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Not sure what to do? When should I be concerned? A little scary.

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Crohn's Disease
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Posted 10/5/2008 5:00 PM (GMT 0)
I am experiencing classic signs of a flare. Right side pain, bleeding, frequent bowl movements that are very small, stomach and back pain.
I have some kind of sore bumps under my skin and feel miserable. I am running also a low grade fever. Along with that some serious
muscle and joint aches.

I don't have an appointment until the end of October. Is there any material out here that can help me make a decision if I should
wait or go to the hospital?

Any experience or opinions are welcome.

I am really concerned with the bleeding to me it is quite a lot. I don't feel I am getting answers from my Dr's office. All I hear is you
need to take a drug (that I don't tolerate at all) this is the last thing you can take and I don't hear or else what?

Currently on a couple of Prednizone to hold down symptoms but that is starting to become ineffective.
Came off of Remicade due to onset of allergic reaction and possible neurological affects and illness.
Posted 10/5/2008 5:13 PM (GMT 0)
sounds like you need to talk or see doc asap. I hope not emergency but please--Don't wait.
Posted 10/5/2008 5:46 PM (GMT 0)
Hi I would like to say if you are bleeding alot perhaps a visit to outpatients .How much pred. are you taking? lol gail
Posted 10/5/2008 6:46 PM (GMT 0)
I would call your doctor and try to get is asap
Posted 10/5/2008 8:09 PM (GMT 0)
Hi I would call your doctor and get an earlier appt. If the pain gets worse go to the hospital.
Posted 10/5/2008 10:53 PM (GMT 0)
Hi - I am back long day. I am on 20 mgs of prednizone per day.

I am not sure what to compare my pain with. I had panchreatitis before and I would say
my stomach aches are like the nawing stomach aches you get right before it goes into the
really painful stuff. You know just doesn't go away. But the pains in the leg muscles and other joints
that gets so bad at night I cannot sleep or lift my arms and travels night to night.
During the day If I lay down it helps. I am concerned about the low grade fever.

I have called the Dr and I feel really blown off. I even took digital pictures and they said
"We don't need to see those we believe you" (???) My GI Dr sends me to my regular Dr that
is really attentive but he does not know alot about my medications and illness etc.


Thanks for all of the replys/support. I will give them a call again.
Posted 10/6/2008 3:00 AM (GMT 0)
oh what exactly did you take pictures of??? lol!
Posted 10/6/2008 3:33 AM (GMT 0)
Probably the bumps, Fitzy....

How long since you stopped the Remicade? Perhaps this is a new immune reaction to it....
Posted 10/6/2008 4:53 PM (GMT 0)
Hi How are you doing now ,did you get ahold of your Dr.? lol gail
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