hi i'm new here. my name is amanda and i'm 26. I'm in nursing school and work 32 hours a week as a CNA and i've had crohn's for 10 years. i am currently just on humira but i feel it stopping to work and the pain is back so while i'm on summer break i am trying to sleep as much as i can so i can rest. My bf is wonderful ( we've been together 3 years) and he is a RN and he's put up with a lotta crap. I remember once a year ago when i was on pred the dread as i like to call it i look him square in the eye and said FU and i'm not like that. he came home from work the next day and said, " hey babe, i looked in the med book at work and it said one of the side effects of prednisone is emtional liability, so i understand." what a guy. plus the fact that i've been outta work here and there with this dumb disease and he's had to pay the bills, i'm telling you i got very lucky. hes so understanding and even laughs at my gas.
It' hard going to an intensive nursing school and working at the same time and studying and trying to sleep enough not to get too sick. my first semseter of school i was scheduled to go in the OR and I was having a painful and poopy day and i couldn't but my instructor didn't give me too much crap since i am a dork and blessed with great grades.
my family always told me i shouldn't be nurse cause i'm "sick" but i don't think of myself as sick cuse if i did that means my whole life will be sickness since crohn's is forever. But as hard as it's been it's been rewarding accomplishing something that is hard for anyone never mind someone who is in pain, relying on antidiarrheals at 7 am to make it thru a 4 hour lecture and who has to still work a physically demanding job just to make ends meet. and i have the best grades in my class. so it can be done it just takes a lot of grit and it sucks while you are doing it but if want something bad enough you can do it, crohn's or not.
amanda