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Remicade not working?

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Crohn's Disease
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Posted 2/16/2009 9:57 AM (GMT 0)
I've finished the introduction phase of remicade and that went fine. My symptoms were going away and I was doing alright. But now that I have to wait eight weeks between treatments my symptoms seem to have mostly come back. The only thing I'm not doing is bleeding. As remicade not worked for anyone else?
Posted 2/16/2009 4:47 PM (GMT 0)
Does this happen immediately after the infusion or at week 6 or 7?

If it's happening in the week or two prior to the next infusion, maybe they can increase the dose of decrease the time between doses.

If it happening all the time, maybe it's a flare and some steroids may help settle things down.

Are you an Imuran or methotrexate as well as the Remicade? , are you an any other crohns meds?

m

 

Posted 2/16/2009 5:00 PM (GMT 0)
I was on methoterxate but they took me off of it and I had a bad reaction to immuran. I was also on humira for a while and pentasa too..

I am on colazol, 32mg of steroids and the remicade but nothing else though. I just had my last treatment on feb 4. I'm kind of worried that my doc won't do anything until a flare up is very apparent and I really hate the hospital it throws me in to panic attacks. He has talked about upping the dose but we're waiting on some blood work to come back.. I don't know what to do
Posted 2/17/2009 7:21 AM (GMT 0)
Kanditron,

I know that it is scary and that you don't see the results yet, with these drugs it can take a while to really see the effects. Stay with it and be strong, you will get through it in the end. There is one thing I have learned about people with crohns, we are really strong deep down and have an unbreakable spirit.
Posted 2/17/2009 12:34 PM (GMT 0)
I have been on Remicade for 6 months. It has been a miracle for my arthritis but not as effective on my Chrohn's symptoms. It's better but I still have symptoms. The Remicade seems to wear off around 6 weeks for me. I told my GI but he doesnt seemed too concerned. I've asked for more frequent doses but he's hesitant about doing that so I just tough it out. Within 24 hours after my infusion I feel great again. I'm amazed at how differently Crohn's effects everyone. No wonder a cure is so elusive.
Posted 2/17/2009 3:26 PM (GMT 0)
The initial treatments helped me so much it was great. Now however, it seems to not touch my symptoms. For example, I had my last treatment on feb 4th or so and I'm back to where I was when I started remicade. I'm seriously thinking surgery may help.
Posted 2/17/2009 5:33 PM (GMT 0)
I find my remicade wears off the last week or two and my doc also is hesitant to increase the dosage or do them more often saying there are more risks that come with that.
It works for me most the time tho so I like it, I hope you are able to find a medication that keeps you in the clear!!!
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