Excessively tired/Crohns activity

My daughter has pretty much been okay since diagnosed 1 year ago. I'm always worrying about her coming out of remission though. I really wish I could stop worrying about that. Everytime she's not feeling great, I tend to worry that it's the disease acting up. 

She has grown considerably in the past year, and entered puberty a couple of months ago. I understand that these are good signs. The one thing that concerns me though, is that she seems to excessively tired. Even considering that she's a young teen, she's still seems considerably tired. On the weekend , she sometimes sleeps 11 or 12 hours straight.

Does anyone know if this is something to be concerned about? Also, are their any definite signs that the Crohn's is recurring that would be cause for concern?

Thanks for any responses.   

Because of the malabsorption issues associated with CD, she could be lacking B12 and such.
As Nanners mentioned, have her dr. do a check.
It couldn't hurt to get a B12 shot monthly either...

Thanks for the responses and suggestions. I've booked her an appointment with the Doctor as advised. Perhaps some bloodwork is in order.

During periods of a flare, I am always very lethergic. This past weekend I slept 12 hours straight each day, which was a miracle as I have been waking up at night with loose bowel movements. By the time the weekend rolls around, I've exhausted all of my energy between work and this disease and I am TIRED and the weekend is my catch up time. I've had several rounds of blood work done lately and nothing out of the ordinary showed up to explain my lethargy. I think the tiredness comes with this disease.

Even healthy teens need ALOT of sleep, they average anywhere from 12-14 hours, sounds like alot and it is but it's really only for a few years, it's because they're growing quickly into adulthood, afterall basically by the time you hit 18 you stop growing into adulthood.

It's completely normal and it's different with every teen too, some teens don't sleep that many hours (12-14 on average), it just varies from person to person, but it's totally normal, and because your daughter does have crohns, there is nothing wrong with getting it checked out...afterall, when a healthy teen sleeps that many hours, they generally feel very refreshed and can party or be active without feeling tired...when dealing with CD and being a teen, I'd imagine your poor kid never feels refreshed and that's a huge difference.

:)

<<<My bloodwork is all normal and I still feel very tired...it really confuses me! I have a 19 year old and a 15 year old who do not have IBD or any other diseases. Given the opportunity, like on a week-end they both sleep over 12 hours! During the school week, they have to get up early, so I often think of it as "catch up" sleep. I would definitely get blood work for your daughter just to make sure everything is ok, but try not to worry too much. I tease my kids that they can try out for the Olympic sleeping team!!!>>>

I hope it is just part of being a teenager, but I have booked an appt. for her next month. Thanks for responding.

Hi Monte Just wanted to say I am so happy your daughter is growing and that sounds good. Some people here do seem to have some problems with there periods does she have bad cramping? lol gail

I have crohns and yes you should get her checked i slept that long before .. got off of work at 4 and didnt wake up until i went back i was 3 pints of blood short and needed a blood transfer so i would say she is bleeding and you are not over reacting because i was and still the same way and make sure she isn't lactose intolerant..



~MARK

This is quite an old post, (1.5 yrs ago). She has seemingly recoverd for an abdominal abscess almost a year ago. Has been on Imuran since that time. Right now she seems to be doing quite well. She's a competitive figure skater, and has been doing quite well so far this year. 

Tom.

Hello, I am 30 yrs old and I was officially diagnosed with Crohn's Disease in June 2007. The first time I got very sick and hospitalized was February 2003 however, they didn't find the problems. I have currently been experiencing a flare up since September 2010 and getting increasingly worse. My specialist has suggested a resection surgery but the surgeon's are not 100% set on it. I have inflammation and ulcers in the small intestine... cat scans, colonoscopies, x-rays, etc have shown it. Now I'm so weak, tired, shaky, etc that I can't get out of bed!!! I lie here and feel like my body is still moving! I am so weak that I still here crying. Food will not stay in, if it does it hurts by cramping me. I have constant constant severe burning pains in my abdomen... a rash on my face. I don't know how much more I can take!!! I love my doctor and he's been doing so much. I actually just called his answering service about everything again. My ankles and knees are so sensitive that they hurt to touch! This is such a horrible way to live life and it's been going on and getting worse for months now. When will they do more or when will it stop. My options at this point are surgery.. remicade, humira or cimiza. Help... what do I do and what do I do to get the doctor's to realize that I know my body and can't take much more!!!!!