Kind of sad - high SED rate

Sorry to hear that you aren't doing better than that.

Thank you for your support, always. I know (or feel like I know, not being pessimistic) that at some point the ostomy will be a reality in my world. I just hoped I'd hold on for the dang stem cells - at least Prochymal somehow. But sometimes I think it's all so silly... I could just go get a temp ileostomy and *live* my life for a couple of years instead of always being so sick. I am so tired of fevers, night sweats, daily pain and all that ickiness. But, I suppose all of us are. And, it's not like me to be sad but I guess I'm just scared. (At first they were saying permanent, but I'm not ready for that yet.)

The surgeon told me the if I do the temporary she can do a small incision 2-3" or so. I guess I am scared of the full pelvic to ribs cut. So many of you have done it and it's seems silly for me to be so scared of it. But, I am...

Then I think if I'd go get the surgery maybe I'd look back and wonder why the heck I waited so long. A few weeks ago while I was in the hospital it really hit me that I want to be better if for not other reason to be a better mom to my daughter. Not that I'm a "bad" mom in any way (!!) - I just want to feel well enough to take her out to the fair or skating or bike riding or whatever without anxiety or pushing myself too hard. I try so hard but sometimes it all gets the better of me and I just can't keep up with life.

Typically I am a super happy person... Optimistic with a realistic tendency. I feel like Crohn's has really hit me hard, though it helps to remember perspective - there are so many people out there with even more challenges. I started Celexa while I was in the hospital thinking that it would be good for me, especially if I'm staring down the road at surgery. Actually, until I got the news today with my sed rate, I have been in great spirits. I know I need to remember it's how I feel that matters, and if I'm feeling better, that's good! I was just shocked at how elevated given the steroids, too.

Anyway, now I'm rambling. Thanks again to all... Tomorrow is a new day and thankfully it's sunny and beautiful here. Oh, and now I have another neighbor's cat on my porch. Maybe they all know? ;-)

Feel better soon

What was your sed rate before??

Mine was 98 about five years ago and it took a few mths for it to come down with the steroids. Hang in there,I know it's frustrating,agghhh.