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Going down to 20mg of pred tomorrow!

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Crohn's Disease
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Posted 6/15/2008 7:32 AM (GMT 0)
Happy, but nervous. Scared of flaring up again the lower I go. So far I've been doing pretty well with the tapering. I feel like crap for 2-3 days after coming down. Having LOTS of muscle cramps again in my legs I've noticed. All it takes is a good stretch in the morning. My DH thought I was dancing in my sleep this morning, uh no I was in pain, cramps in BOTH legs! LOL

I'm wondering, if it happens, when do people start having problems with flaring up again during a taper usually? Is it at usually a certain mg? Just wanna be aware. But I'm hopeful I'll taper off and be in another 2 year remission, like my last one lasted! *fingers crossed*

Posted 6/15/2008 10:47 AM (GMT 0)
Congrats on the taper and my guess, not having been there myself, the best thing you can do is have a positive attitude about it and not be nervous. I know, easier said than done.

A resource that has helped me a lot with other emotional challenges is EFT (Emotional Freedom Technique). You can read and watch videos at these sites and more: www.emofree.com, www.tapping.com, and www.tryitoneverything.com.

Give it a try. You've got nothing to loose but the time you invest. Other than that it's free, has no side effects, and can help with a vast array of challenges. If it's something you can get emotional about, and that's pretty much anything, then EFT can help.
Posted 6/15/2008 10:47 AM (GMT 0)
Hi, Jennifer Pred really plays havic with your body. I used pred in the past and I don't let my doctors put me on it. especially with the weight gain I used to get from the pred. Have you talked to your doctor about Remicade or Humiria. i have been on remicade for almost 5 year and I am in remission. I have not had a flare since being on remicade.

teddybear
Posted 6/15/2008 12:39 PM (GMT 0)
I started flaring when I dropped down to 10 mg. I think I'm doing well so far, but I've only just started tapering... The joint pain is the worst... I hope it gets better (hope its just the prednisone taper doing it).

Anyway, I'm hopeful for you. :)
Posted 6/15/2008 12:54 PM (GMT 0)
I'm tapering down on pred. as well. I'm at 35mg until Thursday when I drop again to 30mg. I'm not liking coming down that's for sure.
My joints are still a big problem as well as the big D. I go for a Colonoscopy Wednesday so hoping something turns up there. :-(
I don't know what my GI doc will have me go on next.
Posted 6/15/2008 5:02 PM (GMT 0)
Congrats an your taper! I've had to jump back on the bandwagon again, I'm starting with 40mg...but start tapering by 5mg next Friday. I've been on and off so much it's just "same ole, same ole" for me.

Good Luck and you'll do GREAT! Keep the Faith!!!
Posted 6/15/2008 8:39 PM (GMT 0)
Hi Jen I'am sure you"ll do fine under 10 was a little touch and go for me . Sure hope things go good for you .Enjoy the taper under 20 was getting more sane for me .A girl gotta keep her brains about her Ha HA . lol gail
Posted 6/15/2008 9:22 PM (GMT 0)

I today want off my prednizone.  But I must admit... I have had the week from hell with my Crohn's.  I am struggling so hard with cramps and throwing up.  We just got back from Father's day munch and I had to run in the house to loose my lunch to the toilet gods.

I can't tell if this is a predisone thing or a crohn's thing.  I was scheduled for a colonoscopy this past wed. but ended up to sick and had to reschedule.  I have been tapering off my pred. for over 5 months now.  The last thing I want to do is to go back on it.  My doctor mention remicade last time I saw him but I need to do some insurance checking.  Because I think it is going to be to expensive for us.

ANyone got any thoughts on this? Especially you guy who mentioned going back on prednizone.  What made you go back on it (symptoms)? Even though I don't want to go back on it..... when I am on it (side effects aside) I FEEL the best.  And I hate that.

Posted 6/15/2008 9:39 PM (GMT 0)
Thanks everyone. Were going out to dinner tonight for our Anniversary/Father's Day. My D is still really under control, so figure I'll enjoy a meal out while I can. LOL But I'm hopeful I'll be able to taper down and remain in a remission. If not, well deal with it then. Drugs like Remicade scare me, because Lymphoma already runs in my family (my Mother has it). So I worry about that increasing my risks for that even more. But not treating this Crohn's I've learned is NOT an option either. So just gotta play it by ear I guess.

Sorry to hear your not feeling well today Bspbtwins. Throwing up is just the worse! Take care and feel better!
Posted 6/15/2008 10:32 PM (GMT 0)
I started having problems when I went to 5 miligrams but not to bad and I convinced my doc to let me go to 2.5-big mistake went back up to 5 started another maintence med mtx waited 8 weeks and then went down to 2.5 and off and no problems. So far 5 days with no pred and no problems. So for me it was more about getting on the right maintence drug rather than a set amount of pred.
Good luck with your taper and I hope you can maintain your remission.
Sj
Posted 6/25/2008 7:13 AM (GMT 0)
I started at 40mg of prednison and at the same time was taking 6mp at the same time, every time i would lower my dosage i would have what would seem like a mini flare for like a day and then i would be fine. I tapered really slow because i loved they way pred made me feel, no stomach problems at all! Finally i was on 2.5 mg of pred and 100mg of 6mp a day and that was my 5th month taking them. My doctor wanted me off the pred so i stopped. Now i still have the chronic pain though not nearly as bad and the big D but its really not nearly as bad as it was pre-treatment. I want to try going to 150mg of 6mp since i am fine on 100mg with all my bloodwork and im 180 lbs... i see signatures of people weighing 120-150 on 100-125 i think i would be fine on 150... but i know i would need to do the bloodwork to make sure.
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