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Just a general question for other CD sufferers.

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Crohn's Disease
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Posted Yesterday 5:44 AM (GMT 0)
Do the rest of you find that whatever it is that is ailing you is automatically assumed by your doctor to be Crohn's related? Do you ever feel that maybe they are not noticing other symptoms that may NOT in fact be CD-related? Does this happen to most of you? I'm just really curious about this. confused
Posted Yesterday 5:59 AM (GMT 0)
Yes. Absolutely. Sometimes I feel that my leg could drop off and they'd still say it's Crohn's related!

I haven't found a solution for it, other than to keep pressing and pressing for attention. Sooner or later *someone* ends up listening.... eventually...

What symptoms are you trying to get them to investigate?

Ivy.
Posted Yesterday 6:03 AM (GMT 0)
yup-- and i've had some really weird symptoms over the years...but i have learned that crohn's can manifest itself almost anywhere in your body- eyes, lungd, liver etc...
Posted Yesterday 10:42 AM (GMT 0)
nope.. not really. they always investigate things thouroughly , without jumping to that conclusion.
Posted Yesterday 10:54 AM (GMT 0)
Actually, it is the opposite for me. I am always blaming everything on the Crohn's, lol! :-)
Posted Yesterday 11:16 AM (GMT 0)
Hi I feel sometimes that by the time I have discussed my CD related things that there are other things that are overlooked. It does leave me feeling that I am not getting the best of care because of it at times. Very good question as sometimes it can lead to a bit of anxiety. lol gail
Posted Yesterday 2:31 PM (GMT 0)
Yes - my husband and I joke that everything is crohns related, including my car troubles lol.
Posted Yesterday 3:59 PM (GMT 0)
  Fitz, you've got me thinking again as usual. My car is sitting in the drive, I am afraid to drive it because I have not tended to do maintainance as promptly as in the past.Mostly Crohn's related? most definitely!   
   Seriously though, several visits to the ER have proven to be quite rough. Sinus infections and such that I know are going to throw me into a flare are treated well enough, but they take a hands off approch to the Crohn's factor. Then, by the time I get in to GI doc, the flare subsides, or becomes a big deal. I am seeing a new Doctor, who hopefully will prescribe some Asacol, in case I have this issue again this winter. I have done enough research on my own to understand that it is near impossible to seporate other symptoms and illnesses from the Crohn's, we are all so different. Crohn's frustration, I have this symptom even when all others subside!


Posted Today 1:45 AM (GMT 0)

ivy6 said...
Yes. Absolutely. Sometimes I feel that my leg could drop off and they'd still say it's Crohn's related!

I haven't found a solution for it, other than to keep pressing and pressing for attention. Sooner or later *someone* ends up listening.... eventually...

What symptoms are you trying to get them to investigate?

Ivy.

Thanks for the input; actually I wasn't aware that I was having any strange symptoms until my doctor noticed some irregularities on a couple of CT-scans I've had this past month. He's suddenly noticed some things which don't appear to be connected with Crohn's, lung problems and now something odd with my thyroid, and he seems sort of confused. More testing is in the works, and I'm just really nervous at this point.  I'm no spring chicken, but it seems like everything is conking out on me at once. Just one weird thing after another apparently. p.s. yeah, the brakes on my care are acting up and I think I'll blame that all on Crohn's, too.
Posted Today 1:49 AM (GMT 0)
I also have another disorder which I blame some symptoms on, but my doctor blames those same symptoms on the CD.

I still have a GI that thinks it's NOT CD, so she disagrees completely! LOL!
Posted Today 1:52 AM (GMT 0)
I have more problems with them thinking that it's NOT Crohn's related e.g. HORRIBLE headaches, joint pains, tenderness in the subcutaneous area and so on.
I guess being a little bit more aggressive when it comes to asking questions and requesting a diagnosis might be necessary..
Posted Today 11:47 AM (GMT 0)
Been away for a few days and am now playing catch up!

It sure seems like everything is related to CD. Especially my horrible immune system. I keep getting everything these folks at work bring in since I am on their computers.
Posted Today 2:25 PM (GMT 0)

not trying to dance on the head of a pin here.....but we should maybe define "related" a little better.

It seems to me that on a larger scale almost all of the issues i have had are related in one way or another to my Crohns...so I can understand it if my Dr. makes that connection.

for example....I was having some joint pain and my left foot was dragging when I walked....problem: extremely low levels of Vit B.    reason for the low B...malabsorption due the crohns.  So is it related?

My arthritis.....

hair falling out....probably the drugs....drugs used to control the crohns

dry skin......possibly the drugs again

loss of feeling in the toes and some finger tips.....again they are thinking it may be a nutrition issue

anemia......when it occurs.....usually associated with bleeding from the crohns...then the anemia brings about a host of other smaller but serious issues....are the smaller issues crohns related?

Pains in my feet.....my nails getting thinner......rashes here and there.....

if i swell up from the steroids....is that crohns related?

it all seems to be like one of those big domino designs....push the first one down and watch where the trail leads.....

Posted Today 3:56 PM (GMT 0)
I think it is a chicken or the egg relationship.
Posted 12/4/2008 4:15 PM (GMT 0)
I've reached the conclusion that I need to stay away from my doctor for awhile. I feel better when I do.
Posted 12/5/2008 3:22 AM (GMT 0)

nruth

I love your post!!! And couldn't agree more, the more I go to the hospital and the doctor the sicker I discover I am! Seriously though, what I have discovered after 15 years of living with this disease is that I am smarter than my GP, at least when it comes to Crohn's, but because he has the degree, I need him to prescribe the meds I tell him to and order the tests I tell him to. His job is to learn everything he can about Crohn's and the related diseases I have and tell me everything he's learned. This arrangement is working well for us now. :)

Good Luck

Michael

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