Hello,
I am 52 (this November) and have had crohns for almost 10 years. If you read the fiorst line of all the responses it sound like we are all at an AA meeting.
I was dx'd as UC for several years...things only got worse and after finally find a doctor that would include me in all decisions I was dx'd with crohns.
I was in the initial study of Tysabri (it only had a number, not a name when I first tried it). It worked very well for me but then folks died while on it and the test was scrubbed.
I have had little to no response to any and all other drugs including Humira....my Doctor says remicade is next, but he thinks I only have about a 15 to 20% chance of that working for me.
Married for 28 plus years. I could not have gotten through this with out the help of my wonderful wife and two wonderful and fully grown sons. One just got married this last April...I performed the ceremony (while experiencing my first full blown blockage). LOVE THIS DISEASE!!!!!
I live in the Tampa Bay area of Florida (GO RAYS!!!!!!) and work in Sales and Marketing. I travel a lot for my job and when my wife and I vacation we do it in Costa Rica (more travel)
The worst part of this DD is not the 15 to 20 trips a day to the john...or the agony of holding and rushing to the bathroom in a strange town or airport....but...I am a trained chef....I love food, all food (except beets) and I have the weakest will power known to man...so much of my pain and agony I probably bring on myself.
But without a quality of life....there is no life....so I do what I can to enjoy life and this disease be darned!