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Crohn's Disease
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Posted 4/28/2009 2:32 PM (GMT 0)
I am so impressed with how active so many on the board are.  I work only a few hours a day (between 2 and 4), raise my kiddos and that is about it.  I find it very hard to have the energy to do much more.  I even feel guilty because I am not more active with my kids.  It takes all I have to keep the laundry done and dinner cooked. How do you all do it?
Posted 4/28/2009 3:05 PM (GMT 0)
I feel the same way.

I don't do anything hehe and if I do I have to sleep the whole day after that

My schedule includes watching TV, taking care of my two dogs, and taking care of myself like going to acupuncture, physical therapy, seeing my docs and so on.

But if I had to work also I think I would just work and sleep.

I admire the energy some of you have.
Posted 4/28/2009 4:24 PM (GMT 0)
Hi Hm i don't know were some people get all there energy thats for sure but when i first started getting my B-12 it gave me lots of energy now non at all my best friend runs her husbands contracting company and 3 apartment building and raises 2 boys and still has energy to go out for a date night with her husband and look after hockey daily running back and fourth to the rink E.T.C but we are sick that make s ahuge differance we get tired easy and run down and my case really cranky. Jenn mad
Posted 4/28/2009 4:51 PM (GMT 0)
I have my days. Some where nothing gets done but holding down the couch. other times when I am feeling good I tend to do too much and regret it. I do work full time and have a 6 year old and we just started Tball for the first time and so far so good but think it might get worse as the weather gets hotter. I don't do well in the heat. I am just lucky that I have so many understanding people around that yell at me to slow down when they see I am going too far. My daughter also tattles on me. I try to go with it and not fight against it. Talk about fly by the seat of your pants. literally :)
Posted 4/28/2009 5:49 PM (GMT 0)
SOmetimes I wonder how I get through the day. I made a pact with myself that I would not let this disease control my family. Granted I am exhausted, go to bed early and sleep a LOT more on the weekends, but I try really hard for it not to affect my kids.

I really would like to go on disability and my dr brought it up to me but I am not sure how we would survive financially. My husband is not high enough on salary to live just on his income and the measly amount you get for disability. I am trying to make it until my kids are out of school. (grades 6 and 10 right now) But this year has been a tough one....

Tanya
Posted 4/28/2009 6:25 PM (GMT 0)
I have had this DD for over 30 years. What has always worked for me is to take one day at a time. I am currently in remission with my Crohns, but that doesn't mean life is hunky dorry all the time. I suffer with ALOT of joint pain and fatigue. With the joint pain I take my pain meds so that I can function. As for the fatigue, thats where it gets a little harder. I get B12 shots every week and that helps some, but I also take a nap almost every afternoon when I get home. My husband calls it my nap before I go to bed:)

I was lucky to be in remission when my girls were younger. I can't imagine trying to raise kids now and try to work, I would be in a world of hurt then. Its not easy I can tell you that, but I think I make myself push thru alot and as said before I take one day at a time.

Hugs
Gail *Nanners*
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