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Crohn's Disease
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Posted 2/27/2009 9:36 PM (GMT 0)
I have a seton.  And it seems when it drains bad I am like freezing.  Or if I have a large amount of bowl movement I am freezing.My iron is ok.  I take hot  hot bath and I warm up.  but as soon as I get out and get dressed I am freezing again. So I get on the chair and wrap up with 2 blankets and try to keep warm.  and I feel so tired.   so anyone else have this problem with freezing?  I check my temp and its normal. 

Also,I am suppose to start humira to close my seton area.  does anyone know if it will work? I am like scared to death to start it.  I was suppose to start january 1.  but keep putting it off. please if you have any good things to say about humira let me know so I can get my nerve up to take it.   confused

thanks everyone

Posted 2/27/2009 9:53 PM (GMT 0)
I do not have a seton but do have a fistula. I started on Humira just over two weeks ago. So far I have taken the 4 shots and then the two at two weeks later. I too was really scared about starting Humira. But so far the only thing has been a small bruise at the injection site. I do know that I feel some what better. They are not sure if it will heal the fistula but is helping with the Crohn's joint pain. I never thought I would be able to give myself a shot but I surprised myself. It really wasn't that bad. I know each person is different but sometimes we just have to give things a try to see if they will work for us.
Posted 2/27/2009 10:06 PM (GMT 0)
thanks you so much for your input.  I suppose its not so much giving myself the shot.  its the sideeffects I am scared of.  gee the side effects are enough to make you think hard.  but I am feeling so bad i am about to break down and go for it.
Posted 2/27/2009 11:52 PM (GMT 0)
I think you should start the Humira. Sounds like you are feeling poorly and hopefuly it will help. When I was really sick, I did get that absolutely freezing feeling. Like I really would die within minutes -- I felt that deathly cold. It was as if my body couldn't warm up. I used to put my clothes in the clothes dryer, get them hot, and put them on. Try it! It feels sooo good!! Blankets too.

Please tell your doctor. I'm am concerned you may have an infection. My normal temperature is now lower than it used to be before I got CD. I am often 97.5 now. So 98.6 is actually hot for me now. Very strange.

Please take care!
Posted 2/28/2009 2:09 AM (GMT 0)
Hi Just wandered if you are on B-12 ? I used to be cold all the time too and now a bit more normal feeling. I also think that it helps with healing of fistula's.lol gail
Posted 2/28/2009 2:48 AM (GMT 0)

oh the dryer sounds like a wonderfull idea!

and i do  take b-12 sometimes.  if I take to much i get grumpy. strange

Posted 2/28/2009 3:05 AM (GMT 0)

Now don't you go climbing in the dryer!!  nono   nono tongue tongue tongue

Posted 2/28/2009 5:41 AM (GMT 0)
Sounds like you may have a low grade fever also. Have you taken your temp ? I have an electric heating blanket that is about the size of a table cloth I picked up at Walgreens. I wrap my feet in it when I have fever and it really helps. Hope you feel better soon...
Posted 2/28/2009 8:18 AM (GMT 0)
Above comments dittoed. I get so cold and everyone is trying to tell me it's because it's winter in Canada. But I was cold all summer too. If you have lost body fat fast that has an effect and if you end up staying underweight it seems is hard for the body to adjust. I wear lots of layers of clothes to stay warm, when I had a dog cuddling her was good too. OK those are all I can think of this late. Hope the next thing you try for recovery works!!
Posted 3/1/2009 2:04 AM (GMT 0)
i have took my temp when I am cold but shows no fever.  hmmm might have to make a pit stop to walgreens! thanks for all your inputs i am so glad I am not crazy.  lol others get so cold also.
Posted 3/1/2009 3:01 AM (GMT 0)
Would one of you mind explaining what a seton is? I know what a fistula is, but not a seton. I like to understand and learn new things, and I googled it, but didn't was left confused...

I'm always hot, but right now, my hands are cold from playing on the computer, and I'm looking forward to taking warm clothes out of the dryer soon. Isn't it funny we all want what we don't have. I'd give you 10 lbs and a few degrees and we'd both be good!! I hope you get a handle on it soon.
Posted 3/1/2009 9:30 PM (GMT 0)
a seton is a rubber band they put in an abcess that won't heal.  I had a abcess lanced opened and the outside would close up . but the inside would not heal. so it would keep getting infected.  so they run a rubberbband through the abcess and tie it in a knot. and it stays in place to hold it open all the time.  so the hole is open 24/7.  it drains all the time. hope that helps.
Posted 3/2/2009 12:37 AM (GMT 0)
eyes I reckon that what Trigirl said about losing subcutaneous fat is right enough, I lost mine two three years back and never have regained it, can't even sit in a draft without shivering now, like a pensioner. But even before that it was noticeable that my homeostasis (balance) mechanism for vasodilation and vasoconstriction (blood flow to capillaries) was totally shot whenever I was ill. That causes chills and sweats just as if fever or hypothermia would, and it certainly ties in with Crohn's being a vascular disease as some GIs have been known to describe it.
Oh I wish I had a clothes dryer !! yeah (Still, knowing the carbon footprint of those devices should warm me up - I'm blushing at what my green friends would say ! blush tongue)
Posted 3/2/2009 1:12 AM (GMT 0)
I love my humira! Never had an abcess what so ever so I know it works because I am a moderate to severe case of CD.

As for the freezing, my normal temp after the CD diagnosis has been 99 and steady. Some have suggested that 6mp class of drugs play with your body temp. I am off my Imuran right now and have been for 6 weeks and I'm still freezing so that blows that theory for me at least. Love my micro heated rice bags and heating pad!
Posted 3/2/2009 2:50 PM (GMT 0)
Just a thought, but have you had your thyroid checked? Sometimes when its out of whack you can get that freezing feeling.
Posted 3/3/2009 7:48 AM (GMT 0)
Broomhilda  - I have been off meds for 6 months because I had a positive TB test.  Now it is negative, imagine that, and I will get to start my Humira next week.  I really hate shots.  It is the pen injection.  They told me in my thigh or 2 inches past my belly button.  I went from a size 8 to 4 while waiting.  grrrr.  Which is the best option?  Thanks

Posted 3/3/2009 11:17 PM (GMT 0)
When I go for my colonoscopy"s
and Remicade infusions they have
blanket warmers.Everyone laugh's
at me.I'm like...OHH...OHHHHHHHHH
Posted 3/4/2009 3:42 AM (GMT 0)
We have a blanket warmer at work (but it's downstairs and I'm usually upstairs). If I'm ever downstairs working I offer to get patients blankets when my hands are cold just to hold the blankets!! If only you could get insurance to buy you one! That would be great when it's cold and you feel like cuddling up and watching a movie or something.
Posted 3/4/2009 7:58 PM (GMT 0)
bar77 ... oh i wish i had that blanket warmer. lol ... just the thought warms me up. lol

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