, my assumption, and we all know what happens when we assume, was that this was the spirit in which the word was being used and according to these definitions it would be appropriate to state that one particular method or another brought about a cure for an individual because it would be stating that their health was restored and that their symptoms were relieved or corrected.

As several have stated, and I too wrote in my post that was so nicely rewritten, that we’re probably better off not using the word cure in this forum.

As many of us are aware this disease, or perhaps more our reaction to it, has a significant mental/emotional component to it (Mind-Gut relationship) therefore in my personal opinion if someone feels better about and reduces their risk of flaring by considering themselves cured then who are any of us to say otherwise. Having said that I still think it is in everyone’s best interest NOT to use that word here.

Hopefully I’ve cleared the air and done a better job communicating this time around. My apologies to any and all whom I offended or whom felt my original post was a retaliation attack.

To getting along and being supportive,
Robert

Robert, if using the word cure to describe a person's health status serves to reinforce the strong sense of denial that many with chronic illness struggle with, then I can see where not challenging that use of the word can be detrimental. While we are here to give support, sometimes you are at your most supportive when you challenge instead of when you just act as a booster.

RobertP no hard feelings at all.  That was exactly what I was trying to say.  I welcome family members coming here to find help for their loved ones who suffer with Crohns, but I don't like when they say "my ________ was cured of their Crohns by doing ______."  I don't one person to be deceived into thinking there is a cure for Crohns, because nothing at this time has been found to cure us.  Somethings may help us reach remission but not cure us.

jg, I am so sorry your post got highjacked, and I pray that you find some relief soon.  (((GENTLE HUGS TO YOU)))