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Still don't know what I can eat... after all these years.

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Crohn's Disease
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Posted 8/7/2008 4:25 PM (GMT 0)
I've had Crohn's Disease for over eight years, and you'd think I would have some idea of what I can and can't eat. When I'm flaring, I can't eat anything... it all goes through me (even water), and when I'm good, I can eat basically anything. Is that weird or normal?

Just wondering if others are the same.
Posted 8/7/2008 4:33 PM (GMT 0)
I think that is pretty normal. The trick is to keep the flares to a minimum and try to beat them to the punch. If you feel one coming on, then behave. Stuff like that. I am sure others will add to my thoughts in a bit.
Posted 8/7/2008 4:38 PM (GMT 0)
That is very normal. I personally live on a low residue diet all the time.
Posted 8/7/2008 8:12 PM (GMT 0)

I think thats pretty normal.  I never seem to know what is going to set me off.  9 times out of 10 I can eat something and be fine, but oh boy the 10th time might just be a doosy.

I did have my once a summer couple of bites of corn on the cob last weekend and I'm still paying for that.  But I knew that was going to come back and bite me in the butt!

Posted 8/7/2008 8:32 PM (GMT 0)
Sounds normal to me. I can eat pretty much anything I want but during a flare nothing works. I may as well just pour the food directly into the toilet!

Posted 8/7/2008 8:35 PM (GMT 0)
feel the same way! I tried SCD for a while and it seemed to help (but still got obstructed a few times)..
Now I tried to stay low residue as much as possible and avoid grains and sugar (easier said than done though!)
Posted 8/7/2008 9:58 PM (GMT 0)
The only thing I have to avoid 100% is corn. Corn on the cob is one of my favorite foods. I don't touch it, feels like razor blades in my gut. Except for a few months after starting pentasa when I felt absolutely great, I guess I am always in a mild flare (except when on prednisone) so its hard to know what causes problems and what doesn;t. Corn is the one thing I know does.
Posted 8/7/2008 10:28 PM (GMT 0)
Boy, isn't that the truth! That is what I find most frustrating about CD. I can eat something one day and I'm fine. Then the next day I can eat the same exact thing and it makes me run to the bathroom. There seems to be no rhyme or reason to it and that makes me so mad! What is crazy is that sometimes I can eat Mexican food and it doesn't set me off! Really, it should always get me, right?

Posted 8/7/2008 11:46 PM (GMT 0)
I stick to low residue diet no matter how I feel but when really sick like I was before not much worked because nothing was getting out. lol gail
Posted 8/8/2008 12:58 AM (GMT 0)
I could eat the same thing everyday and then out of the blue I flare, so I am the same, I still dont know what I can and cant eat. Jo
Posted 8/8/2008 4:00 AM (GMT 0)
I found that the one difference was stress - either mental or illness related. I could be happily minding my usual self - diet the same as every other day and with some stress, bingo. Flare city. When that happened, I had to go to chicken broth, eggs and skinless boiled chicken for a few days until things calmed down.
Posted 8/8/2008 10:52 PM (GMT 0)
I got to that point- why eat when you're just going to see it again, in a most painful fashion, two hours later? I was starving, and losing a pound a week. Eventually, I started a gluten-free diet, thinking I had celiac disease. The change was remarkable- the D stopped, the pain subsided, but didn't go away. A few months later, I was diagnosed with Crohn's disease, and I went on the Specific Carbohydrate Diet.

If you find that you can modulate your disease by hunting and pecking through your diet, you should probably read up on the SCD on the web. It's not easy, and it doesn't work for everybody, but when it works- wow. I no longer have stomach pains, and I'm off all my meds (against the advice of my doctor, so you should weigh my "wisdom" with that in mind). The bleeding stopped two months after I started the diet. Of course, I can't have cake, cookies, soda, etc., but full-fat yogurt with bananas, berries, and honey is pretty darned tasty!
Posted 8/9/2008 3:31 AM (GMT 0)
I'm the same way too, however, I do pretty well eating my safe foods and if I cook. I've all but given up on take out even if it is a safe food. Restaurants are EVIL! As a special note I'm not too sure the artificial sweetners in 'Diet Coke" couldn't be causing you grief too!
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