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Crohn's Disease
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Posted 4/21/2009 3:45 AM (GMT 0)
Hi all

Saw my colorectal surgeon for my follow up after my ileostomy surgery on march 4th and looks like we have to go ahead with the removal of my rectum and anus as I apparently still have active disease there and he says a reversal would be a nightmare for me so looks like I  will have to get used to living with a bag, but its a small price to pay for getting my life back to some kind of normal, but still a part of me is feeling down also doesnt help that my boyfriend and I split after 2 years together. I ended it after a lot of thinking about which way my life was going and didnt see a future with him so had to make that decision, but it still hurts. I have to get used to feeling good about myself with a bag, I must admit I am scared about another surgery too, the surgeon says it will need to be done in 3 to 6 months as I have been getting the feeling like I need to poop and lots of blood and mucus is coming out, sorry tmi. Not nice. Anyway thats about it for me at the moment. I hope you are all doing well. Take care

Posted 4/21/2009 4:01 AM (GMT 0)
Just wanted to send you hugs and good wishes. You've been through a lot. i've never had "real" surgery (just i/d for abscess) I am only imagine the nervousness around surgery. It's great to hear that living with the ostomy is a small price to pay. This disease takes so much away us, the least of which our dignity. I wish you the best! Take care of you...
Posted 4/21/2009 4:05 AM (GMT 0)
Big hug and lots of prayers and good thoughts for you to get better. Sorry you are going through so much. Pehaps this next surgery will be the last needed.
Posted 4/21/2009 4:13 AM (GMT 0)
I can give you one thing to be thankful for:

I had a colostomy bag for 6 months about 3 years ago after my resection went wrong. Apparently something in my skin composition didn't get along with the adhesive stuff on the bag. The bag would fall off all the time. Sometimes I would wake up covered in ****. I ended up having to change the bag once a day. It was something in the skin of about 10% of people that caused it.

Anyway, it was a huge relief to have the reversal. My thoughts are going out to you during your tough times.
Posted 4/21/2009 4:27 AM (GMT 0)
My best wishes to you! Hopefully you get better very soon and be able to start combining more natural, hoilistic and alternative medicine to your conventional medicine approach to eventually decrease or discontinue the medications with lots of side effects . All the best!
Posted 4/21/2009 4:41 AM (GMT 0)
Im only taking 5 mgs of prednisone and lexapro Inna having the surgery also got me off all the other meds so for that I am thankful as well. This next surgery has to be the last for me cause theres nothing else left for them to take out lol. I only have some small bowel left just enough to make the ileostomy, so i was lucky there too lol. I have also had the bags leak on me Jackel but I have that sorted now, I just need to use lots of stoma paste. Thanks for your kind words all. I love this site you are all awsome
Posted 4/21/2009 12:40 PM (GMT 0)
I wish you luck with your impending surgery and the changes you are going through right now.
Posted 4/21/2009 1:25 PM (GMT 0)
I'm sorry to hear that you need this procedure! At least you will never, ever have problems down there again. No more worring about that possibility. And surely that is something to be thankful for! Continuing to have the urge to go with blood and mucus is just a ridiculous and unnecessary thing to live with! I hope your recovery time is rapid and you can get on with your new, free life!!
Posted 4/21/2009 1:35 PM (GMT 0)

(((andorable))) Just wanted you to know that I am sending healing thoughts and prayers your way.

Hugs

Gail *Nanners*

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